It's been a week since Zeph had be transferred from the NICU to a children rehabilitation hospital. He is doing wonderful and making some significant progress. While I am both glad and a little misty about the change ... he still isn't home with me. It's been a week since I've seen him (do I need to tell ya how hard that is?) because I'm sick and know that even the simplest cold can have major setbacks for him ... so it's the best thing AND the worst thing.
On the more positive ... this facility is renowned for their therapy (children with traumatic brain injuries, feeding issues, oxygen weaning) etc. In the week since he has been there he has gone from 1 liter to 1/8 liter of oxygen and even spends short periods on room air!!! As far as feeding issues, they seem to be just working themselves out. He has been getting better with time but still may have some problems due to low muscle tone in his lip, tongue and jaw ...
And if you thought it couldn't get any better? He also receives early intervention therapies! Speech/OT/PT! I'm still learning about the facility and its services but they are pretty comprehensive!
There are families that come from miles and miles (I feel badly for them on top of what they are already experiencing) I can even sleep bedside as long as I want!!! The only negative is its an hour commute and they don't feed you ... LOL
As you can all tell ... I'm in much better spirits than in my early journals. I'm glad to be out of NICU hell, but miss some part of it ... now trying to adjust to new nurses and the way things are done ... blah. blah, blah.
Feels like I am rambling but I'm sure you all can understand. :)