I would be interested in everyone's experiences with L-Carnitine for neuropathy that remained after completing chemo. My doctor agreed today that it wouldn't be a problem to try it. Has any one else used it for residual neuropathy? If so, what results did you have? How much did you take?
If I'd known last May what I know now, I would have asked about using glutamine to help prevent neuropathy during chemo, but from what I've read, it seems like that doesn't do much once you've already developed it? Interested in anyone's experiences with that after the fact, too.
My chemo was 6 cycles of IP Cisplatin and IV Taxotere. Last cycle was August 2010, and I'm still on Avastin every 3 weeks until end of July. The neuropathy in my hands is much better now, but my feet are more of a problem. Left foot is still quite numb, with some pain, and, although the right foot isn't as numb as before, now it sends random (painful) imaginary signals to my brain. I have gabapentin (neurontin), but it makes my head fuzzy, so I don't always take it.
I am very grateful to be alive and so far NED, but if there's something that can be done to make life a little more normal again, I am happy to give it a try.
Thanks for any advice you can give!