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Welcome to Inspire!

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New journals

still 25 pounds.....

tomeckom
  • By tomeckom · Posted March 19, 2010
  • 0 replies
  • So yesterday was another day at the hospital. We went for Kenny's comprehensive care appt. at the hospital...and oh was it a day! They didn't like the fact that he only gained 7 oz. in two weeks. I've ...

long day, tired

angelnadia
  • By angelnadia · Posted March 12, 2010
  • 0 replies
  • well today was a long day. Im so glad its coming to an end my daughter had a dr. appt today it seems like everytime we go its more stuff we have to do I know its whats best for her its just so tireing ...

Transition out of high school for students with disabilities Research

coledawg
  • By coledawg · Posted March 8, 2010
  • 0 replies
  • Would you like to participate in a research study to help parents with the transition of their child from high school? Are you a parent of a child with an intellectual disability who is 14-21 years of ...

seeking help, information

angelnadia
  • By angelnadia · Posted March 1, 2010
  • 3 replies
  • Hello im a mother to a child who has a rare disorder called caudal regression syndrome shes a beautiful girl. my angel really, shes relatively normal, she has all her cognitive skills theyre right on ...

Connective tissue with lung problems

Quacky
  • By Quacky · Posted January 31, 2010
  • 7 replies
  • Just a update. My son was suspose to have surgery in February. They called and said they couldnt do it until he was cleared from his lung doctor. His lungs have not been doing well lately. He had to go ...

connective tissue disease

Quacky
  • By Quacky · Posted January 21, 2010
  • 29 replies
  • My son is 13. He has had alot of problems with his lungs lately. He has both restrictive and obstructive lung disease. It took a week to get his lung function back up to 75%. He is being monitored for ...

His tummy keeps getting destended

cchaircuter34
  • By cchaircuter34 · Posted January 13, 2010
  • 9 replies
  • My son is now 9, continuous g-tube dependant. Since Oct 08, his tummy gets destended almost daily. In 08 he was hospitalized 5 times for 3-5 days at a time, for this problem. Since then I have been giving ...

frustration with lack of motivation

overwhelmedinTN
  • By overwhelmedinTN · Posted December 28, 2009
  • 3 replies
  • At school my peanut works very hard. at home she hardly works. She admits that she expects us to do everything for her---why??????? We've NEVER lived this way, this fantasy. I still don't know. It drives ...

Getting frustrated need help

mrsmonty0114
  • By mrsmonty0114 · Posted December 27, 2009
  • 14 replies
  • My daughter at two months got a fundoplication and a g tube put it. he is 6 months old now and is eating 4 1/2 ounces by mouth. Her GI said that if she is eating 5 ounces by mouth for at least three months ...

In the Interest of Why?

SuperGroverT
  • By SuperGroverT · Posted November 12, 2009
  • 0 replies
  • This came to me in a flash last night. I thought it might be worth sharing. If you want to learn more, please contact Grover via Ning at: http://ning.com/supergrovert or http://supergrovert.com and http://freegrovert.blogspot.com ...

Adapted Gloves?

RandiS
  • By RandiS · Posted November 6, 2009
  • 0 replies
  • I came across these "adapted" gloves at a local shop and thought I would share. It's always a challenge to get gloves on my son with CP; his fingers just don't want to separate and cooperate! And mittens ...

We miss you, Alex

Feistylioness78
  • By Feistylioness78 · Posted November 5, 2009
  • 0 replies
  • Yesterday was you 2nd b-day and you were only with us a short time. You left us 2 years ago today. We love you and miss you, love mommy, daddy and your brothers ...

Happy Birthday!!!

Feistylioness78
  • By Feistylioness78 · Posted November 4, 2009
  • 5 replies
  • Today is Brennan's and Christian's 2nd birthday ...

Good News About Frankie

FrankiesAuntie
  • By FrankiesAuntie · Posted September 19, 2009
  • 3 replies
  • Hey every one I visited with my nephew Frankie yesterday he is looking good considering all he has gone through. Frankie got moved out of ICU today & moved to another floor. We are so thrilled. Praise ...

Update On Frankie.

FrankiesAuntie
  • By FrankiesAuntie · Posted September 17, 2009
  • 4 replies
  • Frankie is still in ICU fighting it has been a battle but he is stong. "Frankie can do all things through Christ who strengthens him" Phillipians 4:13 I visited Frankie this past Monday, he no longer ...

Scheduled maintenance this evening

TeamInspire
  • By TeamInspire · Posted August 10, 2009
  • 13 replies
  • All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...

My Miracle

NickArlynMaui
  • By NickArlynMaui · Posted July 27, 2009
  • 0 replies
  • This is such an inspirational website. My fiancee Nick suffered a massive stroke when he was just 4 years old and he is my miracle. The doctors actually pronounced him dead but the good Lord wasn't ready ...

pvl

amylou1977
  • By amylou1977 · Posted July 7, 2009
  • 1 reply
  • Hello my name is amy and i have a 2 1/2 yr old who is holding a Dx for PVL and was just wondering if there are others on here with this, she also suffered from GERD ...

malachi

amanda509
  • By amanda509 · Posted June 29, 2009
  • 1 reply
  • my son has nf,adhd,and hydronemphrosis. doing pretty well though, except a little over a month ago he woke up and his face was swelled it was scary we immediatley called his doctor and got him in they ...

Share your story via video!

TeamInspire
  • By TeamInspire · Posted June 15, 2009
  • 28 replies
  • Sometimes the most powerful message each of us can share is our personal story -- our own experience. With upcoming healthcare legislation pending, one way we can be advocates is to share these stories ...

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