Advocacy
Track the latest in advocacy efforts and how you can become involved.
Discussions
Genetic Risk Explained in Lay Language by Gyn-Onc
- By Laurel-J · New reply May 21, 2013
- 11 replies
- Dr Mike Janicek, gynecologic oncologist address ovarian cancer issues and risks for BRCA+ families on Breast Cancer Answers Social Media Show. Tune in to learn what the media failed to make clear about ...
PUBLICITY ON OVCA!!!!!
- By 3978bee · New reply May 17, 2013
- 3 replies
- This morning watching the morning news (7-9) I saw THREE spots on ovarian cancer. Hallelujah! Thank you to Ms. Jolie, Ms. Walters, all the others who have spoken out to advance information about ovca ...
BRAC1 BRAC2, NYTIMES ARTICLE VOTE IN JUNE
- By Fndian · New reply May 16, 2013
- 6 replies
- JUDITH M. WALLACE New York, May 14, 2013 To the Editor: Angelina Jolie’s courageous Op-Ed essay highlights that many women face serious obstacles when seeking genetic testing and preventive treatment ...
CA125 at 19,000
- By Carolyn528 · New reply May 15, 2013
- 28 replies
- Hello to all out there. I am so down. I can't believe how this cancer is going for me. My latest CA125 is up and over 19,000. Is there anyone out there that has a number that high? I was diagnosed May ...
Blog post about drug prices (Avastin)
- By Scoobydoobeach · New reply May 9, 2013
- 2 replies
- Please read and share my new blog entry about the disparities in chemotherapy and biotherapy drug prices. http://helpkeepasisteralive.blogspot.com /2013/05/avastin-prices-vary-vastly-cave at-emptor.html ...
Nuclear Medicine Patient Program invitation in Vancouver, BC
- By Laurel-J · New reply May 3, 2013
- 8 replies
- The Society of Nuclear Medicine and Molecular Imaging (SNMMI) Patient Advocate Advisory Board (PAAB) are pleased to announce their Patient Education Program in conjunction with its Annual Meeting, June ...
Help with the costs...new fight against pharmaceutical companies
- By Jafer · Posted April 25, 2013
- 0 replies
- If you haven't seen this yet, please read! HOME HEALTH TOPICS A-Z HEALTHY LIVING CHECK YOUR SYMPTOMS DRUGS & TREATMENTS FIND A DOCTOR HEALTH VIDEOS Featured on Yahoo! Health:Treat and Prevent LiceBest ...
Ovarian Cancer Connections
- By Mo55 · New reply April 23, 2013
- 4 replies
- I have recently been diagnosed with Ovarian cancer. I am also a registered nurse. I am interested in reaching out to other women with ovarian cancer in the Northeastern Pa. area, including Lackawanna ...
Family Jewels are not the Family Genes
- By hinsopa · New reply April 18, 2013
- 1 reply
- Come over and read my new posts, sisters, at www.canceremotions.wordpress.com. Patsy (hinsopa ...
Las Vegas OCAN Support Group - next meeting is tonight at 6:00pm
- By L3Talent · New reply April 17, 2013
- 3 replies
- Hi, if you are in the Las Vegas area please join our OCAN support group. Our next meeting is tonight 4/17/13 at 6:00pm - 7:30pm. We meet at The Caring Place 4425 S. Jones 6:00pm-7:30pm. If you can't make ...
US Sup. Ct case TODAY on BRCA Gene Patents
- By Mommy-to-two · New reply April 15, 2013
- 4 replies
- ********VERY IMPORTANT CASE IN SUPREME COURT TODAY !! ******** Case is being argued in US Sup Ct today about patents for BRCA gene....Stayed tuned to news tonight, and you might hear a little from the ...
Chlorophyll helps OVCA?
- By lalaji · New reply April 1, 2013
- 4 replies
- Hi, I have read a few articles and research papers saying Cholophyll can have some positive (and some possible negative) effect on OVCA. There are few posts on the internet where people have used Chlorophyll ...
Sign up for legislation alerts
- By BartersIsland · Posted March 24, 2013
- 0 replies
- If you are at the point where you would like to advocate for legislation specific to funding ovarian cancer issues in the US, consider signing up for legislative alerts from the Ovarian Cancer National ...
How to Fix the Treatment Problem for Ovarian Cancer
- By Scoobydoobeach · New reply March 19, 2013
- 4 replies
- Based on the appalling statistic that "only 37 percent received the care recommended in guidelines set by the National Comprehensive Cancer Network" the NYT recommends "One of the surest ways to improve ...
Sorry for the wording...
- By RJFar · New reply March 16, 2013
- 25 replies
- I was only trying to help a new teal gal. For those of you who wrote me nasty notes, I am so sorry. I was just com pairing the two cancers. No cancer is good. It just seems there is far too much discrimination ...
Is there any NICE free wigs for those of us who...
- By RJFar · New reply March 14, 2013
- 14 replies
- Don't have boob cancer? Doesn't the world realize that we are fighting the silent Killer. I would have gladly given up both boobs to avoid having this horrid female cancer. Living in TN there is no help ...
My latest Blog Entry Not the End of My Life Blog
- By Scoobydoobeach · Posted March 2, 2013
- 0 replies
- So instead of cycling today in Cycle for Survival, or running up stadium stairs like one of my friends, I actually wrote in my Help Keep a Sister Alive blog-- in part about drug shortages. Check it out ...
Check Out My Facebook Page re Ovarian Cancer
- By Scoobydoobeach · Posted February 19, 2013
- 0 replies
- I am posting again on my Facebook page re cancer issues. Please take a look and "like" the page if you want. I am trying to collect information that is relevant and present it in a way that makes sense ...
/// Your Questions Answered \\\
- By Laurel-J · New reply February 19, 2013
- 5 replies
- In late January I asked if you had questions you'd like me to ask regarding nuclear medicine procedures before I headed to New Orleans for the SNMMI conference as a Patient Advocate. I submitted the questions ...
diffusion on peritonium
- By paplee · New reply February 15, 2013
- 3 replies
- my sister petscan showed few diffusions on the peritoneum. but no tumors. ca 125 has gone from 7 to 37 ...
Things you can do
Support OCNA
Help the Ovarian Cancer National Alliance reach its goals and support people like yourself by making a donation today.
Advertisement
Advertisement
Discussion topics
- Advocacy
- Awareness and fundraising events
- Caregivers and family members
- Clinical trials
- Financial and insurance issues
- Good news
- Help desk
- In memoriam
- Just for fun
- Late stage
- Newly diagnosed
- Nutrition
- OCNA Annual Conference
- OCNA news and information
- Ovarian clear cell carcinoma
- Recurrence
- Research
- Side effects of treatment
- Survivor stories
- Treatment
- What, me worry?
- Young survivors
Support OCNA
OCNA on Twitter 
Community leaders
About · Partners · Explore groups · Community guidelines · Our principles · Privacy · Terms of use · Start a group · Help · Feedback · Follow us on: 
Copyright © 2005-2013 Inspire · All rights reserved