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Need advice

R9KARA
  • By R9KARA · Posted 9:21 pm
  • Discussion in Help desk · 1 reply
  • Dear All, My mom was diagnoses by overian cancer stage 4 in december 2012. After 3 rounds of chemo and surgery doctor advice her to meet after 3 mths. Her ca125 is 19 after surgery. I heard after surgery ...

Pay it forward

jbez46
  • By jbez46 · Posted 7:07 pm
  • Journal · 0 replies
  • Since being diagnosed with OVCA in January, I have been making ruffle scarves to give to the ladies at the treatment center in Akron. It is my therapy and my mission; to bring some color and joy to someone ...

34 with Ovarian Cancer

sassylassie
  • By sassylassie · Posted 1:26 pm
  • Discussion in Newly diagnosed · 4 replies
  • Hey, I am newly diagnosed with Ovarian Cancer. Is there anyone my age that has gone through this? I have had one ovary removed so far and will have another procedure after more tests to see how aggressive ...

Allergic reaction to both taxol and doxil

AmyLouQ
  • By AmyLouQ · Posted 9:26 am
  • Discussion in Treatment · 7 replies
  • My friend has now experienced allergic reactions to both taxol and doxil. Her doctor is now starting her on carbo/gemzar. Both times the allergic reaction came with the 2nd treatment of the drug, no allergic ...

vaginectomy or a 7 th cycle of chemo

varykino
  • By varykino · Posted yesterday at 10:12 pm
  • Discussion in Treatment · 7 replies
  • I was diagnosed with Ovarian Cancer in September 2011. I had a total hysterectomy in 2011 and debulking. I had 6 cycles of chemo. In March 2012 , I was told that I was in remission. Then in October my ...

Recurrence #1 - Doxil Regimen

shalsey11
  • By shalsey11 · Posted yesterday at 9:06 pm
  • Journal · 12 replies
  • Day 1 - Doxil infusion - and the fun begins once again. Was just getting to liking my hair-do after it grew in from the last chemo that ended in November. Oh well. Bought Biotene Mouthwash and Bag Balm ...

Looking forward

Landrn
  • By Landrn · Posted yesterday at 12:59 pm
  • Discussion in OCNA Annual Conference · 6 replies
  • Hello! I've been lurking around for a couple weeks reading your amazing, supportive, inspiring, and informative communications. Looking forward to the conference in July. I just posted my profile if you ...

New Immunotherapy medicine MPDL3280A

yongmu
  • By yongmu · Posted yesterday at 10:49 am
  • Discussion in Clinical trials · 2 replies
  • Hi, Anyone familiar with MPDL3280A from Genentech (a subsidiary company of Roche)? Or anyone already in its clinical trial? See the article below for more details about it. If that's real, it's promising ...

!!Today, Friday 5/17, Gyn-Onc Discusses OVCA/Jolie Story!!

Laurel-J
  • By Laurel-J · Posted yesterday at 10:39 am
  • Discussion in Advocacy · 1 reply
  • Dr Mike Janicek, gynecologic oncologist will address ovarian cancer issues and risks for BRCA+ families on Breast Cancer Answers Social Media Show. Tune in to learn what the media failed to make clear ...

Hipec

CHERADAY
  • By CHERADAY · Posted yesterday at 9:46 am
  • Journal · 1 reply
  • I wanted to get started on my journal about Hipec to hopefully in courage others, if this is for you. Of course my appointment with my surgeon Dr. Boutros (Chief surgeon at Baltimore /Washington Hospital ...

CA125 from 6 - 3 and Met a women 13 years healed

Prostripe
  • By Prostripe · Posted yesterday at 9:42 am
  • Journal · 3 replies
  • I am 19 months NED and just went to my doc. My CA125 was steady at 6 for 6 months. This time it is a 3. I had been praying for a 3 specifically, and God answered my prayer it is amazing. I am healthy ...

Wicking sheets - any suggestions?

SandySTL
  • By SandySTL · Posted yesterday at 7:20 am
  • Discussion in Newly diagnosed · 12 replies
  • Surgery 4 weeks ago. Chemo started Wed. Hot flashes kicked up to every hour and 1/2 at night. Researching wicking sheets online and haven't seen many great reviews. Does anyone have an recommendations ...

worried

skusnir
  • By skusnir · Posted May 16, 2013
  • Journal · 3 replies
  • Back in Feb 2012 I had a total hysterectomy but the ovaries and tubes were left due to menorrahgia. Had to go back in three seprate times for a hematoma in the vault. Back in April 2012 I had another ...

BRAC1 BRAC2, NYTIMES ARTICLE VOTE IN JUNE

Fndian
  • By Fndian · Posted May 16, 2013
  • Discussion in Advocacy · 6 replies
  • JUDITH M. WALLACE New York, May 14, 2013 To the Editor: Angelina Jolie’s courageous Op-Ed essay highlights that many women face serious obstacles when seeking genetic testing and preventive treatment ...

Celebrated 10 Years on May 5, 2013

1TuffCookie
  • By 1TuffCookie · Posted May 16, 2013
  • Journal · 17 replies
  • I still remember that day like yesterday, anyone who has been told they have the "BIG C" usually does. This experience has been a blessing, because I feel cancer made me a better person. Life is a precious ...

Footprints in the Sand Poem

1TuffCookie
  • By 1TuffCookie · Posted May 16, 2013
  • Journal · 1 reply
  • Footprints in the Sand One night I dreamed I was walking along the beach with the Lord. Many scenes from my life flashed across the sky. In each scene I noticed footprints in the sand. Sometimes there ...

BRCA and melanoma?

BartersIsland
  • By BartersIsland · Posted May 16, 2013
  • Discussion in Research · 2 replies
  • I have had melonomas two times, but no family history of breast, ovarian or colorectal cancer and am not Ashkenazi Jewish. I was surprised when one gyn oncologist suggested that if I were her patient ...

where did i land?

paintergal
  • By paintergal · Posted May 16, 2013
  • Discussion in What, me worry? · 6 replies
  • So Ive been off chemo for 6 mos, but my ca 125 is 59. Yes thats abnormal, and my scans has blips, scars, nodules, but nothing is growing. Nobody seems to know where I stand. I should be happy, and believe ...

Can men carry, transmit & suffer the Braca gene

Bogdan
  • By Bogdan · Posted May 16, 2013
  • Discussion in Research · 12 replies
  • I'm under the impression that the Braca gene can be carried and transmitted by a female or male and that both have an increased chance of a variety of cancers. Am I right ...

NED

kpanta
  • By kpanta · Posted May 16, 2013
  • Discussion in Good news · 4 replies
  • Hello All .. just wanted to let you know that there was NED from my TAH BOO .. so I am staged at 1A, Grade 1 .. so no chemo or radiation required .. go back to oncol in 4 months and will continue for ...

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OCNA: Get ready for picnics and days at the beach with an @OCNA tote. Each purchase helps support our work. http://t.co/PlFNPYXArv

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OCNA: Quick fact: September has been recognized by the President as National Ovarian Cancer Awareness Month every year since 1999

OCNA: RT @Sebelius: @OCNA Women should talk to their doctor about genetic testing and inherited risk. #ACA covers genetic counseling for some wom…

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