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15 month daughter undiagnosed
- By cjackson · New reply November 13, 2009
- Journal · 22 replies
- Hello everyone, I was just wondering if any one can relate!! I have a 15 month old daughter who is my specail fighter! She has had feeding issues since day one. She has a unknown leukodystrophy, and infantile ...
In the Interest of Why?
- By SuperGroverT · Posted November 12, 2009
- Journal · 0 replies
- This came to me in a flash last night. I thought it might be worth sharing. If you want to learn more, please contact Grover via Ning at: http://ning.com/supergrovert or http://supergrovert.com and http://freegrovert.blogspot.com ...
In the Interest of Why
- By SuperGroverT · Posted November 12, 2009
- Discussion in Family dynamics · 0 replies
- Had some thoughts on my mind recently, thought I would share. If you want to learn more about us, we are at: http://ning.com/supergrovert or http://supergrovert.com & http://freegrovert.blogspot.com There ...
Anyone here with a child stroke survivor?
- By Luckymama · New reply November 10, 2009
- Discussion in Raising a child with a disability · 10 replies
- Hi i am the lucky mama to a 19 month old stroke survivor. I was wondering if there was anyone else her who also has a child that had a stroke ...
Adapted Gloves?
- By RandiS · Posted November 6, 2009
- Journal · 0 replies
- I came across these "adapted" gloves at a local shop and thought I would share. It's always a challenge to get gloves on my son with CP; his fingers just don't want to separate and cooperate! And mittens ...
We miss you, Alex
- By Feistylioness78 · Posted November 5, 2009
- Journal · 0 replies
- Yesterday was you 2nd b-day and you were only with us a short time. You left us 2 years ago today. We love you and miss you, love mommy, daddy and your brothers ...
Happy Birthday!!!
- By Feistylioness78 · New reply November 4, 2009
- Journal · 5 replies
- Today is Brennan's and Christian's 2nd birthday ...
Congenital toxoplasmosis
- By Glad2be · Posted September 30, 2009
- Discussion in Raising a child with a disability · 0 replies
- Our youngest dd is undergoing testing for this condition. Are there any parents out there whos kids have been diagnosed, I would love some support and guidance as we go through the various test ...
Good News About Frankie
- By FrankiesAuntie · New reply September 21, 2009
- Journal · 3 replies
- Hey every one I visited with my nephew Frankie yesterday he is looking good considering all he has gone through. Frankie got moved out of ICU today & moved to another floor. We are so thrilled. Praise ...
Update On Frankie.
- By FrankiesAuntie · New reply September 19, 2009
- Journal · 4 replies
- Frankie is still in ICU fighting it has been a battle but he is stong. "Frankie can do all things through Christ who strengthens him" Phillipians 4:13 I visited Frankie this past Monday, he no longer ...
Anyone with kids that have GJ-tubes????
- By shaleesha · New reply September 19, 2009
- Discussion in Raising a child with a disability · 6 replies
- My son just had a GJ tube put in today and i'm wanting to know if any other moms have kids with one and your stories. I want them all be it good or bad experiences with them. Also, did your kids still ...
Any parents of a child with Fetal Alcohol Syndrome?
- By LQT2Wendy · New reply September 9, 2009
- Discussion in Raising a child with a disability · 3 replies
- My daughter was diagnosed with Fetal Alcohol Syndrome before we finalized her adoption.....she is 6 now and struggles with so much .......any other FAS parents out there? ~ Peace & Blessings, Wendy ...
Anybody from Northwestern PA area?
- By 13amyers · New reply September 4, 2009
- Journal · 11 replies
- We live in northwest pa along the lake just outside of erie. I was wondering if anybody with nf lives around here that we could have get togethers and maybe start some fundraising or relays for life ...
Guestbooks are now live!
- By TeamInspire · New reply August 15, 2009
- Journal · 6 replies
- Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...
Scheduled maintenance this evening
- By TeamInspire · New reply August 12, 2009
- Journal · 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
Asperger,ADHD,NEUROLOGICAL DIAGNOSIS,CHROMOSOME DISORDER
- By rhysmom · New reply August 1, 2009
- Journal · 8 replies
- HERE TO BE A FRIEND TO ANYONE WITH A CHILD WITH LEARNING DISORDERS; MY SON FINALLY HAS AN IEP,AIDE, WRAPAROUND,ETC ...
My Miracle
- By NickArlynMaui · Posted July 27, 2009
- Journal · 0 replies
- This is such an inspirational website. My fiancee Nick suffered a massive stroke when he was just 4 years old and he is my miracle. The doctors actually pronounced him dead but the good Lord wasn't ready ...
pvl
- By amylou1977 · Posted July 7, 2009
- Journal · 0 replies
- Hello my name is amy and i have a 2 1/2 yr old who is holding a Dx for PVL and was just wondering if there are others on here with this, she also suffered from GERD ...
PICA?
- By FaithandHope · New reply July 4, 2009
- Discussion in Raising a child with a disability · 1 reply
- Does anyone have a child that eats non food items?My daughter has short bowel syndrome and has a very limited oral diet due to her diary allergy and not being able to eat as an infant and small child ...
malachi
- By amanda509 · New reply June 29, 2009
- Journal · 1 reply
- my son has nf,adhd,and hydronemphrosis. doing pretty well though, except a little over a month ago he woke up and his face was swelled it was scary we immediatley called his doctor and got him in they ...
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Inspire connects patients, families, friends and caregivers for support and inspiration. Read more about our work.