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Checking In

  • By SeeGirlLive · Posted 10:53 am
  • Journal · 15 replies
  • 4/17: I tried just now to stand up and walk to the lamp so that I could turn it off. I got dizzy and started seeing flashing lights in front of my eyes. It’s like in Speed Racer! Now I’m laying back down ...


  • By karengalen · Posted 1:13 am
  • Discussion in What, me worry? · 2 replies
  • I am very scared reacurring ovca 3c3 Monday I go for my regular ct but I am going up on the boards the meeting of the minds. I love every day and I'm blessed with I went through 3 surgeries and im on ...

Social Security approved!

  • By tgraycoleman · Posted yesterday at 8:14 pm
  • Discussion in Financial and insurance issues · 6 replies
  • Hello everyone: Just wanted to let everyone know i completed my application last week for SS disability. and exactly one week later I was approved! Ovarian Cancer is on the compassionate allowance list ...

How do you stay in remission?

  • By Leighab · Posted yesterday at 4:52 pm
  • Discussion in Recurrence · 8 replies
  • Hi, my mum is currently going through her first recurrence . She's just had cycle 1 of 6 of carbo/taxol . She had a year on avastin and then 2 months of it ending her ca125 had risen to 440. I was just ...

Groin lymph node recurrence .

  • By Joanla · Posted yesterday at 1:32 pm
  • Discussion in Treatment · 5 replies
  • I finished chemo nov 2012. I was 3C . Now have bilateral inguinal node recurrence. I can just take doxil or wait until my marker goes above normal . I asked about radiation or micro surgery. He didn't ...

Do you believe gratitude is good for your health?

  • By SandySTL · Posted yesterday at 10:53 am
  • Discussion in Just for fun · 6 replies
  • My sister gave me a gratitude box, with 52 thank you cards and a journal to track all you are thankful for. I have been doing this for 3 months. It is amazing the feedback you get when people receive ...

Tamoxifen & Ovarian Cancer

  • By DeniseH64 · Posted yesterday at 9:32 am
  • Discussion in Recurrence · 8 replies
  • Hi Everyone I am new to this. My mother has recurring ovarian cancer and has now been diagnosed Tamoxifen. Has anyone taken this drug? If so, did it work? Thank you everyone x ...

avastin and small intestine ulcer

  • By rlf · Posted yesterday at 12:08 am
  • Discussion in Treatment · 1 reply
  • Has anyone experienced a small intestine ulcer while taking avastin. I sucessfully used this drug for a year 3 years ago. My cancer recurred in December and I started chemo in January. After 4 treatments ...

This is so hard

  • By jand503 · Posted April 16, 2014
  • Discussion in Caregivers and family members · 23 replies
  • My sister is 45 year olds she was diagnosed 4 years ago with Stage 2 Ovarian Cancer had a large tumor that ruptured before surgery. She had a total hysterectomy and went through her chemo, fought plalets ...


  • By mounser · Posted April 16, 2014
  • Discussion in Treatment · 7 replies
  • Hi to all . Has anyone had taxol on its own ? I have it weekly and get on very well apart from itching. Has anybody experienced this side effect. It really is quite annoying although portion does take ...

Has anyone had chemo with platelets at 85?

  • By Mes1103 · Posted April 16, 2014
  • Discussion in Treatment · 13 replies
  • Good afternoon, everyone. It will be 4 weeks since my last Taxol/Carbo infusion on Friday (4/18), my oncologist has had my blood tested every Wednesday to see how low my platelets dropped between infusions ...

Finish chemo

  • By Sissy45 · Posted April 16, 2014
  • Discussion in Good news · 6 replies
  • Today after 17 months of chemo I finally took the last one today . My Ca 125 is down to 16 but waiting on ct scan Monday to confirm it ...

2014 AACR SSP (Scientist<->Survivor Program)

  • By AnnieE1131 · Posted April 16, 2014
  • Discussion in Research · 8 replies
  • I just returned from participating in AACR's (American Association of Cancer Researchers) SSP (Scientist<->Survivor Program). It was an amazing experience and I highly recommend it for anyone interested ...

accupuncture ladies?

  • By berriesandlimes · Posted April 16, 2014
  • Discussion in Just for fun · 4 replies
  • I've had 2 accupuncture treatments (for pain mgmnt mostly) and good results, the gentleman who works on me is a MD whp also practices Chinese medicine, herbs, supplements and the like. This is my first ...

PARP Inhibitor Experience?

  • By SuzyQ62 · Posted April 15, 2014
  • Discussion in Treatment · 15 replies
  • Hi Everyone, Has anyone been in a PARP Inhibitor clinical trial? How has it been for you? Does it clear up ascites? Huggggs and love, Suzy ...

Weight gain while in chemo

  • By Charski · Posted April 15, 2014
  • Discussion in Treatment · 19 replies
  • How long before the pesky wight gain experienced from chemotherapy starts to to go away? I finish my treatments in 3 weeks, so how long before weight starts to stabilize ...

It's been a bumpy ride!

  • By fmaccool · Posted April 15, 2014
  • Discussion in Side effects of treatment · 6 replies
  • Hi there, My partner (also on here) started her first chemo on Friday but not before our 6 year old son had to be home sick with a raging fever and chest cough. We had to get a neighbour to watch him ...

Advice , new here

  • By Unimum · Posted April 15, 2014
  • Discussion in Help desk · 7 replies
  • Hi all Been reading all your posts and just need advice really. Had a hysterectomy 6 yrs ago and about 8 wks back I had some bleeding Have since had transvaginal scan that I was told of I g could be seen ...

better chemo tollerance

  • By berriesandlimes · Posted April 15, 2014
  • Discussion in Treatment · 2 replies
  • Sicnce original disgnosis in 2010, I have been wrought with chemo tteatment that was close to unbearable. The cancer I have won't be eradicated, but the condition IS manageable. I take ,,,25 mg cytoxan ...

Whatever happened to PACMA31?

  • By SuzyQ62 · Posted April 15, 2014
  • Discussion in Treatment · 2 replies
  • I don't see clinical trials or anything going on for this, and it was discovered in2012! Anybody know anything new about this ...

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