Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

Boost VHC Drink - 530 Calories

Duvie
  • By Duvie · New reply April 22, 2014
  • Journal · 72 replies
  • Thanks to a lovely lady battling ALS, I have found out about this new Boost high- calorie drink to pass on to those struggling to maintain or to gain weight. Check it out online. Take special notice to ...

Leg or Foot Massage Devices???

Duvie
  • By Duvie · New reply March 23, 2014
  • Journal · 57 replies
  • Wondering if anyone uses a massage device and how well it works. Jo and I sometimes suffer with our legs wanting to cramp up. Jo even has problems with her left arm occasionally. If anyone can give us ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Parkinsons and parafoveal telangiectasia

itchabod
  • By itchabod · Posted February 24, 2014
  • Discussion in In the news · 0 replies
  • I am not quite sure how this is supposed to be done, but here goes. Point me in the right direction if needed. I have read some research articles(use 'title' to find as sites too hard to list) and would ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

Something I Found Funny

Duvie
  • By Duvie · New reply January 10, 2014
  • Journal · 12 replies
  • Jo and I had just finished making a grocery list. I had put my coat on, grabbed the keys, and was about to walk out the door, but still in the kitchen, when Duval came out the bathroom. My back was to ...

My 2013 Blessings-Inspire & DeCloggers

Duvie
  • By Duvie · New reply January 9, 2014
  • Journal · 25 replies
  • In 2012 Drs gave up on Duvie which led me to the Internet. New Year's Day 2013 I found Oley Foundation, one of many great support communities within the Inspire network. What an excellent site to be a ...

Finally, GI Approval For Placing Stomahesive Powder Into Stoma Around Tube

Duvie
  • By Duvie · New reply January 8, 2014
  • Journal · 9 replies
  • Duvie's last GI follow-up appt was late in the afternoon. It was with a resident Dr who had seen Duvie during his hospital stay while his regular GI Drs were out of town. Duvie was in-house due to an ...

end of dose wearing off and freezing

hope4acurenow (Inactive)
  • By hope4acurenow (Inactive) · New reply December 30, 2013
  • Discussion in Living with Parkinson's · 1 reply
  • I am forever frustrated with the freezing that I am now experiencing. It is upsetting and it seems like the only fix is more and more sinemet. sometimes it works and other times it does not. Has anyone ...

Parkinson's in remission

donmccammon
  • By donmccammon · Posted December 10, 2013
  • Discussion in Treatment · 0 replies
  • I am taking a compound that stopped the progression of my Parkinson's and has restored much of my functioning. Check it out at the facebook group titled Treatments for Parkinson's. There is hope for all ...

How much sinemet is too much

hope4acurenow (Inactive)
  • By hope4acurenow (Inactive) · New reply December 9, 2013
  • Discussion in Living with Parkinson's · 1 reply
  • I am 12 year into having parkinsons and now the sinemet that was my wonder drug is not working effectively. They having been upping the dose several time over the last 6 months. Im having more dsykinesias ...

Thank You, From Inspire

Walter
  • By Walter · New reply December 3, 2013
  • Journal · 108 replies
  • Hello everyone, As Thanksgiving approaches, all of us at Inspire would like to take a moment to thank you for being part of our community. While we wish no one had to deal with the serious health issues ...

Oxygen deprivation to a Parkinson Brain

digsco
  • By digsco · New reply September 22, 2013
  • Discussion in Treatment · 3 replies
  • My wife, shortly after surgery, suffered Anoxic (lack of oxygen) during a code. She's had Parkinson’s for about 11 years. She had a unilateral DBS done in May 2012. Right now she is one step above a vegetative ...

sinemet

Helenrose234
  • By Helenrose234 · New reply September 19, 2013
  • Discussion in Newly diagnosed · 1 reply
  • Does anyone know how long Sinemet to start working? I've been prescribed 100mg 3x a day ...

Parkinson's and tardive dystonia

jackw8383
  • By jackw8383 · Posted September 8, 2013
  • Discussion in Symptoms · 0 replies
  • I was wondering if anyone can tell me is Parkinson's and tardive dystonia similar??? My son was recently diagnosed with TD....any info would be appreciated! Thank u and God bless ...

i am stunned

ann43
  • By ann43 · Posted August 19, 2013
  • Journal · 0 replies
  • i am stunned. for some reason i thought this website had shut down. i know the chat room did. Alot has happened over the last few years. But most of all I am feeling pretty good body and soul. I guess ...

Five million

Brian
  • By Brian · New reply August 5, 2013
  • Journal · 261 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

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