Paralysis Resource Center Support Community

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Healing stage 4 bedsore on buttocks(trach, secretions, can't lay flat)

By Soshai · Posted 12:09 am
Discussion in Health matters · 0 replies
My step father 71 years old had stroke almost 2 years ago. he got Aspiration Pneumonia and got Trach and feeding tube was on vent in ICU then sent home ( without vent, only air mist) to be comfortable ...

Dave matthews

By Diosa22 · New reply yesterday at 3:44 pm
Discussion in Living your life · 2 replies
Does anybody here love the band as much as i do? I have extra tickets for concerts here in indy next month. Music is very therapeutic ...

Where would you rather live?

By goldy24k · Posted yesterday at 10:53 am
Discussion in Living your life · 0 replies
If you had the choice on where to live where would it be? Would it be at home with relatives, or your partner, with friends in an apartment, or a group home? I think I want to stay at home with my parents ...

getting through paralysis

By sacramentowife · New reply May 14, 2012
Discussion in New paralysis/rehabilitation · 6 replies
5 weeks ago my husband was in a bad motorcycle accident. and on the way to the hospital he died and they brought him back. He broke his spine right where the spinal cord stops, broke his collar bone ...

Happy day!

By Diosa22 · New reply May 12, 2012
Discussion in Living your life · 4 replies
I am done with my book! I started it a year ago, and today I finished it. I have 27,027 words. I hope to help many people now and in the future. I was already on the news once. Now that I am done, I am ...

Anniversary

By Priscilla · Posted May 12, 2012
Journal · 0 replies
I almost forgot it! Yesterday was my 11th anniversary of living with TM. It's been an incredibly hard journey, but I'm still.going! My arms and hands are still paralyzed and my left arm is shrinking and ...

I NEED A QUICKIE P200 PLEASE!!

By soldiafolife · New reply May 11, 2012
Discussion in Assistive technology and equipment · 1 reply
ANYONE THAT KNOWS WHERE I CAN GET A QUICKIE P200 WITH A 18" FRAME FOR CHEAP OR NEXT TO NOTHING?? ITS HARD TO COME UP WITH THOUSANDS OF DOLLARS WHILE ON DISABILITY. I REALLY NEED THE P200 ITS THE ONLY ...

wacky wheelchair

By goldy24k · New reply May 11, 2012
Discussion in Assistive technology and equipment · 4 replies
I have a Quickie p200. It still works and it's over 10 years old. The main problem is that the battery gauge does not give you a proper reading. It says it's low when it is at least half charged. Has ...

Knee popping

By hyper38 · New reply May 11, 2012
Journal · 2 replies
Well after celebrating my birthday I finally decided to go find out why my knee is popping when I walk, had a X-ray didn't see anything but a MRI have to take on Monday , I 'm hoping for good news really ...

Time for the competition again! Thought of the day

By goldy24k · New reply May 6, 2012
Journal · 7 replies
The Mid-America games are coming up again this weekend! I'm in wheelchair races like the weave and the dash! I hope my wheelchair makes it! The battery is giving out on me. We ordered a new one. I hope ...

We are ex;s

By SHIRLEY2009 · Posted May 5, 2012
Journal · 0 replies
No longer together 12 13 12 tim and shirley no longer together, broken hip ended our relatiship He was so rude to me in the hosital and I did not have a thing to do with the broken hip, But I got the ...

Hello there ,

By SHIRLEY2009 · Posted May 5, 2012
Journal · 0 replies
My name is Shirley and I am a pca for gsil and they T case worker thinks I should do all kinds of time for this t guy. because we are friends . my time is mine and should be paid for such. I would help ...

Hours Cut

By goldy24k · New reply May 5, 2012
Discussion in Family, parents and caregivers · 4 replies
I am allotted so many hours by the state to have a P.C.A. come in. She could help me cook and clean but my mom does most of that. We just have her come in and help me exercise. I used to have 12 hours ...

A REAL NUT JOB

By mikey · New reply May 5, 2012
Discussion in Living your life · 1 reply
We may be gimps, but we have to try to be engaged in issues other than paralysis. Because with paralysis it is always the same, which for the most part translates into same shit different day. We have ...

P.C.A that lies

By waterawall · Posted May 5, 2012
Discussion in Family, parents and caregivers · 0 replies
Any one know how to handle care provider that lies about experience to make themselves looks good? Because he doesn't have experiences and wants more hours. I can't really record the things he does or ...

DREZ or dorsal root entry zone

By wheels1975 · Posted May 1, 2012
Discussion in Health matters · 0 replies
Has anyone had this surgery to reduce nerve pain. My nerve pain is controlling my life. If anyone has had the DREZ operation or any operation to reduce nerve pain please let me know. You can even e-mail ...

Sip'n Puff Ipod Dock

By CowboyBob · Posted April 27, 2012
Discussion in Assistive technology and equipment · 0 replies
I just wanted to share a project that I have done using a Sip'n Puff Arduino shield. Hope you enjoy. I'm also working on a Sip'n Puff Morse code keyboard. I would appreciate any opinions or advice. http://www.tmientp.com/ipoddock.htm ...

Looking ahead

By hyper38 · Posted April 18, 2012
Journal · 0 replies
My week so far has been great , exercising has helped me so far & wonderful people with encouraging thoughts I'm thankful that God is blessing me to make it through even when the waves of disbelief tries ...

Fightnig another day

By hyper38 · New reply April 18, 2012
Journal · 2 replies
This week has been a hard week for me , I look at myself in the mirror my legs have no quad structure which looks like I'm carrying lifeless legs around tears flowed from my eyes I remember how muscular ...

The Inspire Q&A: Inspire talks with Howard Luks, MD

By John2 · New reply April 15, 2012
Journal · 59 replies
Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

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Inspire connects patients, families, friends and caregivers for support and inspiration.