Last week I was talking to a researcher with Johns Hopkins and we were talking about claims made for treating SCI in other countries. I am sure there have been people from the United States who have tried these treatments. If any of these treatments really worked, don't you think we would have heard about it? If a treatment worked on me, I would go on every television show and offer myself to every research facility.
I think most of us would do that. So we have to continue to wait and wait and wait.
PARALYSIS SUCKS!
Epilogue:
After Mikey wrote this he could be seen sitting in his wheelchair at his computer in a stupor like state mumbling to himself while his dog was chewing on his feet. I guess the waiting and waiting and waiting is really getting to him. I decided to send this message on Mikey's behalf because he feels it is important.
Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Would You Be Silent?
- By mikey
- Posted July 20, 2009 at 2:48 am · 9 replies
- In Health matters
- Shared with the public
9 replies
- Oldest first
- Newest first
- By greensmile
- Posted July 20, 2009 at 5:33 am
- Report post
hi :)
here in israel the research of stem cell applications is very far advanced as compared to the u.s.a.the clinical applications are widely varied according to the researchers and hopefully there will be direct clinical work with patients.let's all pray it comes fast and abundant.:)
never ever give up hope,keep the faith,and keep smiling:) :) :)
- By mtndreams
- Posted July 20, 2009 at 7:35 am
- Report post
PARALYSIS SUCKS!
A true statement but what is one left with but to live, laugh, and wait.
I believe in a someday - probably not able to help my son walk again (C4/5 complete) but possibly able to gain the use of his hands again.
He endures the pain, smiles, laughs and waits.
Don't give up - someday will come!
- By FireFly01230
- Posted July 20, 2009 at 11:51 am
- Report post
Hi Mikey,
If you are interested, this site reveals neuro-regeneration case studies. My P.C. kept asking me to install Chinese, but there are some U.S.A./America patients on their patient list.
U.S.A. patient Zaccagnino has her email address in her patient study. Anyway... don't know if you're interested in this or not. Just thought I'd pass it along, just in case.
http://www.nrrfr.com/english_nr.asp?newsid=1986&bt=Spinal%20Cord%20Injury
-b
- By sippyber
- Posted July 20, 2009 at 12:20 pm
- Report post
A very stupid and arrogant person who was hospitalized in the same period I was, decided to go to China for stem-cells treatment. This very expensive "tours" to China are organized by a Swiss company. And since we live in Milano, Italy, we are very close to Swizerland.
The stupid came back saying everybody that we were losing our time and he could already feel some change.
This was happening two years ago.
Well, a couple of months ago I saw him on tv telling that Chinese treatments were a bluff.
I told you he is very stupid.
We have just to wait. I want at least my hands' functionality back.
Bye
- By Patricia7
- Posted July 20, 2009 at 12:42 pm
- Report post
I took my 2 yr old Grandson to the Transformer Movie and I have not stopped thinking about the idea of a bio robot suit. The ReWalk from Israel is suppose to be in trial in Pennsylvania... it would be interesting if this would actually be possible.
Those of us not paralyzed depend on cars, boats, planes, escalators, elevators... and more, so the concept of something non living to support the biological body is not unusual. In this day of phones, computers, talking ovens, washing machines... we use these extensions all the time. The advances made in the amputee population is amazing.. total legs that move and work like the real thing. That is good especially for the guys coming back from the wars... The number of paralyzed and head injured young soldiers are mounting. There must be a way to get these people out of the wheelchair.
Of course it would probably cost a lot money ... the device would have to work as well as be reasonable. The cost of paralysis is unhealthy... the loss of hope is unbearable... so we must go on.
- By BurgessB
- Posted July 26, 2009 at 4:55 pm
- Report post
I've noticed that if your not a new injury places do'nt wont to fool with you .I talked to the Sheperds clinic in georgia they said they would only fool with me on an out pateint basis but i live 4 ours away so.
- By pdecrease
- Posted July 27, 2009 at 7:16 am
- Report post
Mikey, my daughter received a video from a trainer who researches this kind of stuff, although he is not paralyzed the subject is of great interest to him. My son is paralyzed and we watched the video, there are treatments out there, and some work for some people. The video was regarding stem cell injections. I think the procedure can be done in Mexico. If you want more info on it - write me and I'll see if I can get you access to the video or at least more info. My son in the chair for only 2 years now, has the attitude that he may not ever walk (I disagree), but, just sitting and waiting is a waste of life! Get out there and live, do something - he found sled hockey with only one youth team in the state, and can't play games, but he's out there skating at different rinks. He's living, doing things. He just started working out at the local Y too. He goes fising with the Delaware Vet. organization, and he's learning to repair power tools. Subscribers to several mags on paralysis also offer updated info on the research going on and my son has participated in some surveys and continually looks for studies to apply to in his effort to support new techniques and research.
- By Priscilla
- Posted July 27, 2009 at 2:43 pm
- Report post
I must have misunderstood you, but how can he skate if he can't walk?
- By Priscilla
- Posted July 27, 2009 at 2:47 pm
- Report post
When I went to Johns Hopkins I was told there would be a cure in 5 years. That was 8 years ago, but it gave me hope and kept me going. (zzzzzzzzzz Lou Dawg snoring at my feet)
Add to the discussion