Anyone been diagnosed IUGR only for baby to start growing normally?

Hi. I have a quick question. I'm currently 28 weeks pregnant and we were diagnosed with IUGR at about 22 weeks. At first they noticed our baby girl was 2 weeks behind at her 19 week ultrasound. Since then she has gone another 4 days further behind. Our last appointment however, she was no further behind and in fact, instead of being in the 8th percentile, she was then in the 9th.

We have symmetrical IUGR, but there doesn't seem to be any chromosomal issues or anything - as far as the Drs are concerned, our IUGR is unexplained. <-- Though they are gonna start doing doppler ultrasounds and NST's n stuff from here on out as well.

Has anyone been diagnosed IUGR, only for it to.... go away <-- I know there's no way she'll catch up in the size she lost, but what are the odds of her continuing to grow normally from here on out?

Also, it doesn't seem I can gain any weight - even though I'm eating. The month before last I gained 2 pounds. This last month, again, 2 pounds. And in the last 3 weeks - I think about a pound!? <-- My specialist isn't worried about my lack of weight gain yet - she said once I hit the 32 week mark that the weight will start piling on... I think I've only gained about 10 - 11 pounds so far!? Oh, and I certainly don't look 7 months pregnant - when people find out I'm pregnant, they say 'You're what? 3 - 4 months pregnant?' And are SHOCKED when I say 7 months! =)

Any advice, tips or stories would be wonderful - thanks everyone!! =)

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I delivered my son at 27 weeks, 5 days due to severe IUGR (also of unknown origin, but it was assymetrical). Mine did not improve, and Milo basically stopped growing all together. There is someone on another board I am on who seemed to be in a similar situation to what I was, but her baby did start growing again and basically stayed as far behind as she was). I think it can happen.

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Hello--

My son had symmetrical IUGR and was born @ 36 wks. He was the size of a 32wker. We can't find a reason why he was IUGR. Thats great she is getting bigger %. Noah's life has always been about % and it gets old lol. He was off the charts for so long, when his nutritionist came last and said he was like 10% for weight we almost had a party!!! lol I also had sooo many ppl say OH ur so small!! At 1st it was great, but after Noah came out and I hear someone say it to another person all I can think is..OH NO! I know its not always IUGR, one can be small and still have a big baby, but still with me its how my brain works. =) Good luck in ur pregnancy!

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I was diagnosed with IUGR at 20 weeks gestation (November 21, 2008). I remember it like it was yesterday. My husband and I were so excited to go for our 20 week ultrasound and see pictures of the baby. The technician was having trouble getting good pictures and left the room to get the perinatologist. We had no clue what was going on. After a very long and uncomfortable silence the doctor finally told us our baby was measuring 17 weeks, 6 days. He diagnosed me with oligohydraminos and severe IUGR. He then proceeded to tell us that there were a host of chromosomal disorders that could be causing this and that we should have an amniocentesis to find out more. We were devastated. I left the office in tears and went home to research everything I could find on IUGR, desperate for a solution. I drank TONS of water and tried to stay off my feet. I had the amniocentesis done 3 days later. On December 3rd I got the results back that everything was normal. My follow-up ultrasound was December 5th. I was now 22 weeks gestation but the baby was only measuring 18 weeks, 6 days. The doctor proceeded to tell me that the fetus would not survive and I should consider terminating the pregnancy. After much soul searching and many sleepless nights we decided to put our child's fate in God's hands and keep the baby. To give our baby the best chance of survival (should the baby survive) I switched my care to a hospital with a level III NICU. The perinatologists there were much more sympathetic and put me at ease right away, despite my dire circumstances. My first visit was December 15th. They confirmed the first perinatologist's diagnosis and had very few words of encouragement to offer. They asked me to come back in 4 weeks. So I went home and waited for whatever the outcome would be. Then on January 12, 2009 at 27 weeks gestation I returned for my follow-up visit with the perinatologist and something remarkable had happened. A routine ultrasound revealed my amniotic fluid index had miraculously returned to normal! The doctor was absolutely baffled. For the first time since I was diagnosed I had some hope. That week they administered 2 shots of betamethasone in case the baby was born prematurely. From that moment on my fluid levels remained within the normal range. With the support of my friends, family and our wonderful doctors we made it to 36 weeks gestation. Our son Jordan was born March 12, 2009 at 2 lbs. 14.6 oz. (15 inches). He had no difficulty breathing, although they did put him on oxygen for a few hours as a precaution. He did not need a feeding tube and gained weight steadily while he was in the NICU. On April 14th he was discharged. It was one of the best days of my life. He is the light of our lives and proof positive that miracles do happen. He has had no major medical problems other than an inguinal hernia which was repaired when he was 3 months old. Very common among preemie boys, by the way. He is now 10 months old and developmentally normal and beautiful. Please stay strong. I remember being where you are right now and how scared I was, but everything will be okay. You're stronger than you think. I will be happy to answer any other questions you may have. Best of luck with your pregnancy!

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Jordans Mommy- Thank you so much for your post. We are beginning the process you went through at 20 weeks of your pregnancy. I sure pray and hope for the same miracle you received. We found out at 20 weeks that one of our twin babies has IUGR. The type she has is assymetrical. Her head and brain are growing normal but the rest of the body is severly small. After this diagnosis, I asked the high risk o/b what can we do to save this baby- she said- there is nothing you can do, the placenta is not delivering enough nutrients to this baby and there is no cure for that. I was so devastated and cried non-stop. The doctor later suggested submersion therapy for at least 30 minutes a day and bed rest. So I did this for a week and baby showed some improvement. The amnionic fluid level increased from 1cm to atleast 1.5-2.0cm and baby gained 4 ounces. I was so excited we were going in the right direction until today.

This is the reason I am up at 1:00am. I cannot sleep. The high risk OB just told us today that this baby is heading for the worse. The babies heart is working twice as hard to get nutrients to the baby and it's only a matter of time. I AM SO DEVASTATED! The doc once again said - there is nothing anyone can do- time will tell. So I am sitting here crying my eyes out and all of a sudden, baby starts to kick and play in my belly. Then I started thinking- if things are supposed to go so bad, why is this baby kicking and playing so much? I used my home doppler to listen to the heart beat and it sounds stonger than ever. At that moment, I decided that I will not listen to anyone telling me my baby is unwell. I prayed and asked God for a miracle. I go in for my 24 weeks appt this Thursday. After all my searches online on IUGR and some hope - I found the one positive message I needed today- My miracle message- from Jordans Mommy. I will read this as my daily encouragement and will continue to pray for my little one since there is nothing anyone can do!

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Dear Maggie2010. I am so sorry for the pain you are going through now. I read your post and it brought me back to the fear I felt when I was pregnant with Jordan. I used to spend hours on the internet searching for a story with a positive outcome. I finally found one on a site called benotafraid.net. It was about a woman diagnosed with oligohydraminos and severe IUGR. She was pressured to terminate but ignored the doctor's advice. The baby was born at 29 weeks, 1 lb. 1 oz, but "perfect in every way".

When I was first diagnosed at 20 weeks I remember thinking I can fix this. So when things looked worse at 22 weeks I was devastated. Once I realized my child's fate was out of my hands I came to terms with the situation and was suddenly at peace with whatever the outcome would be.

This is such an emotionally draining experience and you are so brave and strong for trying to do what is best for your baby. All I can say is that if God had decided to take Jordan from me I would have had no regrets with any decisions I made. You are your child's voice and your instincts are always right. Listen to them. Modern medical science is amazing, but not perfect.

You are not alone and I will be praying for you every step of the way. I hope you will let me know how things go on Thursday. God bless you and your precious babies.

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Hi Bella16, and all other ladies in the same position...
Im currently 19+4 weeks and following an abnormal mss blood screening result was told our baby probably had a neural tube defect. A scan could find no evidence of any problems with the spine, however our baby girl is measuring approx 3 weeks behind with even smaller femur measurements. I also have only 5cm fluid and latest report from fetal medicine unit diagnosed oligohydramnios. Our little girls ankles are slightly turned inwards in keeping with the low fluid, although we have been assured this can be corrected after birth. The consultant advised there is a very slim chance of a positive outcome and we were offered termination on friday - however we refused this straight away. We did have an amniocenesis followed by an amnioinfusion which allowed a better ultrasound view of the baby. The prelim result of amnio is normal, but we have to wait a further two weeks to receive the full karyotype. I have spent hours upon hours researching this topic and have been unable to find any positive stories or outcomes of both small baby and low fluid in the early second trimester until I came across these posts and was moved tears when i read your positive outcomes. Jordans mommy, I just had to say thankyou so much for giving me and my husband something to hold onto in the hope that we too can have some good news. this is our first pregnancy, after trying for nearly 3 years and we both feel so overwhelmed by the whole thing. Thanks once again and i hope this finds you and your babies well
love sarah xx

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Hi Sarah. Jordan initially tested positive for spina bifida, but it was a false positive. I later learned high false-positive rates occur in several prenatal and neonatal screens, including spina bifida. The test was simply conducted too early. They should have conducted the test between 16 and 18 weeks gestation, instead they did it at 15 weeks. I was a wreck while I waited to be re-tested. Little did I know this was to be a minor bump in the road that lay ahead.

I, too, am moved to tears whenever I read your stories. It’s like rewinding time to when I first got my diagnosis. My amniotic fluid index was 1.5 cm, at its lowest. Every doctor/specialist I saw strongly suggested termination (5 docs in all). They said they didn’t want me to have to endure another caesarean only to deliver a stillborn (I had a previous caesarean and my OBs didn’t do VBACs). I don’t know how common it is for fluid levels to suddenly return to normal as mine did but I just wanted everyone to know it can happen!

I know what an exhausting and emotional journey this is but you will get through it. We IUGR moms (and dads) are tough! I’m so glad I found this site so I could share my story. It’s so hard to believe how poor his initial prognosis was when I see how well he is doing today. As I write this he is standing at his sister’s train table having a grand old time taking the tracks apart. What a difference a year makes!

I will be praying for you and your baby and I hope you will keep in touch. Kristen (Jordans_Mommy)

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I just had to share with you ladies - to maybe give you some more hope.
Here's whats been going on with my pregnancy: since week 28, she has continued to grow albeit at a slower rate than 'average'. At our 30 week U/S she had grown 2 weeks worth, in a 3 week period - still growing, which is good.
We JUST had another NST, U/S and specialist appt today and she's still growing!!! YAY!!! She's in about the 5th percentile now, and weighs just under 3 pounds - even though she should weigh about 4 pounds. We don't care - she's till growing and that's all we care about.
We're definitely doing a c-section as growth restricted babies are smaller can can find vaginal deliveries/labor too stressful.... and from what we heard today, that's going to be about mid March - which will put me in about 34 1/2 weeks <-- They're saying that's long enough and it'll be safer to have her out as opposed to in. At 34 weeks she'll be about 3 1/2 pounds and that's just fine by us. <-- We just had a scare for the last week. I went to a regular Dr appt a week ago - I hadn't gained ANY weight, nor had my belly grown (it was still measuring in at 25 weeks, when I was 31 weeks). My Dr then started hinting that it might be time to meet her after the U/S today - but since she's still growing - she gets to bake another 2 weeks!!
Just cuz you're told you have IUGR, doesn't mean it's all bad.. things can turn around and your baby can start growing again - which is what I pray happens for each one of you! =)
Yes, we'll still have a teeny tiny baby, but hey, the best things come in small packages they say! hehehe

How are you ladies doing now? Heard anything else? How's the babies growing? I'm crossing my fingers for each n every one of us...

And Jordans_Mommy - you've been an inspiration for us all... HUGZ

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I don't really have any advice or comments on the IUGR although my son had it. I'm currently 35 weeks with #2 and I had only gained about 7-8 lbs. at 28 weeks. Just like your doctor said once you hit 32 weeks you PILE on the weight. I can't STOP gaining! Like literally for the past 2 weeks every single morning I weigh myself after I go to the bathroom and I'm naked, and I'm gaining 1/2-1 lb. a day or very close to it. It's unreal the amount I'm puttin on, and I'm not really doing anything different at all. So watch out! You'll gain it!

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hi bella16,
what fantastic news! you must be thrilled. i am so happy for you. please let us know how things go and we'll be thinking of you for the impending birth when you can finally meet your beautiful baby.
my next appointment for a growth scan is 5th march, it will be the longest 2 weeks of my life. ill let you know how i get on.
kristen, how strange that we both also had false positives for spina bifida. Its really helping me to share our experiences and not feel so alone.
take care
sarah xx

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Hi Maggie
we WERE in the same boat as you and the doctors told us there was no hope at about 23/24 weeks. 1.8 cm fluid, absent diastolic flow, 2/3 weeks behind iugr, and then when we went to hospital the nst was horrible and they basically told me it was a matter of time. Well we waited it out and now I am 27 weeks and everything reversed.....7.6 cm amniotic fluid, the babys flow is completely normal and has been for about 3 weeks now and his heartrate is perfect. I understand that this could change but the doctors now seem optimistic and we are talking about c-section between 34-37 weeks depending on the stats. That is a far cry from a few weeks ago when they talked about him passing away within a week. So here is what the doctor think is helping. As soon as I found out I went on strict bed rest (And I mean strict). That jump started his recovery. Now I am taking a baby aspirin and levonox(blood thinner) and his recovery keeps on improving so maybe talk to your doctor about that. Anyway, I am still taking it one day at a time and trying to prepare for baby to do anything but at least now we have hope and the further along you get the better. So I will be thinking about you and keep me updated!!!!!

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