Hi there - We are in Northampton in England. My dear wife Christine is 58 and has Peritoneal stage 4 - diagnosed in October 08. Had good initial chemo response from carbo/taxol & ca down to 20 from 284. However now is back to 173 - she has had two ascites and the hospital are looking to start 2nd round of chemo very soon. This will be carbo/Caelyx & she has also been asked to take part in a trial which includes CEDIRANIB as well.
Question one - has anyone on here ever had this drug ?
Question Two - There is a hospital in Salem - Wake Forest - offering an operation called I.P.H.C. They have apparently performed over seven thousand of these and their website claims they can "add years of good quality life to patients for whom there was previously no hope" - end of quote.
Has anyone heard of this hospital, had this operation or been treated by them at all ?
Any information would be VERY helpful as we need to make adecision on treatment early next week. If these people are good we are quite prepared to travel over to Salem to see them.
Thanks eveyone, Roger
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KNOWLEDGE NEEDED
- By Executive
- Posted November 6, 2009 at 11:56 am · 4 replies
- In Clinical trials
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- By jeaniet
- Posted November 6, 2009 at 12:00 pm
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Don't know what Caelyx is----does it have a different name here?
I think you are referring to what we call "shake and bake." I don't know much other than it is hard.
There are a couple of women on here who have done it, so if they don't see this thread, try posting a discussion titled I.P.H.C and maybe they'll see it.
Hang in there!
Jeanie
- By Executive
- Posted November 6, 2009 at 4:25 pm
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Thanks Jeanie - I will try that, Rog x
- By sbender3
- Posted November 7, 2009 at 12:16 pm
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your wife needs avastin, i had to be drained 28 times from jan of 2008 until sept of 2009. since i have been on avastin, i have not needed to be drained, and my ca125 has been cut in half. i was on navelbene for almost a year, all thru 2008, it did help somewhat, and legnthened the time between drainings. but i have been so happy with avastin, no sickness, half hour treatment, no fluid. since you have governement run healthcare, you may not be able to get it. i pray you can, ask your doctor. women are living on avastin for a good long time, and people have gotten remissions. they approve it for breast, colon, brain cancers, and clinicals are done for ovarian, but in us we can get it, medicare covers it here. best wishes, god bless, sherry
- By Executive
- Posted November 7, 2009 at 7:12 pm
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Sherry - thank so very much for your reply - you confirm the reports I have heard on Avastin. Over here in the U.K. everything is controlled by the National Health Service under Primary Care Trusts. Avastin is not standard but in HAS been given in certain circumstances and I will be raising this in our meeting at the Royal Marsden Hospital on Monday.
Very many thanks for your concern, Sincere regards to you - Roger.
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