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Day 2 - okay

Marroc
  • By Marroc · Posted yesterday at 9:16 pm
  • Journal · 0 replies
  • Was so stressed out I might not exercise late at night that I did it in the afternoon. For 12 minutes of it, the children made a mess in the fridge and dropped plenty of food on the floor for me. I was ...

Brennan has helped to save other babies like him.

Feistylioness78
  • By Feistylioness78 · Posted November 30, 2008
  • Journal · 2 replies
  • Bren's primary nurse got in contact with me so that she could see Brennan. She has not seen him since July. She was impressed with how both boys were doing. Brennan is a little nutty but who can blame ...

PICA?

FaithandHope
  • By FaithandHope · Posted November 21, 2008
  • Discussion in Raising a child with a disability · 0 replies
  • Does anyone have a child that eats non food items?My daughter has short bowel syndrome and has a very limited oral diet due to her diary allergy and not being able to eat as an infant and small child ...

parents rights.

Feistylioness78
  • By Feistylioness78 · Posted November 16, 2008
  • Discussion in Family dynamics · 0 replies
  • Brennan is back at children's and I want him to stay there and be discharged from home from there. I been told that he has to go back to the home. When he was at children's he was getting PT/OT once he ...

Preparing for home ...

wikkedlilgrrl
  • By wikkedlilgrrl · Posted November 13, 2008
  • Journal · 2 replies
  • It seems like forever since I've posted. Of course I've been busy but so happy with the progress Zephan is making! Yes, he is still at the rehab hospital ... a little longer than expected but the extended ...

Asperger,ADHD,NEUROLOGICAL DIAGNOSIS,CHROMOSOME DISORDER

rhysmom
  • By rhysmom · Posted November 12, 2008
  • Journal · 0 replies
  • HERE TO BE A FRIEND TO ANYONE WITH A CHILD WITH LEARNING DISORDERS; MY SON FINALLY HAS AN IEP,AIDE, WRAPAROUND,ETC ...

Excuse Me!!

Feistylioness78
  • By Feistylioness78 · Posted November 8, 2008
  • Journal · 4 replies
  • Ever since I moved in I have had issues with our neighbors downstairs. I knew the day would come when they would complain about Christian. I had already told the guard that he like to kick when he lies ...

HAPPY 1st BIRTHDAY BRENNAN AND CHRISTIAN

Feistylioness78
  • By Feistylioness78 · Posted November 4, 2008
  • Journal · 10 replies
  • You are our little miracles. You have made it to one year and we have all survived. It is raining as if the angels and Alex are crying. We love you ...

Good bye NICU, Hello Rehab ...

wikkedlilgrrl
  • By wikkedlilgrrl · Posted October 18, 2008
  • Journal · 3 replies
  • It's been a week since Zeph had be transferred from the NICU to a children rehabilitation hospital. He is doing wonderful and making some significant progress. While I am both glad and a little misty ...

BPD

angvbc

Anyone here with a child stroke survivor?

Luckymama
  • By Luckymama · Posted October 16, 2008
  • Discussion in Raising a child with a disability · 2 replies
  • Hi i am the lucky mama to a 19 month old stroke survivor. I was wondering if there was anyone else her who also has a child that had a stroke ...

LONGEST NICU STAY ... (vent ...edited)

wikkedlilgrrl
  • By wikkedlilgrrl · Posted September 20, 2008
  • Journal · 12 replies
  • We are currently on day 116 ... {{{ARRGGHH}}} ... I am tired of making the trek up there ... tired of leaving at the end of the day without my son ... tired of seeing other babies go home (though I am ...

Day 100 ...

wikkedlilgrrl
  • By wikkedlilgrrl · Posted September 4, 2008
  • Journal · 5 replies
  • On this hundredth day of life my LO will undergo laser surgery for ROP. It's kinda unexpected yet expected. He has been monitored closely since birth and has been pretty much ok until the most recent ...

Moving slowly but surely ...

wikkedlilgrrl
  • By wikkedlilgrrl · Posted August 19, 2008
  • Journal · 4 replies
  • I am happy to report that Zephan is doing well ... he is still on a nasal cannula with 30% oxygen. I learned just a few minutes ago that he has regressed back to the high flow cannula due to an apnea ...

We've moved ...

wikkedlilgrrl
  • By wikkedlilgrrl · Posted August 9, 2008
  • Journal · 4 replies
  • Zephan is doing really well! I'm still cautiously happy ... He had been taken OFF CPAP and is now on a nasal cannula with a flow of 3 ... tolerating all his feedings ... and gaining weight steadily (about ...

Long road ahead

MSEDME
  • By MSEDME · Posted August 4, 2008
  • Journal · 0 replies
  • Hello new to the site.. My twin boys are 14 months old and a joy to have in our lives. I also have a 9 year old daughter. My sons were born at 31 weeks and 6 days since day 1 my son twin A Benji was said ...

68 days and counting ...

wikkedlilgrrl
  • By wikkedlilgrrl · Posted August 4, 2008
  • Journal · 2 replies
  • All is well at the moment. My little boy is growing and getting stronger ... yet I still hold my breath. We've had no major complications and for that I am extremely grateful. He continues to tolerate ...

The boys are doing great

Feistylioness78
  • By Feistylioness78 · Posted August 3, 2008
  • Journal · 11 replies
  • Brennan goes off the vent twice a day for four hours and loves. He actually gets upset when they put in back on. He has been taken off of 4 of his meds and being weaned off of another. He will be getting ...

Zephan Update ...

wikkedlilgrrl
  • By wikkedlilgrrl · Posted July 27, 2008
  • Journal · 3 replies
  • Zeph has had a beautiful week! He was extubated yesterday and is back on machine CPAP (+5)/oxygen (25%) ... he is no longer receiving TPN (IV nutrition) ... his feedings are completely fortified breast ...

Looking towards the furture ...

wikkedlilgrrl
  • By wikkedlilgrrl · Posted July 25, 2008
  • Journal · 2 replies
  • Zephan has had an incredible week this week and I can't help but think the prayers an constant warm thoughts work! Thank you all soooo much. I appreciate the concern and care you have shown for me and ...

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