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Here we go again

angelbrd67
  • By angelbrd67 · New reply yesterday at 10:24 pm
  • Journal · 1 reply
  • Well here we go again, yet another bladder infection. Waiting on the Doctor who swore it wasn't an infection to call back and tell us what kind of bacteria the culture grew and get Matt on the right medication ...

Floridia living for the disabled?

websurffer
  • By websurffer · New reply yesterday at 2:57 pm
  • Discussion in Help desk · 3 replies
  • Hi to all, Can anybody help? I would like to know what it is like for people that are paralyzed and live in Florida? I currently live in New York and would like to move south. I am 30 years old and have ...

Bowel program getting longer and longer with leaking water

alcole
  • By alcole · New reply yesterday at 10:24 am
  • Discussion in Health matters · 3 replies
  • My husbands bowel program had been going fine for years. Within the last two they have becoming longer and longer and unpredictable. After the feces have been removed etc. then clean fluid comes and he ...

The week that never ends

angelbrd67
  • By angelbrd67 · New reply February 7, 2010
  • Journal · 3 replies
  • The week started out full of anxiety roofers came and gave me the estimate on the roof. I had made myself sick horribly worring about the costs. Matt's dad sent me some money but it wasn't close to what ...

Stress test-don't do it!

Gimpa50
  • By Gimpa50 · New reply February 7, 2010
  • Discussion in Health matters · 1 reply
  • I am a C-5 complete quadriplegic and I had a chemical stress test because of several chest pains that were apparently only stress related panic attacks. It was the biggest mistake of my quadriplegic life ...

To help my friends understand #2

Nina372
  • By Nina372 · New reply February 6, 2010
  • Journal · 24 replies
  • This is the second awareness video I made for my friends. I prob won't be posting all my videos to inspire so if you would like to watch my videos you can see them on my youtube channel, my channel name ...

Saving your baby's umbilical cord

valenmsv
  • By valenmsv · New reply February 6, 2010
  • Discussion in Family, parents and caregivers · 12 replies
  • Hi, I'm a 35 yr old sci patient. I suffered an L1 burst fracture 11 years ago. Since then, I have regained most of my mobility. I am very lucky. However, I still do not have bowel or bladder control ...

want to find a used electric wheel chair

whchaminda
  • By whchaminda · New reply February 6, 2010
  • Journal · 2 replies
  • i'm 36 tear od boy from sri lanka.i wanted to buy a used electric wheel chair for me for a cheap price. if anyone know how to find a cheaper one pls reply me. thks for all in Team Inspire ...

Spasticity

luminita
  • By luminita · New reply February 2, 2010
  • Discussion in Health matters · 35 replies
  • l need your help to decide what to do,because in the last 3 months l have huge problem with the spasticity. l can't sleep anymore,l can't sit in my wheelchair,l can't do anything.Spasms all the time,l ...

Now

JennDianne
  • By JennDianne · New reply February 2, 2010
  • Journal · 2 replies
  • Well it has been over a year with Ethans ATV Crash and left leg paralized. He still has so much pain. I am so sorry he has to hurt. The pain isnt all the time but when it hits him bad nothing seems to ...

Social Security Disability

tmichaelroche
  • By tmichaelroche · New reply February 1, 2010
  • Journal · 39 replies
  • I am 4 months into the process of applying for Social Security Disability (SSD). Can anyone out there share their experiences with the process? Did you go through the process? What to expect when I get ...

Pain in the bottom of your feet

angelbrd67
  • By angelbrd67 · New reply January 31, 2010
  • Discussion in Health matters · 9 replies
  • Matthew has recently gotten a baclofen Pump. With the new pump he has gotten more return (rather more return has shown up with out the spasms stopping it)... He has also gotten this weird feeling in his ...

Not Everybody's Taste

mikey
  • By mikey · Posted January 30, 2010
  • Discussion in Living your life · 0 replies
  • This is a GREAT performance of a GREAT song. But the title says it all. http://www.youtube.com/watch?v=NLt8kyb-o Kc ...

Violation of Civil Rights

pdecrease
  • By pdecrease · New reply January 27, 2010
  • Discussion in Living your life · 11 replies
  • I'm so angry! There is a ice arena here in DE that posted a message on their website - "no sled skaters allowed at any public skate." I want my disabled son who enjoys sled skating to file a complaint ...

Jan 26th pump increase

angelbrd67
  • By angelbrd67 · Posted January 26, 2010
  • Journal · 0 replies
  • Well we went in for our pump increase and have gotten down to two baclofen a day 20mg by mouth. We got to listen to the alarms on Matt's pump today, we asked to know what they sound like so we can know ...

They are OUT and Trip to Neuro gives us more hope

angelbrd67
  • By angelbrd67 · New reply January 25, 2010
  • Journal · 1 reply
  • Matt went in for a pump adjustment today, He did great. They upped the dose 30 percent more again and took out his Stapples!!!!! Now the nasty smelling Teenager can take a shower. I hate the smell of ...

Very sad I cannot take care of my dog anymore.

Nina372
  • By Nina372 · New reply January 24, 2010
  • Journal · 44 replies
  • I have a golden retriever named sadie I got her as a puppy two months after I got sick. She has been through thick and thin with me and has become my best friend when all my other friends left me because ...

How do you start Fundraising

angelbrd67
  • By angelbrd67 · New reply January 22, 2010
  • Discussion in Funding your care (grants, fundraising, resources) · 3 replies
  • I am a mom of 5 kids, I have raised the kids alone most of their lives.. Their father is in Iraq as a private contractor with the US Government and has been very good about sending all he can to support ...

Here we go

gunneyrules
  • By gunneyrules · New reply January 22, 2010
  • Journal · 9 replies
  • haunting me again, the low grade fevers, sweats, aches, back of chest hurting and the coughing, not wanting to get out of bed or hold head up. i don't want to go to work tomorrow and they will probably ...

vs. lyrica

pistol12507
  • By pistol12507 · New reply January 21, 2010
  • Discussion in Help desk · 8 replies
  • I've been taking Lyrica for well over a year and the swollen legs are getting out of control. Have any of you taken Lyrica and had success with it and then switched to something else that worked just ...

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Inspire connects patients, families, friends and caregivers for support and inspiration. Read more about our work.