Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

All new and active discussions & journals

Desperately need help!

kimber006
  • By kimber006 · New reply 10:24 pm
  • Discussion in Open discussion · 7 replies
  • I had a premature baby who was 5 weeks early and growth restricted. At birth she weighed 2 lbs 3 oz. She is now 7 months, 5 1/2 corrected age. Weight gain has always been a struggle and she is now 11 ...

drinking water!

SkyDiamond
  • By SkyDiamond · Posted 10:20 pm
  • Discussion in Open discussion · 0 replies
  • Hey everyone, i got great news about Marissa's feeding! She is a 26 weeker, born at 504 g. She suffered from severe IUGR because of my calcified placenta. She has always been 100% tube fed from birth ...

solids

jaimelissa
  • By jaimelissa · New reply 8:10 pm
  • Discussion in Growing up and education · 11 replies
  • Lizzie who is now 6m actual 3m adjusted is doing well gaining weight. However she wants to eat solid food NOW. She cries and cries for whatever we have we let her lick frozen fruit bars but she wants ...

Preemie Parent Memoire

PinkyLee1
  • By PinkyLee1 · New reply 7:28 pm
  • Discussion in Open discussion · 1 reply
  • http://www.amazon.com/Half-Baked-Newborn -Learned-Breathe/dp/0762439467/ref=sr_1_ 3?ie=UTF8&s=books&qid=1283436925&sr=8-3 ...

childrens cincinnati

Jiasmom
  • By Jiasmom · Posted 6:58 pm
  • Discussion in Going home/family · 0 replies
  • Anyone going to be at cincinnati childrens on sept 7? We will be there all morning and would love to meet some other little ones :). Let me know and we can meet for lunch after everyones appointments ...

Pertussis update

Jen_G
  • By Jen_G · New reply 6:28 pm
  • Discussion in Going home/family · 4 replies
  • I am closely following the pertussis epidemic in California (where I live). I have 2 surviving preemies who were 26 weeks (now 7), but one has BPD as well as a significant heart defect that required 2 ...

Comments are Hurtful

snowbellkatie
  • By snowbellkatie · New reply 6:23 pm
  • Discussion in Open discussion · 12 replies
  • My son Noah was born at 27 weeks weighing 1 lb 15 oz. He is now 13 months old adjusted. He is doing so great and is very healthy, meeting all milestones and is such a happy baby and everyday I am filled ...

Ever going to get out of the NICU - feeding?

Amg71
  • By Amg71 · New reply 5:48 pm
  • Discussion in In the NICU/PICU · 11 replies
  • This is my first post in this forum, but I have found it to be such a helpful place! Forgive the long post... Well, the reason that I am posting is that I am starting to feel like we will never get out ...

Infantile Esotropia - Crossed Eyes

Lynlou82
  • By Lynlou82 · New reply 3:58 pm
  • Discussion in Open discussion · 13 replies
  • C, who is now almost 11 months actual and 7.5 months corrected, has infantile esotropia or crossed eyes. I noticed this back in March and we have been followed by an opthamologist to see if it would correct ...

HELP - the NICU is driving me CRAZY

Gele
  • By Gele · New reply 3:42 pm
  • Discussion in In the NICU/PICU · 19 replies
  • Okay - on April 23rd I gave birth to two amazing little boys (Aundon & Romalis). I was only 23.3 weeks and had already been in the hospital for approximately 20 days for signs of pre-term labor. I was ...

Life after the NICU 3 years later

teresanewmom
  • By teresanewmom · New reply 2:51 pm
  • Discussion in Going home/family · 16 replies
  • I need to post this to all of you that are still spending everyday next to your new babies crib. My son Baker was a micro preemie. He weighted 1 Lb 4.5 oz at birth. We went through many sleepless nights ...

what would you do.

seansmommie
  • By seansmommie · New reply 2:42 pm
  • Discussion in In the NICU/PICU · 5 replies
  • I need some advice. Currently I have a nanny who takes care of my son Sean. She's a nice girl and my son likes seems to like her a lot. She's really not lighting up the world with her originality when ...

Support with Trach

KasonsMommy
  • By KasonsMommy · New reply 1:54 pm
  • Discussion in In the NICU/PICU · 4 replies
  • My son has been in the NICU for almost 5 months. He has severe BPD. He was on a nasul cannular and there was talk of him coming home. One day he had a huge set back. Doctors were not sure why. He was ...

Had a full term baby & full term experience! Yipeeeee!

AnabellasMommy
  • By AnabellasMommy · New reply 1:53 pm
  • Discussion in Open discussion · 22 replies
  • Hi all! I just wanted to share with you that on August 18th, I had my son via planned c-section at 38 weeks, 5 days. Everything went perfect. PERFECT. I guess it really IS possible to have a full term ...

preemie development

2010warrior
  • By 2010warrior · New reply 1:41 pm
  • Discussion in Growing up and education · 2 replies
  • It has been a while since I wrote something but I have been reading a lot. My baby is home. We took her home on June 14th 2010. So far it has been wonderful. She is the best baby in the whole world(my ...

ily my daughter,i miss u

bslocum21
  • By bslocum21 · New reply 1:01 pm
  • Journal · 6 replies
  • By Barbara Jean Slocum · A thousand times i needed you a thousand times i cried if love alone could have saved you you never would of died. you never said "goodbye" you never said "im leaving" you were ...

CPAC UP AND DOWN

agiboma
  • By agiboma · New reply 12:40 pm
  • Discussion in In the NICU/PICU · 1 reply
  • my son was born @ 25weeks he is now 32 weeks, he had pda surgery @ 31 weeks, he was placed on cpac 3 days post op and was on room air 21% for like the first three days, now he require more help like 23-27 ...

baby fell down some stairs

peanutsmama
  • By peanutsmama · New reply 11:30 am
  • Discussion in Going home/family · 1 reply
  • The doc was right when she said not to leave baby alone even for a sec. Well I did that today and baby rolled down like 5 steps. She didn't cry I think she was more scared. I think she is ok but.I'm not ...

Sensory Intergration Issues? Helmets?

MissRaven
  • By MissRaven · New reply 11:07 am
  • Discussion in Open discussion · 4 replies
  • So, PT/OT decided she def has some sensory intergration issues going on, have any of you bought your kids helmets for head banging? Im thinking on getting this one http://www.thudguard.com/shop ...

Meconium & Cystic Fibrosis

kamnksmama
  • By kamnksmama · New reply 10:28 am
  • Discussion in In the NICU/PICU · 2 replies
  • My daughter was born at 27 weeks and she is now 5 weeks old. The Dr. gave her some chemical that will show up on an x-ray to show the movement in her digestional tract. The chemical also cleans out her ...

Sign in to see more

Don't have an Inspire account? Join now!

Forgot password?

Inspire others

Group leaders

Discussion topics

You

About this group

Inspire connects patients, families, friends and caregivers for support and inspiration. Read more about our work.