I gave birth to B/G twins on Oct 15 at 26 weeks. I had PIH that could not be controlled. What a roller coaster ride this all is. Everyday it seems like one or both is having a bad day. Wyatt had to be life flighted to a hospital 1.5 hours away due to NEC. Surgery went well and only a small piece was removed. We are praying we do not have another NEC scare. He has since developed pulmonary interstitial emphysema. They have seen some improvement in the lungs and have weaned the vent some. Bailey was doing fairly well on 21% oxygen on the vent but a few days ago started to deteriorate and Friday she was taken to another hospital in the city so she could be put on an oscillator. She is stable for now. They are in hospitals 1.5 hours apart. I am so stressed. For most of the past few weeks I have done nothing but cry. How do you survive the stress? I am so afraid of the unknown.
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26 week B/G Twins
- By WyattandBailey
- Posted November 1, 2009 at 9:47 pm · 6 replies
- In In the NICU/PICU
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- By jbennion
- Posted November 1, 2009 at 10:37 pm
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I wish I could give you more comfort - the only thing I can say is that you are not alone in what you are going through! Our son was in the NICU for 4 long, hard, arduous months. Most of the time I didn't know if he would make it. I was always stressed and depressed. It was hard, plain and simple.
The best thing you can do is try to get rest and not beat yourself up for not being able to be with your twins all the time. The truth is, you are much more valuable at this point to your babies if you are healthy and well-rested. They are getting the best care they need at this point... something only the hospital can give them.
When you are with them, take advantage of holding their hands and talking to them quietly. When the time comes, kangaroo care as much as possible. They most certainly know you and can bond with you, even in the NICU.
Keep us updated on how they are doing!
- By katek
- Posted November 2, 2009 at 2:12 am
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Well said, jbennion.
WyattandBailey, I am so sorry that you and your babies are having to go through all of this. I started crying when my son was recovering from NEC. That lasted a few months. The ups and downs just wear a person down psychologically.
Take good care of yourself. I say this with your babies' best interest in mind. Get some sleep. Make sure you eat. Take a walk every day. It is important for the babies that you stay as healthy as possible.
- By LisaOr
- Posted November 2, 2009 at 1:44 pm
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I have two year old boy girl twins (former 24 weekers). It is a long, long emotional rollercoaster. Take it day by day and pray a lot. We had so many close calls!!!! Ask the hospital that you prefer if they have room to transfer the other baby into their NICU so they can be in one NICU. I am sure they would want to try and make it as easy for you as possible. My babies were born in a community hospital. One needed the PDA surgery and had to be brought into Boston. I begged and pleaded for the other to go also and they arranged that the next day. I hope everything works out for you, email me if you have any issues that you have questions about. We had PDA surgery, G-tube placement surgery, ROP surgery, hernia surgery, chronic lung, ect... I am sure I am missing something!!! They are doing great now just a couple issues that will resolve with a little more time. I also had a 33 weeker this past July!!!!!
- By Henrysmom
- Posted November 2, 2009 at 3:53 pm
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You have come to the right place... there are many moms on here that have experienced similar stories - long distances and juggling between two places. I agree with LisaOr... see if they can move one of your twins so they can be together. I highly recommend speaking to a social worker to see if they could help make this happen. The NICU is a hard place to be... hang in there!! It will be a long road and there will be ups and downs. It's ok to be an emotional wreck... its normal! Get support, through this site, your NICU, family and friends. Without my support group I would've been terribly alone!
- By sshuckhart
- Posted November 2, 2009 at 9:18 pm
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My b/g twins were born at 28 weeks. Ethan was on and off the oscillator for awhile, and then back and forth from vent to CPAP for quite awhile longer, and came home on oxygen.
I have to echo what a couple of others said - making sure, of course, that both babies are stable for transport, see if you can get them both into one hospital (whichever you feel is best). This may mean that for the immediate future they may be in separate hospitals until they are well enough to safely move.
In the mean time, do your best and don't forget to take care of yourself. It's important for your babies that you remain well!
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