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Hi I was wondering if any of the ladies out there with borderline stage Ia has had recurrence?
I have a lump in my groin and I am kind of scared, but I am not even sure whether borderline spreads in lymphnodes... I remember the doctor saying something like it doesn't spread through blood or nodes, just by continuity and that's what made it behave differently from cancer, as it didn't have the ability to metastasize.
Cancer Premarin Taxol Surgery Pregnancy Pain Menopause Infertility
This is NCI info on borderline tumors:
http://cancerweb.ncl.ac.uk/cancernet/104155.html
Dear Shamrock,
thanks for you reply, but I was looking for a more personal insight, from personal experiences, rather than technical stuff. If anyone can help, I am thankful!
Hey Rikku,
I have had reoccurance from borderline but on my utuerus where is was burnt off the first time around..I don't beleive it can spread via the lymph nodes...
are you having the lump checked?
what stage bordeline were you? I am 3A
I was Ia when I was operated. My appointment is on November. I'll let you know about the lump. On the meantime on the phone the GYN told me its probably nothing since inguinal nodes drain your anus and vagina which has usually a lot of bacterial flora so its normal for them sometimes to get a little lumpier.
I was first diagnosed with Borderline Ovarian Tumors in August, 2008. It was discovered when I was undergoing infertility testing. At the end of August, the tumors were removed. They were staged at 2. My oncologist said that typically it is rare for a recurrence, but he was very concerned that mine would recur. He gave us a year to have a baby. I'm happy to report that our little one is one month old today! :) Throughout my pregnancy my OB and oncologist were monitoring a cyst on my left ovary. In my 8th month, they discovered another cyst on my right ovary. By my 9th month, both cysts had morphed into a recurrence of Borderline Ovarian Tumors. I had a C-Section to deliver the baby and my oncologist was there to remove my ovaries as well. It was much too risky to leave them in since the tumors came back so quickly. I hope hope hope that your OB is right and that you have nothing to worry about! This has been such a heartbreaking roller coaster for me.
I am on my 2nd recurrence in 3 1/2 years - I was originally diagnosed in 1984 and mine came back in 2005 and again in 2008. Mine is now considered inoperable because the tumor has invaded my pelvic floor - My Dr. says because it is borderline that I have years ahead of me, but I have to live with this very uncomfortable tumor plus a colostomy as a result of the last surgery.
jayswife,
I am very happy for you!! It was quick to become pregnant thankfully!! You must be very proud. I think your tumor came back quickly because of all the hormones involved in pregnancy. My GYN explained to me that they think this one is more linked to oestrogen, since it occurs more in younger women and rarely in menopause. But it-s all over now, right? How are you dealing with menopause? Tough or not really? Are you taking any meds?
Kat 56,
I get so scared when I hear about theses recurrences after 15 years stories. I can‘t imagine what you’re going through - a collostomy. That must me even tougher than menopause, or anything physical related to cancer!!!! What stage were you back in 84？？
I wish all the best. Be strong dear!
Sorry for the weird symbolsbut this keyboard is chinese so.., I was meant to ask what stage were you back in 84?
Jayswife,
I think it was great that you had an oncologist there at delivery. That is my advice to anyone with borderline.
For any reason you are cut open, have an encologist standing there to do a exploratory. I too had borderline 14 years ago, stage 2. I did decide to go thru fertility before they took the cancer out. I was ahead of my time in thinking, as i went against doctors orders. I know have 2 beautiful girls age 9 and 6. they are worth every moment of the risk! Last year the cancer did come back as low grade sers. carc. I had all of the cancer removed and now i am being treated at MD Anderson with an antil estrogen hormone called Letrozole, since my cancer was over 95% estrogen receptor. They do have many patients with low grade that presently had borderline. The low grade is newly studyied, but the good news is that it has been identified as different and slow growing. Hopefully, as time passes there will be more reseach.
Like Borderline, MD Anderson research shows that low grade does not respond to chemo well. For 12 years my gyno. told me that i was out of the clear! My advice to all borderline patients is to keep following up with an encologist once a year and any small ongoing symptoms such as bloating, frequent urnination or lost of control, or small pain, make them do a CT Scan! By the way my CA125 never went above 18. After my surgery, it went down and currantly it is below 7. Keep getting checked and live your life!
I am gathering low grade patients emails outside of this website. If your are interested, email youngl@sosstaffing.com
Hi everyone! Just came from the appointment. The node was nothing thankfully.
I also asked my doctor about recurrence and he said it is impossible for borderline to recur as cancer. He said that it is possible that I will have cancer but it's two independent unrelated events.
Hugs
Rikku,
You said your doctor says it's possible that you will get cancer but that it would not be related to the borderline. Does he say this because it is possible for anyone to get cancer or more so because you had a borderline tumor? Does he think you are at higher risk of getting cancer because of the borderline tumor? I was diagnosed with serous borderline tumor in April 2008.
YES YES YES I have had recurrence from borderline. Originally in 2001, doctors told me that if it did come back, it would be 20 years down the road. My borderline came back in 4 years; back in 2001 the statistics were 3 out of 1,000 women will have a recurrence; I'm not sure what the stats are now.
It morphed into a low grade ovca. I have had major surgery with IP/IV cisplatin and taxol; went into remission for a year, it came back ...had carboplatin/taxol, went on chemo holiday after 7 months, during which I was on tamoxafen because it was hormone receptive. (They gave me premarin in 2001 for awhile then vivelle dot and I took it until my recurrence...duh) now I'm on doxal with lesions in my abdomen. I'm hoping for new drugs in the future to help!! I was able to retire; I worked for the schools for 20 years. Now I work here and there on the clerical substitute list. When my borderline cancer recurred, it manifested itself with ascites; so if you feel bloated at all get that checked out. I had to give up my beloved horse and go thru these treatments and expenses (even with insurance it's pricey)
packerfan: He told me that if you have implants when your borderline is Dx you do have a higher probability, not of having a new cancer, but of some of the implants being actually cancer, and later recurring as cancer. Since you don't analyze all the implants you'll never know. If it is confined to the ovary you don't.
about recurrence in borderline he told me the same implant story, it usually recurs in women who had implants, peritoneal washing positive for cells, or in whom the tumor spills during surgery. otherwise if it is confined to the ovary it doesn't recur. He told me that obviously I can get a new one on the other ovary, just as any "normal" woman can.
Rikku -- your doctor seems to be up on the latest regarding borderline tumors. Many women post that they were borderline, but there are 5 or 6 different kinds of borderline tumors. It matters which kind you had, and what the stage was, and whether or not you had your ovaries taken out.
Since you were 1a, your doctor is right on the money. My doctor also told me that unless you had a borderline Micropapillary serous tumor, which most doctors don't consider borderline anymore, and you don't have invasive implants, the chance of recurrence is low, and when it happens, surgery is once again the answer.
Good luck!
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