Family, parents and caregivers

Caregiving is a job no one really applies for -- it just shows up and you deal with it. Connect here with others who care for a loved one; share your strategies and hear how others handle the physical and psychological stresses of caregiving. You can't really do it alone. Paralysis is most often a family issue; this is also the place to join a discussion about parenting children with paralysis.

Organizing for Our Rights

pdecrease
  • By pdecrease · Posted November 14, 2008
  • 0 replies
  • Hi All, prior to my son's accident over a year ago I fought for the disabled in relation to education. With a new president to take office soon dissability rights may or may not change in some form or ...

independence

Blueyes
  • By Blueyes · New reply October 2, 2008
  • 3 replies
  • How do you become totally independent and be able to raise a 4 yr. old on your own ...

Have you ever dealt with "myositis ossificans"?

GailP
  • By GailP · New reply August 30, 2008
  • 4 replies
  • My son, Patrick, sustained a spinal cord injury (T9 incomplete) in March of this year. He is waiting to undergo surgery on his hip, as his hip is "locked" due to bone growth. The CT scan has showed it ...

I want to scream

Boyd
  • By Boyd · New reply August 13, 2008
  • 6 replies
  • I am at a lost. My husband is a C2-C3 incomplete. Accident was 7.5 months ago. He is doing unbelievably well for a quad. His legs are stronger then mine. Most of his damage is in his arms and hands. He ...

Elbow contractures

SherryPiepkorn
  • By SherryPiepkorn · New reply August 9, 2008
  • 3 replies
  • My husband is a C3 - C6 quaud. His arms are drawn up because he has functional biceps but no triceps. He has had range of motion from the time of injury but it has not prevented them from drawing up ...

How can I help my sister who is paralyzed

Sabine21
  • By Sabine21 · New reply July 29, 2008
  • 9 replies
  • hello, my sister became paralyzed one year ago, she fractured the c5 and c6 and is paralyzed from the waist down, she can use her arms, but really does not have much motor skills. She was injured in a ...

Discharged to a 3rd Floor Walk-Up!!!

GailP
  • By GailP · New reply July 21, 2008
  • 9 replies
  • I have just recently been informed that my son, Patrick, will be discharged from Magee Rehab Hospital next Friday morning, July 25th. It appears at this point he will be going home with his father, to ...

Inspirational stories

Ida
  • By Ida · New reply July 18, 2008
  • 22 replies
  • HI, I'm looking for something to read that will inspire. Something that makes going to therapy a little easier and maybe even something to look forward to. I want to read about someone with a spinal cord ...

Seeking Advice From Other Caregiver Parents

mikeysmom1
  • By mikeysmom1 · New reply July 6, 2008
  • 25 replies
  • I was just reading over"Life & Choices",posted by SirVab in Health Matters.I keep wondering why, if Tony and his family could survive,even though they had few resources, why many of the Rehab Professionals ...

home health care and getting help.

goldenkeyjt
  • By goldenkeyjt · Posted July 1, 2008
  • 0 replies
  • what can we do get more help from from club or organizations it would help if we could like maybe get some to donate diapers, or pads, and care equipment ...

Thank you for all the replies.. the story continues

Friend4Life
  • By Friend4Life · New reply June 7, 2008
  • 7 replies
  • Hello, new user here. Not even sure if I am in the right place. I am the friend of a recent paralysis patient. We were on our bikes when as we crossed the street a speeding drunk driver hit Lee. I have ...

GOOD NEWS!

GailP
  • By GailP · New reply June 7, 2008
  • 4 replies
  • My son, Patrick, who was injured on March 17th (incomplete T9) was transferred from the nursing home to Magee Rehab (Philadelphia) today! He will be evaluated and hopefully a candidate for Locomotor Therapy ...

Update on my Son!

GailP
  • By GailP · Posted May 31, 2008
  • 0 replies
  • Patrick had a follow-up yesterday with the ortho surgeon. Patrick is starting to show willful movement of both legs. The Dr and the surgical team that worked on him ALL showed up to see Patrick. He was ...

update on my son

wendy0523
  • By wendy0523 · New reply May 31, 2008
  • 3 replies
  • I just want to update everyone on my son's condition.He is done with rehab and has been for almost a year now. He is now walking with a walker and doesnt use the wheelchair anymore. He's just gotten his ...

4 Year Old Grandaughter with New Injury

June55Baby
  • By June55Baby · New reply May 30, 2008
  • 12 replies
  • Hey all. My 4 year old grandaughter was in a car accident on March 25th along with her mama (our daughter) and sustained a complete T6 SCI-WORA with no movement or sensation below her belly button. Our ...

care givers of spinal cord injurys

wendy0523
  • By wendy0523 · New reply May 28, 2008
  • 12 replies
  • On July 16,2006, my oldest son, who was 20 at the time,was out partying with his so called best buddy and some other people.The best buddy started a fight with my son and left my son at a restraunt, so ...

Abilities Expo in Souther Cal

Lorenza1
  • By Lorenza1 · Posted May 22, 2008
  • 0 replies
  • Hello my Angeleno friends!! Please don't forget Abilities Expo is next week, May 30th through June 1st at the Aneheim Convention Center. Here is a link for details: http://www.abilitiesexpo.com/IAEBrandMan ...

Looking for support

GailP
  • By GailP · New reply May 19, 2008
  • 21 replies
  • Hi ~ I'm new to this and this is my first post. My son (27) sustained a spinal cord injury on March 17th, 2008. He lives in SE Pennsylvania, and I live in Michigan. He was a student at the Art Institute ...

wound care

lheigham
  • By lheigham · New reply May 6, 2008
  • 6 replies
  • My husband has been paralyzed for the past 6 years and has suffered wounds, nerve pain cysts, headerotopic ossification along with bladder stones and many other problems since his injury. Three months ...

Isolation, first post

Marilee1
  • By Marilee1 · New reply April 27, 2008
  • 17 replies
  • Hi to my fellow caregiving parents. This is my first post here and I am so hopeful that I can make some connections with a peer group. I have posted for years on carecure but I stopped because there was ...

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