Those who are waiting for your cancer to return....

I am always saddened when I see someone who has just finished chemo and /or radiation and their counts are like way down and then they appear to be in this waiting game. I just wish to tell all of you that life should not be this waiting game; you are to enjoy every day that you life is seemingly cancer free. I know, easier said than done; but at least try. Love everyone in your life that is good to you warmly and appreciate all that others do for you. Anyone who is just sitting around waiting and being frightened by your remission? I know it's very worrisome; I've been there before. Perhaps you are suffering from severe anxiety (Ativan works excellent for anxiety and insomnia); you might also want to get on some sort of an antidepressant; they really work to make you forget about this total freaking scare and boy I know every cancer diagnosis is a freaking scare; it's downright close to Post Traumatic in that your life changes to a 180! Am I right or am I right? Better yet; get your self a dog and if you are afraid that dog might die before you do, adopt a senior. Pets seem to make that scary feeling of remission go away; they force you to go outside and to exercise and to love!)

Well I'm still alive and kicking; I'm still on Hospice care. In fact they might have to take me off hospice care in March. I'm kinda scared about that, but I'm still enjoying each day as if it were my last; enjoying and realizing what's happening in every moment; enjoying my nap and my gorgeous pets; my lovely friends, and of course the cheese to my Pizza; my honey!)

I had been told many times that I would already be dead now; I have the most scariest tumor on my right side and I'm not going to let it scare me. It's my angel wing. Here is a photo of me smoking pot to relieve cancer related pain and nausea and heart burn. I'm on worse drugs than that; don't worry; Delaudid and Methadone. Now those are no more dangerous than pot! NO ONE can argue that as a fact!) Pot does work for me. I can't swallow anything anymore; I mean I can but it comes out with in 15 minutes. I vomit all the time and I'm at the stage of dying where I am supposed to loose my appetite but I still pig out and puke. No I don't have anorexia or bulimia. I sure the hell look like it; perhaps this photo can help prevent those stupid diseases?

This is link from Facebook and the second from my blog. I feel this photo needs to be seen as pure shock value if anything. My apologies if my post has offended anyone.

http://www.facebook.com/photo.php?pid=6203023&l=fe144a56cb&id=547471657

And this from my blog:

http://1.bp.blogspot.com/_Ls_2tLbc1EM/TS3gHIK1rYI/AAAAAAAAC_I/EfRWP2NkZCw/s 1600/36TJ1799_Edit.jpg

Well back to me looking anorexic or bulimic or just doing that sick bulimic shit that I do. I just freaking love to eat food and just can't help myself. I really am supposed to loose my appetite soon and have waiting for that to happen anyway now and just everything every day that it's not happening. I do want my last days to be spent pigging out on great food; I'm used to the throwing up!.

Anyway I wish all of you the very best and long remissions and so the hell what if the cancer comes back; you are still alive; some of your body parts are still working, enjoy those chemo breaks for what they are; its no big deal! The cancer might be here to stay as if was in my case or it could go away. There lots of mysteries in life and you got to appreciate them!)
Love always,
Jayne
http://shoppingkharma.blogspot.com

Edited January 19, 2011 at 3:31 pm

68 replies   

Thanks, Jayne for sharing your upbeat message! It's better to enjoy each day and take it as it comes rather than wait in anxiety for the future. You are a beautiful woman.

Hi Jayne:
Thanks so much for the post. I just sent someone a private message rather than ruffle feathers about worrying about recurrence while just finishing chemo.
You brought great insight into my life with your words, reinforcing my feelings, andI want to thank you so much for sharing your life.
Love and hugs,
Ellen

Jayne,

I have shared some of your photos on my FB profile but I have to say that all I can see is the beauty in your face. Bless you my friend.

Bob

Bless you, Jayne. You are so right. We should not just sit around and wait for the "other shoe to drop." We should live each moment to the fullest. No one knows what tomorrow holds. I choose to get busy living.

Thank you for your post, beautiful one.

Norma

Beautiful! Inspiring! Amazing!

Anne

Jayne -

You are beautiful. Thank you for generously sharing your courageous journey.

Much love,
Brandi

Jayne, thanks for this. I was able to set aside much of my fear awhile back, after seeing my gyn/onc for some abdominal pain. A CT was ordered and it turned out I was full of shit. Literally. Some additional fiber foods and lemon juice in the morning fixed that. But it was then that I realized until I had evidence to the contrary, I was cancer free and the best way to treasure that was to live my life looking forward with an appreciation for the day at hand.

Your hair looks great in your photo! I have a thing about hair--so glad mine's back!

Love to you.
Lisa

You are beautiful Jayne! Thanks for this inspiring and much needed message.
Stephanie

How it is you manage to find the strength to do what you do, and look gorgeous as well, is simply astounding. Please continue to inspire!

Jayne, you rock, and keep on rockin'. You're an inspiration for all of us.

Thank You Jayne. You are an inspiration.
Judy

Jayne, you are an inspiration to us all. My heart goes out to you. Love, Kat

I find you an inspiration. Thank you for sharing so much with all of us. The love and gratitude you express regarding your "honey" is truly a shining light on two wonderful people. May you continue your journey in comfort and without pain.

You are an amazing beautiful woman. I know that everyone on this earth has a purpose, and I feel that our cancer has a purpose, for me it's been an eye opener. I think I've slowed down and learned how to really enjoy life now more after my diagnosis. The little things don't bother me as much anymore, the dust bunnies are definitely multiplying like rabbits (lol).

Thanks so much for sharing your story with us and I expect to hear many more to come from you.

Hugs, Jeni

Hi Jayne
I have been reading your blog for the last few months and I am amazed at your attitude and what you are/have gone through. You are one brave women and I love the photos.
Jenny

Beautifully said Jayne! You are a remarkable woman. Keep your strong attitude.

Dear Jayne,

You are one amazing human being! Your advice and honesty is a wake up call...thank you so much!
If there is anyone who can give advice about this disease it's you.

You continue to be such an inspiration to not only us but you should actually be a spokes person for this disease...well, you already are.

I pray your hospice will not be taken away in March. Why would this happen? I can only speak for myself, but I think ALL of us find YOU and "your cheese" two unbelievably inspiring, courageous, loving people.

You are Beautiful and oh so honest! Thank you once again Jayne!

With love,
Bobbie

Simply beautiful..

Wow! Thank you all for your warm replies. As for why they could take me off hospice, I could be healed but not so; I was approved for another 6 months on hospice so I'm not getting better as the cancer continues to grow; I continue to live with it enjoying everyday I have; some days are hard and some days I have a blast! Some days are spent in bed and some I finish chores around the house. It's the little things that make me smile all the more! I can't take anything for granted; my heart is filled with love for everyone in my life.
Peace and love to all of you,
Jayne

You are beautiful...

A Simple Day (by Fion Lim)
To wake up in the morning, knowing you're still alive, 
To know you have a choice each day, starting afresh, 
To find joy in everyday, acknowledging simple pleasures,
To live in the present moment, engaging your awareness,
To count the blessings in life, believing abundance abounds,
To enjoy the work you do, following your passion, 
To make a little difference, adding to the universe, 
To be what you are, listening to your inner being,
To give away love, rejoicing in the chance to give, 
To receive love with gratitude, feeling good about it,
To smile at strangers, seeing how infectious it can be,
To speak words of kindness, spreading a little warmth, 
To understand with compassion, opening up your mind,
To play with children, nurturing your inner child,
To appreciate the nature, soaking up all the beauty,
To feel the warmth of the sun, glowing upon your skin,
To listen to the falling rain, pattering on the grounds
To taste the richness of food, sliding down your throat,
To smell the freshness of air, filling up your lungs,
To see the falling night, concluding a well-lived day, 
That's life, that's living,
That's the core of what really matters... 
And if I've missed out anything,
Please let love make up for all of it.

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