Advocacy

Track the latest in advocacy efforts and how you can become involved.

Discussions

Federal Funding for research and education

LilySue
  • By LilySue · New reply April 8, 2014
  • 18 replies
  • Last week I had the honor of traveling to Washington D.C. to meet with 24 other women and men who are all part of the Ovarian Cancer National Alliance's Advocate Leaders program (formerly the Grasstops ...

Ovarian carcinosarcoma

Suny1
  • By Suny1 · New reply April 4, 2014
  • 20 replies
  • A very rare cancer, and any information that we can get would help women who have this diagnoses to cope better. Knowing that there are women that are surviving this cancer has helped me to have a more ...

Tell your members of congress to support ovarian cancer research!

Laura_OCNA
  • By Laura_OCNA · New reply March 21, 2014
  • 7 replies
  • Thanks to your hard work, the Department of Defense Ovarian Cancer Research Program (DoD OCRP) was fully funded at $20 million for 2014. But we need your help once again to ensure that the DoD OCRP's ...

job downsized

nab219
  • By nab219 · New reply March 9, 2014
  • 8 replies
  • I have been out of work for nearly a year. I had surgery, nine rounds of chemo then 28 pelvic radiation yrs. I received short term then long term disability insurance thru my employer ( I paid into this ...

An NPR interview about life with cancer

GoSox
  • By GoSox · New reply March 7, 2014
  • 11 replies
  • Hi ladies - Did anyone else catch this interview on NPR this morning? An executive news editor had breast cancer last year, and wrote "A Breast Cancer Alphabet," essentially a guide to life with cancer ...

In case you missed the opportunity to partiipate!

OvCaMom
  • By OvCaMom · New reply February 27, 2014
  • 1 reply
  • About 6 week ago, I posted a request for women to complete a survey about risks and protective factors for ovarian and other cancers. Any woman (with or without cancer) over the age of 18 who reads English ...

Survivor Survey--tell us about your experiences with SSDI

Amanda_OCNA
  • By Amanda_OCNA · New reply February 25, 2014
  • 9 replies
  • We are conducting a survey of our ovarian cancer community in order to learn more about your experiences with Social Security Disability Income (SSDI). We would love to hear from any women diagnosed with ...

Do you answer the question "What kind of cancer do you have?"

Petra1959
  • By Petra1959 · New reply February 23, 2014
  • 40 replies
  • I feel very uncomfortable with this question, but I get asked it as I'm usually wearing a scarf when I'm out. I don't want to say, "none of your business" but I don't like saying Ovarian Cancer - it just ...

A Survey for Recurrent OVCA Sisters

DragonGirl
  • By DragonGirl · Posted February 17, 2014
  • 0 replies
  • I thought some of you might be eligible to share your experiences with living a long while with active ovca disease. This survey is put together by another ovca sister interested in those of us going ...

Talcum Powder Awareness

DragonGirl
  • By DragonGirl · New reply February 16, 2014
  • 12 replies
  • It may not be new news but it is for most women. Johnson & Johnson's Talcum Powder products lead to higher risk for ovarian cancer. And lawyers are willing to explore if you, too, have a legal case. It's ...

My story...In Her Own Words

Angel1955
  • By Angel1955 · New reply February 12, 2014
  • 11 replies
  • I wanted to share my cancer story with everyone. My story was the feature "In Her Own Words" section in the February issue of the Ovarian Cancer Alliance of Oregon & SW Washington newsletter. www.ovariancancerosw.org ...

Teal Ribbons at the State of the Union

Billy-Bob
  • By Billy-Bob · New reply January 31, 2014
  • 5 replies
  • Any one notice the teal ribbons worn during last night's address? We were jumping up and down.... Recognition! Finally!! Congress takes notice!!! Then in today's Washington Post "Elsewhere, eagle-eyed ...

Funds for Ovarian Cancer Research Increased in Recent Federal Spending Deal

Laura_OCNA
  • By Laura_OCNA · New reply January 21, 2014
  • 5 replies
  • Every year, the Ovarian Cancer National Alliance works with survivors, Partner Members, and champions in Congress to ensure that ovarian cancer research, awareness and control programs are funding priorities ...

Canadian post chemo protocol

Royanne
  • By Royanne · New reply January 18, 2014
  • 17 replies
  • Hello all! I would like to address this discussion to my Canadian friends, as our medical system is different than other countries. In March 2013, I was diagnosed with ovarian cancer, stage 3C, three ...

Say A Prayer For Me Today

bonnieb
  • By bonnieb · New reply January 11, 2014
  • 26 replies
  • Hello Teal Sisters, could you all take a moment today to stop and say a prayer for me at 10MST....there is a Church in Mesa Arizona that is saying a mass for me at that time..... It is the St Peregrine ...

The Ultimate Guide to Ovarian Cancer

OCIED
  • By OCIED · New reply December 18, 2013
  • 9 replies
  • As a young woman with ovarian cancer history in my family, I try to do everything I can to stay healthy and informed. I recently read Dr. Benedict Benigno's book: The Ultimate Guide to Ovarian Cancer ...

Electronic technology and cancer

hula-grl-at-hrt
  • By hula-grl-at-hrt · New reply December 14, 2013
  • 4 replies
  • Has anyone read or heard of any relationship of the use of laptops and ovarian cancer? The link below is from a Dr. John West, in California who has done some research with cell phones and the incidence ...

Be a voice for women with ovarian cancer--Grasstops applications due 12/13

Amanda_OCNA
  • By Amanda_OCNA · New reply December 12, 2013
  • 1 reply
  • Do you want to be a voice for the ovarian cancer community? Would you like special training and opportunities to meet with your members of Congress? Do you want to spread the word about this disease in ...

Raise your voice for women with ovarian cancer

Amanda_OCNA
  • By Amanda_OCNA · Posted November 12, 2013
  • 0 replies
  • We are looking for a few dedicated women and men who can help us speak up for women with ovarian cancer with legislators around the country. Applications are now open to join our 2014 Grasstops program ...

Telephone Support Group Nov. 13

Barbara_C
  • By Barbara_C · New reply November 5, 2013
  • 1 reply
  • Sharing this info for anyone who may be interested: Support Connection Inc. is a not-for-profit organization offering free and confidential support services to people affected by ovarian and breast cancer ...

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