Terrible pain in Tailbone

I am 44, slim, exercised, rarely eat meat or fat, had my daughter young (with 22), breastfead, had my tubes tied with 30, and still, now I am one of you.
My symptons since middle of October 2008 where pain on my tailbone and pain in my colon. My doctor tested for coloncancer, and it came back negativ. The pain wasnt so bad, so I waited a while. On December 8,2008 it was really bad, and the pain was now over the whole abdomen. My doctor did not even check my stomach, just gave me a referral for a coloscopy. I thought I check with my gyn first, and on the same day, she made an ultrasound and found water in the stomach and sent me to the hospital, thinking it might be my appendix. In the hospital they could see that there was something wrong with my ovary, and that they would have to remove it. No problem. A few hours later they tell me that the CA125 is higher and there is a possibility of cancer. Shock. But its not sure, so I dont believe it yet. Next day, I remember waking up in intensive care after 8 hours of surgery. Every possible part of my body seems do be full of cancer. Spent 1 week in intensive care, with water in lungs and high fevers, then 2 more weeks at regular ward. Spent Chrismas in hospital. I will start Chemo next week. My big problem is this: I had a tumor on the colon, so they took out part of the colon and sewed it together almost at the end. Ever since the painmedication from intensive care wore off, I have terrible pressure pain on my tailbone, and I am screaming when I have regular bowel movements. I can not even relieve me of gas without pain. It is like having a child, the head of the baby puts pressure on the tailbone before birth, but it doesnt come out yet. It is awfull, and every day for hours. My doctors said it could be some pinched nerves, and the pain when having bowel movements could be from the stitches, right at the end of the colon. I take laxatives, but some days, they just dont work. It is no problem, when I have diarrhia, but then I am using the bathroom 4 hours, and am exhausted, which isnt to good, when I am supposed to have regained my strenght for the Chemo next week. Did anyone have the same pain, before and after surgery. I am at the point, where I am already willing to give up, because I do not want to live with this pain for much longer. (Imagine, having a baby every day). I finally found a painkiller yesterday that helped, but it was still painful. Please, anyone, give me good news, that this will go away? Thanks

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You poor thing! I feel so bad for you! You've already been through so much, and are suffering so! I had some pain after my surgery with bowel movements for awhile but not as bad as your pain...I didn't have any surgery on my colon, tho, either. Maybe some of my sisters here can help you with that...I just wanted to let you know we're all here for you....and that I'm praying for you...hang in there! God bless!

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I am so sorry you are having so much pain and difficulty. I did not have colon involvement but did have kidney failure. I was very sick during this time and I would never have believed that I would be feeling better but I did. Try not to despair and give up. Your body has been through alot with the extensive surgery you have been through and as it heals the pain is likely to decrease and maybe eventually go away. Keep taking pain medication if that helps to get you through. My motto was whatever it takes to get me through. I took a tranquilizer occasionally and pain killers when I needed them and I did not get addicted. When your body needs it for pain you are not likely to get addicted. I pray your pain will subside as you begin to heal. Just remember your daughter needs her mother and that is worth keeping up the fight. That is what kept me fighting. There are bound to be others who experienced something similar so hang on and within time someone with a similar experience is likely to post something helpful. God bless you.

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I had part of my colon removed. The cancer was not in the colon, but on the outside. I had primary peritoneal. I had a lot of trouble with bowel movements, but not the pain you are having. When you take pain killers, your stool is usually harder and you can be constipated. Miralax worked well. My surgery was 2 1/2 years and I still take stool softeners. Don't give up. Ask for more pain medicines. If it does not get better, ask the doctors to see what is causing the pain.

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I can totaly relate!!! One month after my debulking I was in tears everytime I went to the bathroom, doubled up, couldn't pass gas either without the pain, finally stopped eating and ended up in the emergency room, scar tissue had grown so fast it flipped out my doctor, it grew on top of my intestines and was crushing them, 8 hours of surgery, ICU for 5 days and 2 weeks in the hospital, finally relief!!!! Push your doctor for answers, scar tissue is not your friend, my docs thought it was the 1st round of my chemo that made ot grow faster, but who knows, just keep pushing for answers, after my second surgery for scare tissue and because my cancer had spread more ( one year later), they finally put a mesh over my intestines so the scar tissue cannot adhere, I pray that will be the end of it. I know this sounds awful, but it can and should be fixed ASAP. I feel for you and my prayers are with you, keep up the pain meds and stool softners. We are all here for you.

Pam

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This may be a long shot but many years ago I had a rectal fissure. Having a bowel movement was so painful. I had horrible spasams for about 2-3 hours after each bowel movement. I would feel like I needed to sit on a hard surface until they went away. I put up with it for months and then finally had surgery to correct it and that did the trick. It was hard to believe such a small tear could cause the pain it did. I dreaded having to go to the bathroom each day because I knew I had hours of pain ahead of me. Good luck to you. Hope you figure this out soon.

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Hello and greetings from Prague.
My physical history is similar to yours and I am about to consult yet another specialist here regarding the same symptoms you had initally experienced. Several years ago I had an entire GI series conducted...sonograms, MRI, tube/camera down throat as well as up through rectrum region ... to try and find a "pathway" to the pain and discomfort. The only resultant finding was that the small and large intestine (when meeting) had a proliferation of scaring tissue fissuring out into a finger like projection which was causing sluggish bowel. The doctor stated that such may have been caused by an accident or perhaps it was just genetic. An accident was ruled out. She did not think it wise to operate at that time because that year I was recovering from a brain operation in which a small non-malignant tumor was removed. For the past 4 years I have extended my diet to include additional fiber and increased my workouts...but the condition has not changed. Bowel movements have been irregular and often followed by massive pain in the lower abdominal area. Within the month I have been experiencing a very sharp pain in my tail bone (coxxyl) region when I step downward...whether it be simple like stepping down my stairs or off the tram which I catch to and from work. The pain is only related to this very love tailbone region and only when my body is placing its weight downward and not upward ... but the pain is excruciating. If I would take a laxitive the pain would decrease...but I haven't done this in week because I do not want to become dependent on such. I teach school and am on my feet all the time....but when I step down the stairs at school I feel that I am nearly unable to due to the pain and am finding myself holding carefully to the bannister. My grandfather died of colon cancer and my aunt of cervix cancer. Do you think that any of these symptoms could be related to such a predisposion of inherited genetics? I realize you are not a medical specialist by trade.... but just wanted your input before I seek one of such whose trade is often without the true "living experience". Please feel free to contact me at your earliest convenience. In the interval I will have you in my prayers and heart. Sincerely, VKT from Prague, Czech Republic, Europe (EU)

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Dear Veron,
it seems that my pain came from my ovarian cancer, that had spread to the colon. My post is one year old now, and after a while it started getting better. I think it was pretty good by February 2009, and now I only have a small problem when I am constipated, but not compatible to earlier. Of course I can not tell you or speculate why you are having these pains. But I am confident it doesnt have to be cancer. However it doesnt hurt to get checked out, which I strongly suggest. My symptoms for ovarian cancer were extreme constipation and the pain in the tailbone. Doesnt mean its always cancer.
Hope that you doctors can find out whats wrong.
Manuela

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