Active
- By Marroc · Posted yesterday at 9:16 pm
- Journal · 0 replies
- Was so stressed out I might not exercise late at night that I did it in the afternoon. For 12 minutes of it, the children made a mess in the fridge and dropped plenty of food on the floor for me. I was ...
- By Brian · New reply December 16, 2008
- Journal · 136 replies
- When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...
- By wikkedlilgrrl · New reply December 10, 2008
- Journal · 2 replies
- It seems like forever since I've posted. Of course I've been busy but so happy with the progress Zephan is making! Yes, he is still at the rehab hospital ... a little longer than expected but the extended ...
- By Luckymama · New reply December 5, 2008
- Discussion in Raising a child with a disability · 2 replies
- Hi i am the lucky mama to a 19 month old stroke survivor. I was wondering if there was anyone else her who also has a child that had a stroke ...
- By Feistylioness78 · New reply December 2, 2008
- Journal · 2 replies
- Bren's primary nurse got in contact with me so that she could see Brennan. She has not seen him since July. She was impressed with how both boys were doing. Brennan is a little nutty but who can blame ...
- By 13amyers · New reply November 29, 2008
- Journal · 9 replies
- We live in northwest pa along the lake just outside of erie. I was wondering if anybody with nf lives around here that we could have get togethers and maybe start some fundraising or relays for life ...
- By FaithandHope · Posted November 21, 2008
- Discussion in Raising a child with a disability · 0 replies
- Does anyone have a child that eats non food items?My daughter has short bowel syndrome and has a very limited oral diet due to her diary allergy and not being able to eat as an infant and small child ...
- By Feistylioness78 · Posted November 16, 2008
- Discussion in Family dynamics · 0 replies
- Brennan is back at children's and I want him to stay there and be discharged from home from there. I been told that he has to go back to the home. When he was at children's he was getting PT/OT once he ...
- By rhysmom · Posted November 12, 2008
- Journal · 0 replies
- HERE TO BE A FRIEND TO ANYONE WITH A CHILD WITH LEARNING DISORDERS; MY SON FINALLY HAS AN IEP,AIDE, WRAPAROUND,ETC ...
- By Feistylioness78 · New reply November 10, 2008
- Journal · 10 replies
- You are our little miracles. You have made it to one year and we have all survived. It is raining as if the angels and Alex are crying. We love you ...
- By Feistylioness78 · New reply November 9, 2008
- Journal · 4 replies
- Ever since I moved in I have had issues with our neighbors downstairs. I knew the day would come when they would complain about Christian. I had already told the guard that he like to kick when he lies ...
- By wikkedlilgrrl · New reply October 21, 2008
- Journal · 3 replies
- It's been a week since Zeph had be transferred from the NICU to a children rehabilitation hospital. He is doing wonderful and making some significant progress. While I am both glad and a little misty ...
- By Feistylioness78 · New reply October 17, 2008
- Journal · 11 replies
- Brennan goes off the vent twice a day for four hours and loves. He actually gets upset when they put in back on. He has been taken off of 4 of his meds and being weaned off of another. He will be getting ...
- By wikkedlilgrrl · New reply September 23, 2008
- Journal · 12 replies
- We are currently on day 116 ... {{{ARRGGHH}}} ... I am tired of making the trek up there ... tired of leaving at the end of the day without my son ... tired of seeing other babies go home (though I am ...
- By wikkedlilgrrl · New reply September 10, 2008
- Journal · 5 replies
- On this hundredth day of life my LO will undergo laser surgery for ROP. It's kinda unexpected yet expected. He has been monitored closely since birth and has been pretty much ok until the most recent ...
- By wikkedlilgrrl · New reply August 21, 2008
- Journal · 4 replies
- I am happy to report that Zephan is doing well ... he is still on a nasal cannula with 30% oxygen. I learned just a few minutes ago that he has regressed back to the high flow cannula due to an apnea ...
- By wikkedlilgrrl · New reply August 9, 2008
- Journal · 4 replies
- Zephan is doing really well! I'm still cautiously happy ... He had been taken OFF CPAP and is now on a nasal cannula with a flow of 3 ... tolerating all his feedings ... and gaining weight steadily (about ...
- By wikkedlilgrrl · New reply August 4, 2008
- Journal · 2 replies
- All is well at the moment. My little boy is growing and getting stronger ... yet I still hold my breath. We've had no major complications and for that I am extremely grateful. He continues to tolerate ...
- By MSEDME · Posted August 4, 2008
- Journal · 0 replies
- Hello new to the site.. My twin boys are 14 months old and a joy to have in our lives. I also have a 9 year old daughter. My sons were born at 31 weeks and 6 days since day 1 my son twin A Benji was said ...
