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pots/dysautonomia

Nina372
  • By Nina372 · New reply 4:17 pm
  • Journal · 20 replies
  • Does anyone here have experience or knowledge about getting a pace maker for their postural orthostatic tachycardia syndrome (pots ...

Support your group and raise awareness with badges

Walter
  • By Walter · New reply 4:04 pm
  • Journal · 53 replies
  • Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

Latest Cause Of An Activist

mikey
  • By mikey · New reply 7:37 am
  • Discussion in Living your life · 2 replies
  • Taking up issues provides some meaning and my damn body doesn't hurt as much. I am going to publish an OP ED in college newspapers. I hope it will help facilitate necessary change. Look Into Their Eyes ...

stellar glee

greensmile
  • By greensmile · Posted yesterday at 9:26 am
  • Journal · 0 replies
  • we take off zooming heavenward beyond the boundaries of inner space out into the great blue velvet of space grabbing the comets tail riding it as on a broncos back whiffling amoungst the crystalline stars ...

butterflies

greensmile
  • By greensmile · New reply yesterday at 3:03 am
  • Journal · 5 replies
  • the butterflies are coming spring is slowly unfolding flower buds appear soft,curls of lifes renewal ready to open velvet petals to smile at the sun the butterflies are approaching spring brings gentle ...

Contact info re bringing my son home!

tyzackmom
  • By tyzackmom · New reply March 9, 2010
  • Journal · 7 replies
  • I am currently still trying to bring my son home from the subacute facility he is in. I am wondering if anyone can give me advice as to who to contact or your own personal experience regarding bringing ...

19 years old. alone??

Nina372
  • By Nina372 · New reply March 8, 2010
  • Journal · 38 replies
  • I am 19 years old and sometimes feel as though there is nobody else my age who knows what I go through. I know many other people who understand what I have to face every day and the difficulties involved ...

God, I need a break please!

angelbrd67
  • By angelbrd67 · New reply March 7, 2010
  • Journal · 6 replies
  • life sure has a lot of bad blows it can hit you with, I have focused so much of my time and efforts on my son helping him and he is doing so great. I just hope I am around years from now to see more ...

Back Pain

RJAMJS
  • By RJAMJS · New reply March 7, 2010
  • Discussion in Health matters · 16 replies
  • Do many people with a SCI suffer back pain? If so, what can be done about it ...

Neurontin versus Lyrica

Gimpa50
  • By Gimpa50 · New reply March 7, 2010
  • Discussion in Health matters · 22 replies
  • I am a C5 complete quadriplegic. I have been taking 2400 mg daily of Neurontin for nerve pain in my arms for 6 years since my accident. It helps some but does not eliminate the pain. I take Darvocet in ...

Healthcare will come in some form

walker5473
  • By walker5473 · New reply March 4, 2010
  • Journal · 9 replies
  • There are lots of wonderful and insightful comments and graphs regarding the healthcare crisis! More educated people = more critical thinking, that's great!!! What is really missing from the equation ...

World Rare Disease Day

Brian
  • By Brian · New reply March 4, 2010
  • Journal · 14 replies
  • In recognition of Rare Disease Day 2010, Inspire and the National Organization for Rare Disorders conducted a survey of Inspire members with rare disorders. The results are enlightening, and I encourage ...

Diaphragm pacing system

Gimpa50
  • By Gimpa50 · New reply March 3, 2010
  • Discussion in Health matters · 2 replies
  • I recently read an article about a device that is being used to stimulate the diaphragm and free ventilator dependent SCI's from their ventilator's. It is an old article and many of you may already know ...

School = feeling horrible. need advice

Nina372
  • By Nina372 · New reply March 2, 2010
  • Journal · 19 replies
  • I go to the University of New Mexico it’s been about a month since I have started my classes and it is HARD I am taking 14 credit hours. I am always worried I will pass out on campus as I almost did ...

a amazing blog of embronic stem cell

papito1
  • By papito1 · New reply March 1, 2010
  • Discussion in Health matters · 2 replies
  • www.amandaboxtel.wordpress.com A amazing recovery for this woman paralyze 15 yrs. however take a look at the site! God bless us all! Sammy ...

weight loss

2blessed2010
  • By 2blessed2010 · New reply March 1, 2010
  • Discussion in Health matters · 8 replies
  • is it ok to take diet pills and paralyzed ...

3-year SCI anniversary

Matts-mom
  • By Matts-mom · New reply March 1, 2010
  • Discussion in Living your life · 6 replies
  • Today marks three years since my son was paralyzed. He is an amazing young man who hasn't let SCI (L1) detract him from his goals. Celebrating his hard work in PT, exercise, ect. with a big steak dinner ...

Marking year 3

carole338
  • By carole338 · New reply March 1, 2010
  • Discussion in Living your life · 6 replies
  • Today is three years since I was told my spinal cord was injured and I would be permanently paralyzed and I had to fight just to stay alive. It took quite a while for me to understand this. I felt the ...

musics kaleidoscope

greensmile
  • By greensmile · New reply March 1, 2010
  • Journal · 2 replies
  • tonality,and texture growth,and developement undulating sixteenth note runs chasing the melody upheld by cantus firmus steady,strong polyphonic harmony,lilting with grace uplifting the longing soul changing ...

motion

greensmile
  • By greensmile · New reply February 28, 2010
  • Journal · 10 replies
  • motion,slow,heavy jumping?dreams of the past skipping?childhood memories running?only in the imagination swimming?in my thoughts,in my dreams i run in floral fields only to awaken to stillness skipping ...

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