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Caregiving is a job no one really applies for -- it just shows up and you deal with it. Connect here with others who care for a loved one; share your strategies and hear how others handle the physical and psychological stresses of caregiving. You can't really do it alone. Paralysis is most often a family issue; this is also the place to join a discussion about parenting children with paralysis.
- By Amir · Posted November 10, 2009
- 0 replies
- Hello, Here is something that might be of interest for caregivers. The National Family Caregivers Association is hosting a free webinar titled "Safe & Sound: How to Prevent Medication Mishaps" which is ...
- By angelbrd67 · New reply November 2, 2009
- 13 replies
- Well let me ask what you caregivers out there do when your the sole caregiver and you come down with a possible case of H1N1... I am scared to death Matt is going to get sick. I am so sick I cant do much ...
- By prioremt1 · New reply September 22, 2009
- 9 replies
- Anyone have a baclofen pump? My son's spasticity is very bad and this the the next step according to the doc. I am a little skeptical about this so any info would be appreciated ...
- By GailP · New reply August 29, 2009
- 6 replies
- My son, Patrick, sustained a spinal cord injury (T9 incomplete) in March of this year. He is waiting to undergo surgery on his hip, as his hip is "locked" due to bone growth. The CT scan has showed it ...
- By jennyfeldman · New reply July 22, 2009
- 14 replies
- Hi! I'm a new mom to an 8-month-old baby girl. I also have a T10 incomplete SCI that I sustained almost 18 years ago when I was 13. I wanted to start a discussion about the issues that we parents with ...
- By Rehana · New reply July 1, 2009
- 1 reply
- My grand daughte 11 month old afect spinal injury after surgery of 6 hours in local hospital Karachi Pakistan may be reaction of anithisia or any other reason during surgery Now her legs and arm are not ...
- By Bestgurl · New reply June 4, 2009
- 2 replies
- I have had to use the assistance of a home care aids for the past twenty years. Throughout this time there was alot of abuse by my caregivers. They came in my home and slept on the job, stole things and ...
- By Monicabutterfly · Posted April 18, 2009
- 0 replies
- Thank you for your quick reply on my interest with your web site. My sister is paralyzed on the left side and has little function on her right. I live in Maine and she lives in Iowa. I spoke to her for ...
- By Rejeena · Posted March 23, 2009
- 0 replies
- Does anyone have any information on updates from stem cell for patients that, have over three years. Since there injury... I need to find if there is new information available ...
- By June55Baby · New reply February 26, 2009
- 13 replies
- Hey all. My 4 year old grandaughter was in a car accident on March 25th along with her mama (our daughter) and sustained a complete T6 SCI-WORA with no movement or sensation below her belly button. Our ...
- By GailP · New reply February 7, 2009
- 8 replies
- My son, Patrick will have been injured one year on March 17th. His injury is considered incomplete T-11. He has had many hurdles since the injury -- surgery for HO, neuro problems (he's epiletic), UTIs ...
- By sherry40 · Posted February 1, 2009
- 0 replies
- Hi everyone,I am jaykay40's wife. We just found out that he is going to have to have surgery due to scar tissue build up that is squeezing his spinal chord it's in the c-5 c-6 region. We have already ...
- By kir914 · New reply January 18, 2009
- 4 replies
- My mother passed away and i have all of her medical equipment I'm trying to sell. A special air bed, electric wheelchair, electric hoyer lift and shower chair are some of the things I need to sell. I ...
- By pdecrease · Posted November 14, 2008
- 0 replies
- Hi All, prior to my son's accident over a year ago I fought for the disabled in relation to education. With a new president to take office soon dissability rights may or may not change in some form or ...
- By Blueyes · New reply October 2, 2008
- 3 replies
- How do you become totally independent and be able to raise a 4 yr. old on your own ...
- By Boyd · New reply August 13, 2008
- 6 replies
- I am at a lost. My husband is a C2-C3 incomplete. Accident was 7.5 months ago. He is doing unbelievably well for a quad. His legs are stronger then mine. Most of his damage is in his arms and hands. He ...
- By SherryPiepkorn · New reply August 9, 2008
- 3 replies
- My husband is a C3 - C6 quaud. His arms are drawn up because he has functional biceps but no triceps. He has had range of motion from the time of injury but it has not prevented them from drawing up ...
- By Sabine21 · New reply July 29, 2008
- 9 replies
- hello, my sister became paralyzed one year ago, she fractured the c5 and c6 and is paralyzed from the waist down, she can use her arms, but really does not have much motor skills. She was injured in a ...
- By GailP · New reply July 21, 2008
- 9 replies
- I have just recently been informed that my son, Patrick, will be discharged from Magee Rehab Hospital next Friday morning, July 25th. It appears at this point he will be going home with his father, to ...
- By Ida · New reply July 18, 2008
- 22 replies
- HI, I'm looking for something to read that will inspire. Something that makes going to therapy a little easier and maybe even something to look forward to. I want to read about someone with a spinal cord ...