Synagis: getting a shot late

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My boys are getting Synagis again this year and were due for their third shot last week Thursday. As it was Thanksgiving we couldn't get it that day. Knowing the shots need to be given every 28-30 days I knew we had until Saturday to get them. Well, Timothy ended up in the hospital. Friday we were pretty sure he would be discharged Saturday AM. I discussed with the pediatrician doing rounds at the hospital about getting Timothy out of there soon enough on Saturday to get to the clinic for his Synagis. The clinic is open 8-12, but lab hours are only 9-11. The doctor told me that he would see Timothy first that morning and, if he was discharged, the clinic would give him his Synagis as long as he got there by 12:00. Just to give them a heads up, I called the clinic, explained the situation, and the person with whom I spoke said she would leave a note that we would try to be there by 11:30. So Saturday morning we left the hospital as soon as we could and got to the clinic at 11:35. There was not a single patient left and everyone was just sitting around. I went to sign the boys in and was told lab hours were over at 11:00. I explained everything, but could hear the nurses, who were sitting on their stools chatting, saying that lab hours were over at 11:00. Finally the receptionist went and asked my boys' ped about getting the shots that day. The receptionist quickly came back (too quick to have been able to explain everything) and told me the boys' ped said they could get the shots on Monday. I was not happy! Saturday I had my mom with me which is essential since someone has to help hold the child getting the shot and someone has to keep the other from running away. Not to mention the difficulty of sometimes waiting over 90 minutes in the waiting room with 20 month old twins! Because I just can't get myself to go to the clinic Monday for the Synagis and then again Tuesday for a recheck for Timothy after getting out of the hospital, we are just getting the Synagis on Tuesday. And to think that in the time the lady spent arguing with me over this, the shots could have been done!

So, here's my question: does anyone know how much, if any, less protection my boys have by having to wait 32 days (or as it will be 33 days since I'm waiting until Tuesday) between Synagis shots rather than the 28-30? I am upset with the clinic and am going to discuss with the boys' ped about their poor communication at the clinic. I'm not sure if I need to make an issue of my boys being put at increased risk by having to wait a few extra days.

Even though I don't keep my boys home all winter, I try to be careful with them. I am just irritated that they have to wait a few extra days for the Synagis, that they will have to sit in a waiting room full of sick kids, and all of this after Timothy spent a week in the hosipital for bronchitis!

19 replies

Hi there,
Gosh - I would have been very upset too!! Of course it is always best to get the shots on the set time, but I think the little ones will be okay. I would discuss the issues with the ped on the next visit (for sure!), but I would not stress. Just get them the shots ASAP and get back on schedule. As far as the ped office and the sick kids....I hate to say this, but my girls play with no one there and touch nothing. I take my double stroller and tell the receptionist they we will be in hall, lobby or outside (not sure how your Dr office is set up) - not far from the door - so they just have to peek out of the Dr office door to get us. They never seem to have an issue with it and if they do...well that is tooooo bad! And I do it even if the waiting room is empty when we get there - chances are a sick one is coming any minute and it saves you the ackwardness of leaving when they walk in:) Like I said before - I would definitely say something to the ped, but I would not worry yourself to death at this point. It is already done and it won't be weeks past the limit. Just get back on track now - RSV season lasts for a good while longer for our preemies - urgh!:) My 2 girls are almost 17 months (actual) and they were not approved this year for the "RSV" shot. The main reasons being they do not attend day care and do not have school age siblings. I was totally freaked out and MAD! Well, we have already been hospitalized with pneumonia and RSV this season (and we don't take them all over the place & people must wash hands etc etc). When the 1st one was in the hospital for the pneumonia the Dr said that now we would get approved for the 2nd year of the shots. Then the other got sick and tested positive for RSV (the 1st had been negative?) - so now I guess they see it as the "worst has passed" - (CRAZY!!) - so no shots for us this year. It was ABSOLUTELY TERRIBLE, but I know it could have been much worse! They are fighters - they prove it over and over again:) GOOD LUCK to you guys!:)

M-and-D-Mommy,

I quit taking the boys in the double stroller to the dr because all they did was scream wanting out. Of course everyone would be watching us and so I would get them both out. Then it would be the struggle to get them strapped back in the stroller when finally called without taking forever. My boys have never played with other kids or with toys or books at the dr's office. They stay seated and read their own books. This isn't always easy since the other kids are bouncing off the walls, but it's not an option. Perhaps I do need to start taking them in the stroller again. The exam rooms are so small, but it may be worth it. There isn't any other place for us to wait other than the waiting room. We would have to be outside the building waiting and I am sure no one would walk the extra steps to get us.

No, I'm not stressing about the boys getting the Synagis late. I just wasn't sure if, when I talk to the ped about the mess, if I should emphazise a possible increased risk for RSV by not getting the Synagis on time.

I have no clue how we got approved for Synagis this third year (the first year was only one shot at the tail end of the season when discharged from the NICU). The boys are no longer in daycare and have no other siblings. However, they probably met the requirement of a need for oxygen in the six months prior to RSV season. I was shocked at the approval and won't complain! It such a matter of discretion by the insurance companies. Last year we were denied when I had private insurance, but I lost that and the boys went on Medicaid. They were approved by Medicaid both last year and this year!

I am so sorry about your TWO hospitalizations already this year! Nathaniel has not been hospitalized for respirtory things since the NICU. He just doesn't ever get quite as bad as Timothy. They always have exacerbations at the same time, but Timothy is always a little bit worse. I think hospitalizations are horrible on the emotions of these little ones. Poor Timothy was screaming every time someone would go near his foot (where he had the sensor for the pulse ox) or his face (nasal canula taped on). As may have been the case with your girls, the seperation was hard on the boys. They each had a week of being an only child and now are having to learn to work together again. If only the medical aspect was the only concern in a hospitalization!

NateAndTimsMom,

I don't have any insights about the increase in odds of getting RSV, but I just wanted to say that I'm sorry that you had to waste your time. That was incredibly insensitive of the clinic staff. I would be inclined to write a letter to the head of the clinic documenting how the staff were just sitting around and how you had called ahead of time. Time is a precious resource. It kind of sounds like the staff members were just being lazy and trying to assert what little authority they have on you, wasting your time. How very frustrating! You'd think that in tough economic times, people would be more willing and eager to provide excellent customer service to keep their jobs. Amazing that that's not the case. Sigh.

I'm surprised too that the hospital couldn't have administered the synagis for your son that was still admitted there, even Wade has gotten it in the hospital if we coudn't make it to the clinic...If it were me, I would just be extra careful the next few days and keep them safe at home!

You have a 7 day window each way with the synergist shot for it to be effective.

As for waiting 90 minutes in the doctors office - that is just awful. I had that problem with my first pediatrician. I complained to the office manager then when it didn't improve I found a new pediatrician. In the new office I don't wait more than 10 minutes before being called back and we see the doctor promptly. Plus they have 4 wating rooms - 2 well and 2 sick so we are usually alone in the waiting room.

Hello again!
Shoot - if they hate the stroller - then my suggestion won't work well, huh? Well, I guess if the weather is permitting - stand outside with them and just advise the receptionist that you guys will be right outside the door. Don't go far and don't give her an option. The only problem may be is trying to keep them close and entertained for a long long time. I wish I had some great advise that might help things for you. You have been doing this longer than me...maybe I need to be asking for the advise instead...ha!:) Tell that Dr "how it is" and keep up the great job mom!! Let me/us know how it turns out.

It's me again.....WAY TO GO on the getting them to sit and read while the other kids run wild. That is impressive! I hope I can accomplish the same thing when the time comes. Most people think what we do with our kids is "NUTS", but they just don't understand the whole preemie thing (that is a whole different story!). So, I feel better knowing that something like that can be accomplished and I am not "NUTS" for trying to do it:)

I'm actually contemplating going back to the stroller. The longer the wait, the harder it is to get the boys to sit. Do they like to sit? For the first little bit they do fine. But eventually they want to run around with the other kids. I keep the diaper back packed with crackers, mini graham crackers, cheerios, water, milk, mini lift-the-flap books, matchbox cars, and bubbles. It works for a while! I also keep lollipops in for a last resort thing if we are somewhere that I know it may be 5 hours. Since it can be hard to get the boys to sit, the stroller may just be easier. They sit in it nicely for a while, but are happier if we are walking with them in it. I just don't want my kids running wild!

As for the Synagis, I talked to the ped about the situation. She had not been told why we were there late. She explained their staffing issues and why lab hours are what they are, but also said that when I called the day before to let them know we would be there after normal lab hours they should have just scheduled a hospital follow-up to do the shots. She was nice about it, understood where I was coming from, almost apologized, and I was happy with the situation.

I am so glad you were able to discuss it with the ped and feel better about things!!
Good luck with everything!!

I am so sorry about the synagis situation. I have noticed that alot of the pediatricians in memphis are not so "preemie friendly ". When it comes to waiting - or keeping your children away from other potential sick kids. ( The door at our pediatricians office to enter/exit is in the sick child waiting area). Perhaps if you have someone to help you take the boys to the peds office they could actually go sign you in and you could wait in the car with them. Or maybe call when you are on the way so they could go straight into an exam room when you get there. I know having a 90 minute wait would be extremely difficult to keep them entertained no matter how you try to do things. I am sorry they are not very accomidating. I hope the boys are doing better, and hopefully you will not have any more trips to the hospital this year.

Coren

My son is also getting his 2nd Synagis shot late...10 days late! He got his first does while still in the NICU and I scheduled an appt with his peds for the 2nd shot a few weeks before he was due. Well, they tell me it takes about a MONTH to get the shot in so he is going to be late! Argh!
I have become so neurotic about germs that I do not even sit down anywhere in public (*and he certainly never goes anywhere in public). I know I take it to a new level but can't help myself. When I took my son in the other day for his 4 mos shots (he is behind from being so sick in the NICU) I had him in his carseat on the stroller with a blanket over him and we stood in the corner of the room, not touching anything. Even after I signed us in, I sanitized hy hands! Then when I got home, even though his carseat and stroller didn't touch anything, I sanitized all of it, gave him a bath and changed and took a shower myself!
Even when I am on the phone with someone and I hear them cough or sniffle, I instinctively freak out and want to get away from them. I have to remind myself that I CANNOT get their germs through the phone! ;)
I drive myself crazy!!!!!!!!! ;)

I am glad everything worked out for you!
I must be really lucky! My ped office makes sure I get the first appt of the day when I need to bring my twins in, and the receptionist pages back when I get there to let them know we have arrived, and I am met by a nurse who immediately takes the babies and me to a room! Wish everyone could have it that way!

NateAndTimsMom,
I actually forgot (until sshuckhart reminded me:) about the fact that we also make the 1st appt or the very last of the day for our girls to try and avoid people as much as we can. I still do the stroller outside thing, but we do try and get those appts too. When they were smaller they would immediately take us to a room (if we reminded them), but not really since they have been older. Some of their other Docs offices were pretty good about it too (again - mostly if we asked). Now - for RSV shots many offices only do them certain days and certain times (which you had to find out the hard way!!;) - so this did not work for us when they had the RSV shots last season! Maybe give that a try for the other appts! Take care!!!:)


kimmym91,
You are not that crazy. I was pretty much the same way when mine came home. I am alot better now (they are 17 months actual), but I am still pretty fanatical (SP?) about it. I santize my hands after signing in at the Dr. to this day. My husband and I wash our hands alot, people that are sick are not allowed near them, we generally request that people wash hands when coming from other places before touching them and we still change clothes/wash hands after coming home from somewhere before playing with them ourselves. FT parents all think we are CRAZY (maybe we are a little:), but we just had pneumonia/RSV hospitalization...so, we are not tooo crazy! I know they need germs to build immunities and all that - they get SOME germs, but I just don't feel like RIGHT NOW is the time for that (especially after what we have just been through with them). People can think we are crazy, but we are doing what we (and ALL of their doctors) think is best for right now:) Do what you think is best!!

Nate and Tims mom,
Yes, I will continue to be neurotic. Couldn't stop if I wanted to! ;0) FT parents would be amazed at the amount of Clorox wipes I go through a day! If any of his toys touch the ground, they get sanitized before he gets them back! Life was SO different for us when our FT 5 y/o daughter was a baby!
The thing that really stresses me out is that I have a daughter in kindergarten. She and I both are used to just cuddling all the time because it has been just she and I for 5 1/2 years and I feel SO BADLY that when I pick her up from school and she hugs me, I can't help but think of the other kindergarten germs all over her. When she comes home she changes in the laundry room from the garage and runs upstairs to change and wash up to her elbows. I would REALLY love her to shower but am trying to find some middle ground. She loves him to pieces and I don't want her life to be too thrown in the air (although her life has been CRAZY given that we just came home Nov 4th after 186 days in the NICU that was 1 1/2 away). Plus she goes outside to play after school and she would need to take a second shower before bed. I am just scared I am going to make her associate her life being completley thrown for a ride with her little brother.
I agree that this isn't the right time for them to be exposed to germs. I have been battling a sore throat for a week and am just PRAYING he doesn't get anything.

Nate and Tims mom,
Yes, I will continue to be neurotic. Couldn't stop if I wanted to! ;0) FT parents would be amazed at the amount of Clorox wipes I go through a day! If any of his toys touch the ground, they get sanitized before he gets them back! Life was SO different for us when our FT 5 y/o daughter was a baby!
The thing that really stresses me out is that I have a daughter in kindergarten. She and I both are used to just cuddling all the time because it has been just she and I for 5 1/2 years and I feel SO BADLY that when I pick her up from school and she hugs me, I can't help but think of the other kindergarten germs all over her. When she comes home she changes in the laundry room from the garage and runs upstairs to change and wash up to her elbows. I would REALLY love her to shower but am trying to find some middle ground. She loves him to pieces and I don't want her life to be too thrown in the air (although her life has been CRAZY given that we just came home Nov 4th after 186 days in the NICU that was 1 1/2 away). Plus she goes outside to play after school and she would need to take a second shower before bed. I am just scared I am going to make her associate her life being completley thrown for a ride with her little brother.
I agree that this isn't the right time for them to be exposed to germs. I have been battling a sore throat for a week and am just PRAYING he doesn't get anything.

I have always known what the lab times were at my boys' dr's office. They are 9-11 and 2-4 (Saturday only 9-11). Those hours are the only times they do shots (and other things you come for without an appointment), but I don't know what all). However, when I knew Timothy would be discharged on Saturday and doubted we would get there by 11AM, I discussed it with the dr from the clinic who was at the hospital. I also called the clinic to let them know we would be there after 11:00--and was told it was OK. Now I know that, pretty much, regardless of what someone tells you, you have to make an appt if you want shots outside of those hours. But I am willing to bet that if this happened again and someone actually told the doctor at the clinic what was up, we would get the shots.

I have never been into hand sanitizer and all that. I bought some when my boys came home, but eventually it got tossed. Truly the stuff is horrible! It is awful for my eczema and also makes my boys break out. I also hate the stuff because at schools they eliminate hand washing and only use hand sanitizer. Ironically there are germs hand sanitizer (even the super dooper stuff at hospitals) won't kill and that will only be killed by the actual motions (friction) of washing hands without even needing antibacterial soap. I love good old hand washing! My boys used to be in daycare because it was a necessity. They were sick more than now, but actually they didn't get as sick as they do now! I am beginning to think (as is their doctor) that their asthma is less from being preemies and more from genetics. The boys never would have gotten Synagis this year if it weren't for their asthma. I am currently debating putting the boys in preschool and the medical stuff is a huge consideration. Much more so than when they were in daycare. But, I couldn't live if I had to isolate us all the time. Plus the boys benefit from their therapy and they go there more than anywhere else. So we just try to be careful, but still live life as necessary. I know other can, have to, and do things differently (both more strict and less strict). My bottom line is that you have to do what your doctors advise (which I do) and what works for you (which I do). (And don't push onto others what you think is right if what they are doing is working for them.)

Ah, what I would give for my boys to have been FT babies!

NateAndTimsMom,
I am so sorry!! I did mean to imply that you did not know the hours of your dr etc. I was just telling you what my experience and personal knowledge on the subject of the special hours for the "RSV shots" was (which was actually kind of pointless - I am pretty sure most mom's here know the shots are given on certain days/times etc with their dr offices;). Actually that post was mainly (originally) meant to say that I had forgotten all about us making the 1st/last appts when you and I had "spoken" previously about things. I had not remembered until someone else said it and thought it would be good to tell you that we do that same thing too:) I knew you had called and spoken with them and had it set up. I was just making a joke. Forgive me - I did not mean to offend you!

Goodness, you didn't offend me! I actually thought that I hap perhaps not been clear!

It can be hard for me to make the first or last appt of the morning or afternoon. When having to make appts for two I often have to take what they have unless I am willing to see any dr (which I am not). I had never thought of being specific in asking for the first or last appt, but I think I'll try to do that. When they tell me something I know they offer the first time available and sometimes I ask for later or right after lunch, but I'll try to be specific. If nothing else, I know those appts result in the least amount of waiting time! Anyhow, I did really apprecite your suggestion of asking for those appts. So, thank you!

And perhaps someday computers will learn to put the inflection in our voices into the font we use. :)

I agree - This "typing business" is so hard to express what you mean at times:) I actually worry when I am posting that I will hurt someones feelings or maybe come across as COLD (and that is a far cry from who I am) or seem unsympathetic to their situation etc etc etc. I use the smiley face often to try and help that:) I have also noticed I make little jokes - maybe I need to be even more careful with that stuff. I just want to make people smile sometimes. What we deal with is so hard and we are a very misunderstood bunch. I just wanted to be sure that I had not upset you. We all need our friends here! Have a great day!!!

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