OC moved to bladder and pelvic floor

I have just recently been told the OVC has taken up residence in the lining, inside and out, of my bladder. Also, it found a home on the floor of my pelvic. My DR said the only way to treat is to do chem. So, that is what I am doing. But he also recommended I get a second opinion. Today, I begin that journey. First to my normal cancer center for a PET Scan. We will stay there for the night because we live so far away and we have to be at Duke Medical Hospital Thur at 8 AM to see the Dr for the second opinion. Please pray for us. Has any one had this happen to them? I am up and down all night going to the bathroom. Rest, good rest, is something I haven't had in a very long time. It also makes my hips and legs hurt..I feel like I am in this all alone. My husband is the greatest. Always positive and taking care of things. But he holds a lot in. Sometimes I just need someone to cry with. So. if any one out there understands or has some helpful words.....pass with on to me. Thanks

By katelynsmamaw
Posted May 26, 2009 at 12:33 pm
Report post

Bless your heart. I am so sorry.First of all, you are not alone. We're all here for you. You know you can always cry here if you need to. Sometimes a real good cry can make you feel better. Is this your first recurrence? ......Its like the husbands don't ever want to admit how bad it could be sometimes. I guess they feel helpless that there is nothing they can do to stop it. Maybe after your second opinion you can get more answers. Sorry I can't offer much help on your condition but I'm here to listen if you need to talk.

By dollycat6
Posted May 27, 2009 at 11:00 am
Report post

I am so sorry to hear of this bad news happening to you. Is there anything they can do to help you not having to get up so many times to go to the bathroom? Does this happen all day also? Do you have baldder spasm or pain in the low abdominal area? What signs first brought this to your attention? I am curious as I have been having a rash of UTI and bladder spasm at times wondering if cancer has invaded my bladder also. Please feel free to let us know how you are doing and if there's anything I can do for you besides prayer which is on the top of
my list. we are and always will be here to listen to whatever you need and a shoulder to cry on one is always within reach.

dollycat6

By dollycat6
Posted May 27, 2009 at 11:06 am
Report post

Dodi how has LGMD affected you ? I had not heard of this disorder and noticed it on your profile. How are you doing and is your cancer in remission?

dollycat6

By Layalalulu
Posted May 27, 2009 at 11:21 am
Report post

Hi Dodi, I will keep you in my prayers and understand what you are going through.I will light a candle at church for you next visit .You are loved and we care, Big Hugs ,Liz

By Eileen1941
Posted May 27, 2009 at 12:35 pm
Report post

Hi 8yearsandcountine,

I am so sorry to hear about your recurrence. I hope that your second opinion will give you some additional options and that you will soon be back in remission.

I also have cancer recurrence in my pelvis but mine is on the pelvic wall and wrapped around my bowel. I also have a lot of pelvic pressure and need to spend a lot of time in the bathroom. I am on a chemo holiday for 2 months now as the disease has been stable and I needed a rest from the chemo. I hope that they can come up with a treatment plan that will wipe out your cancer again and soon! You are in my thoughts and prayers!! Please keep us up to date on what you find out. Eileen

Welcome to Inspire!

Explore topics in this discussion:

6 replies

Add to the discussion

OCNA on Twitter

Group leaders

You