I have just been told I'm recurring after 5-1/2 months, which means I'm platinum resistant. I'm told my chemo options are limited, as well as the chances for another remission are diminished.
Is anyone here on the board that can give me some kind of hope? Anyone platinum resistant and hopefully gone back into remission with something else? If not, what is your life like now, really? (as far as how constant are your treatments, how controlled is your cancer). I am literally shaking in my shoes with this news. I don't even have to tell you what a nightmare this is because you all were here before me and have been through just as much and more -- and I'm sure you all fully know well just how absolutely, unbelievably, much, this sucks.
The docs are discussing (amongst themselves) a regimen for me which I believe will be weekly chemo (Taxol) combined with something else. They are also looking at Avastin if insurance covers it, other options - Gemzar, topetecan (sp), doxirubicin (sp), etc.
My doc asked me to read through them all and become familiar with them because he wants me to be involved with the decision making as well (instead of him just telling me what to do). He will lay out the pros and cons of all. From my understanding, there apparently is no "standard of care" for platinum resistance, it's basically try this one to see if it works and if not, move on.
I'd like to hear real life situations. I'm bracing myself, lay it on me straight out, please.... I wanna know everything... thanks...