Problems with neosure?

My son was born at 27 weeks he came home 2 months ago. He was on breast milk until he left the hospital he is 3 3/4 months actual. He is on neosure now. He cry's almost constantly he has terrible gas he is always constipated. I have talked to the doctor every week and he refuses to change formula's he says he needs to nutrients and extra calories. He has a nutritionist finally coming to do an evaluation on wednesday (EI took forever to get her the ok to come do the evaluation) anyway has anyone else had these problems? If you have what formula's did you try? Did the nutritionist help? They told me she can call and have the doctor change formula's.

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we were on Enfamil Enfacare (same as Neosure) for the first few weeks, and it did the same thing to my son. He would SCREAM when we gave it to him. So I switched to Nutramigen, which cleared his system out nicely and calmed it down. I mixed it to 22 calories to get the extra nutrients/energy. My GI said that was okay, and he kept gaining about an ounce per day.

After it had all evened out again, I tried the Enfacare one more time, and the same thing started happening nearly immediately with the feedings... screaming, gas, etc. I have a feeling it's because of the elevated levels of vitamins and minerals. They are so much harder to digest! I simply decided that I'd rather stop causing my son distress and who cares if he's not in the top percentile for his age... he's doing much better and he drinks much more on the other formula, so I'm confident that it evens out in the end!

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I had the same thing on Neosure with both of my babies: the gas that was so frequent and horrible smelling, the painful screams, weird stools. We switched to Simliac Isomil Advance (for dairy intolerance, fussiness and gas) and it has improved. You can make any formula any number of calories by supplementing or altering the water. For example, we needed the 22 calories of the Neosure and the doctor has us mix 10.5 oz of sterile water/nursery water with a 13 oz. concentrate can. You can also do the powder -- let me know if you are interested and I'll find out how much (I think it's 5 oz. water to a scoop???) . I can call and ask the M.D. for you. We also add Enfamil's poly-vi-sol vitamin drops because preemies apparently need the extra phosphorus that Neosure has. There was no reason for them to suffer in the name of "calories" because they would just stop eating because of discomfort, or puke it up anyway so there went the calories after all. It took about 2 1/2 weeks to see a change, but it's so much better. Good luck and keep us posted!

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Casey began to experience constipation with the neosure around 3 months adjusted. He was mostly getting breastmilk then with the occasional bottle of furmula. He was also gaining weight faster than what the ped preferred so we switched to enfamil gentle-ease lipil and things have evened out very well. A lot of babies get gas for absolutely no reason so keep that in mind as well. Have you used mylicon drops? Your child's doctor should be addressing your concerns rather than blowing you off. Hopefully the nutritionist can help you find some answers that will benefit your lil one.

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my daughter did well with neosure, but have you tried gripe water for your son's gas? we used colic calm gripe water and we really liked it (all-natural and worked better than mylicon). lynsey used to get A LOT of gas during her infant days because she had a fundo and was unable to burp.

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Hi - we had the same issue when we got home from the hospital. We ended up switching to Enfacare, which is still a preemie formula. At the same time, we switched to Dr Browns bottles (were using Avent) and started using a little bit of the gas drops (like Mylicon) in his bottle. Not sure which change did it, but he had much less gas/constipation after these changes. We think the bottles helped the most as we could hear a difference while he was feeding in terms of his taking in less air in order to get the formula.

Good luck.

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I would def switch formulas. My son was only getting 1/4 tsp of Neosure added to my breastmilk and he would scream non-stop! i took him to the GI specialist and he said that it seemed that my son had a slight milk protein allergy. So I did all breastmilk for awhile with no dairy.I had to recently start supplementing b/c he was eating more than I could make. We first tried Nutramigen and he actually liked it but it gave him a horrible diaper rash and very loose nasty stools. GI told me to switch to Alimentum which is now working alot better. He sleeps peacfeully, no gas, and is a happy baby again. It's hard to find the right formula, but you just have to keep trying. And I listen to what the doctors say, but I have found out that usually they aren't always right and mother's intuition is best. By the way, they told me my son NEEDED Neosure to gain weight and that he wouldn't gain weight with breast milk alone. I left the office and didn't supplement AT ALL and he gained weight quicker. From 51/2 lbs to 8 lbs in 3 weeks! So do your research and find out what is best for YOUR son.

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I had the same story as the above moms. We hated Neosure from the beginning. As soon as they started supplementing my breastmilk with Neosure, Bhoman started screaming with gas and constipation. The neonatologists, GI docs, and nutrionists all said stick with it. It was the wrong thing for our son. When we finally switched, our nightmares with constipation and "colic" abated. We use an organic cow's milk-based formula, and it has worked well for us. His rate of growth didn't change much, and I am not sure that it was related to the formula anyway. Good luck. The pressure that the docs put on you is quite a bit, yet I am not even convinced that the studies they use are all that good.

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We had the same issues with Neosure. They were supplementing my breastmilk with a special care formula while DS was in the NICU, and when we first brought him home, we had the Neosure. He was severely constipated the entire time he was on Neosure. We ended up going to a pediatric gastroenterologist who said he thought it was a milk allergy and switched us to soy (Isomil) which was horrible for DS-worse than Neosure. He also tried us on the Nutramigen-also worse for DS than Neosure. The doctor gave us Lactulose and we would give DS some pear juice, and that seemed to help. We had to adjust the Lactulose until we got to the point where he would go. We had to do rectal stimulation with a q-tip and lubrication as well as suppositories to get him to go-it was quite severe. We are on regular whole milk now (we used it until he was close to his 1 year adjusted age because we wanted him to get the nutrients), and still have to use the Lactulose, but not as much. I feel your pain, though. Prior to finding this website I felt like the doctors were acting like we were crazy to even be questioning his formula!
Good luck to you-I know how hard it is. I hope you can find some relief for your baby soon.

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My milk was fortified by Neosure for about 2.5 months, but when LO was diagnosed with reflux, the GI doctor said that there was no need to fortify anymore. She was gaining weight steadily and fortifying was not mandatory. Elena was born at 29 weeks, 3lb and when we saw GI specialist she was 2.5 months actual and about 6lb.
You are your child's best advocate and you should follow your instinct. Try something else.

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Well the nutritionist finally came... and she switched him to progestimil and is having me mix it to 24 cal. So he is actually going to be getting more calories. MonDell does not seem to excited about the taste but I hope he will adjust and do well on this formula. The nutritionist is going to be back 2 times a month and she said if this one does not work there are plenty more to try! Thank you all.

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Thanks guys. Neosure has turned my baby from a happy baby to an unhappy baby. and you are right, the doctors do make you feel like you are from outer space. my husband and i have tried all the remedies from both karo syrups to suppositories. My son stay fussy because he's always constipated. I am not taking no for an answer. They are gonna have to switch his formula or this child is gonna spend the rest of his baby years constipated.

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Adayah is on Neosure and had a problem with being constipated, her pulmonoligist recommended putting oatmeal in the formula, she said to add l tsp of oatmeal per ounce of formula and it worked. she is no longer constipated.

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We had problems with Neosure when we got home and went through all of the usual suspects to find something that worked. It turned out to be Similac Alimentum. What a difference. She was on Neosure until about she was about 4 months, 2 months adjusted. As soon as we got her home she had terrible gas and constipation and was miserable. We tried gripe water, catnip tea, pear juice, apple juice, prune juice... When we switched to the Alimentum, it all stopped. It's not quite as high in calories but Annika's weight gain has continued to go up with no problems. The formula companies will tell you how to increase the calories with the correct ratio if you call them. We didn't have to do that since she continued to gain weight steadily. I hope you find what works for you!

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Ohhh It was awful!!!! Finally my son was seem by a dietician and she switched him to a couple different formulas finally settling on Neocate. The difference was amazing!!! He is a lot more comfortable! I hope they do something for you. If your doctor wont let you switch maybe you could see a dietician and they will call the doctors office and tell them what they see, my sons doctor listened. The dietician told us how to increase calories. I hope you get it figured out I know how hard it is seeing your baby so constipated and you can not do anything about it.

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I am so glad u were able to switch , do u take your little one to a pediatric gastroenterologist? Lily was on neosure for a little while after discharge along with breast milk and she was up crying all night and day , once we saw the gastro. Dr she switched theformula ( among other things due to her reflux) it made a huge difference and she gained weight just fine . If he does seem to get "colicky" again i suggest reading Colic Solved the essential guide to infant reflux and the care of your crying difficult to soothe baby by Bryan Varatabedian MD , he talks about what symptoms to look for and what to tell the dr and that babies arent "colicky" per say but either have reflux or a milk allergy it is an excellent book and it really helped me convey to her Drs how miserable she was, and that they needed to do something about it . i guess it empowered me to be a stroger advocate for her . anyway i just thought the info might help . Happy Holidays

Desi

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Have you tried the ready to use liquid?

My friend's son did the same until she switched to the liquids.

If you get WIC, you Dr can right a Rx for it too.

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WE HAD THE SAME ISSUES!!!
I cannot believe that NeoSure is still recommended by the NICU when coming home. I was a mirror of your story.
We went to the GI doctor who immediately recommended Enfamil Nutramigen Lipil. Because it is pricy, our insurance was to pay for it as a PRIMARY SOURCE OF NUTITION. Check into it.
Nutramigin is available over the counter at Walmarts and other groceriers. About $24. per small can. I would do it immediately.
It seems that our baby was allergic to the soy and milk and other protiens. He gained weight like a little monster after this change.
Good luck, call the doctor today and you will get som much needed rest, I am sure.
Jessica

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OK, HERE IS ANOTHER BIG DEAL.
If you call your doctor, they have many, many, many free samples. They can even talk to their rep and get you a free case and coupons.
If you call Enfamil 1-800-361-6323
they can get you Enfamil bucks to use at the store.
I really believe in this formula, because it really worked. My son was on it for 9 months, and he was born at 3.4 oz and is 30 pounds at 17 months. YEAH!
He had a drop in weight gain before we switched formula, and I ran him in to the GI. After that the weight gain was significant. Don't worry too much about 22 cal. the doctor can give you the Poly Cate (sugar suppliment), although they had to take my son off the suppliment after 1 month for toooooo much weight gain. I HOPE THIS MAKES YOU FEEL LIKE THERE IS HOPE.

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Yes I had the same exact problems. In fact the high sugar content and cow's milk in the neosure caused my daughter to have severe acid reflux. A month after we brought her home from the NICU we put her on goat milk and it solved the problem. And she gains weight awesome - she's 8 months adjusted and wearing 18 months. All of the doctors will knock the goat milk but it's such a blessing to us!

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Oh my gosh CallysMommy, we were in the same June group at Baby Fit and we both ended up having little preemies. I'm so glad to see how well she's doing!!!! Congrats

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