illiostomie help

• By TerriF
• Posted November 6, 2009 at 7:52 am
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Hi,

I had a temporary ileostomy. How often is her bag leaking? I had a real problem with the bags leaking too, but my skin didn't get too irritated. I had some kind of powder for my skin -- can't remember the name of it. I would suggest you call the company that provides her supplies -- bags, stoma paste, etc. They were so helpful to me. There was always someone to talk to who was very knowledgeable. I also had a nurse at the hospital who I could call who specialized in this. I also had a visiting nurse who specialized in this. I too felt like a prisoner in my home. I did go out, but not for long periods of time. I had accidents when out where the bag leaked. Do you change her bags? My husband always did mine. Please let me know if you have any more questions. Good luck!

Terri

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• By Cactacat
• Posted November 6, 2009 at 8:17 am
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I agree with TerriF. You need to get in touch with the ostomy nurses at the hospital. Mine were very helpful when I got my colonstomy. I think the powder you referred to is Stomahesive. It is used to put a protective barrier on the raw spots. Fortunately I've never had any major problems with my ostomy.

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• By gt4pack
• Posted November 6, 2009 at 8:26 am
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The convex wafers worked when we first started using them but after the first 2 they would last less and less time now they don't last an hour or more and we have had to change them so often that the skin has become raw from the glue and cleaner. Now the skin is so bad they won't stick at all, we have a call in to an ostomy nurse to hopefully help us today this is very frustrating. Because her stoma does not stick out above her skin it allows the stomach acid behind the wafer and it eats through the glue very quickly and the acid also eats at her skin.

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• By gt4pack
• Posted November 6, 2009 at 8:28 am
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we do have the powder but it does not seem to help now that it has gotten this bad when the bags were working the skin was not an issue.

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• By melaniesgrandma
• Posted November 6, 2009 at 9:34 am
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Hi, I also had an illeostomy due to a resection and the skin had become so excoriated and painful because the acids burnt the good skin around the stoma. My husband researched constantly until he found an alcohol free skin prep/ protectant that he used on the bad skin just before applying the wafer with a stoma paste that contained less alcohol. I would cry in pain whenever it leaked and had to be changed which was so often. He had researched so much to help me find relief. We also got the clear bags so he could attach the bag just before applying the wafer to the skin. I had suffered so long before we finally figured it all out. The stingfree latex free skin preps really helped. The company name is Derma Rite. The phone # 1-800-337-6296. We got our ostomy supplies from convaTec ostomy care, 1-800-422-8811 but not the skin prep. I would be more than happy to send you a bunch of skin preps because I have them still. My illeostomy was reversed, thank God. I just wouldn't know how to get your address. Just let me know and maybe you could email me or I could call you? Just hope this information will help you. I will be praying for you. God Bless

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• By Teresalynne
• Posted November 6, 2009 at 10:35 am
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I had to change companies from Convex to Hollister as I had an innie rather than an outie too...I recommend you call the doctor or nurse and tell them something had to be done as your wife was a prisoner in her own home. I got so depressed for about a month. I finally sent pictures of my stoma to my doctor and told her something had to be done and I met with her and with with my bag and did not clean it so they could see what I was talking about that the feces was coming out from under the bad instead of going staraight into the bag...finally made believers out of them and they got me contected with Hollister and I use their wafers to helf seal the bag too...they have been working great for me. Good luck...it can really work on your nerves and things can be fixed just stay after them.
Teresa

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• By gt4pack
• Posted November 6, 2009 at 12:13 pm
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We just met with the ostomy nurse and in the 45 minutes it took for me to drive back to work my wife called in tears to say that it is leaking again already. Of course the doctor is not in today and the weekend won't help matters, we are using the hollister convex wafers but there is just no way to keep the acid from getting behind it. I feel so bad for her and So helpless to do anything for her.

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• By moey
• Posted November 6, 2009 at 5:02 pm
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HI, I had the exact same problem. The home health nurses could not help me although they tried . I went to the Dr. and I was very upset & I told him my problem and he said before he ever looked at the stoma "YOU NEED CONVEXITY WITH A BELT" I had no idea what he was talking about . I found out I needed a device that was alike a plastic frame that went around the stoma made it pop out enough so it drained into a bag. I had to put stoma adhesive powder on my raw skin , I used a paste and I also used some wafer .It all went down first then the frame thing, there are loops on the sides of the frame that connect to the belt which make the stoma stick out more.I got my supplies from BYRAM HEALTH CARE . You can check them out on line .I hope this helps I remember thinking I would go crazy over the stoma . I was 3 c too and I got it reversed after 7 very long months . I pray you will too

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• By Arby
• Posted November 7, 2009 at 7:49 pm
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So sorry to hear about your wife's pain--been there too! Right now my skin has cleared up pretty much (touch wood), but I still get irritations. My husband also felt so bad when he was changing my bag and I was in so much pain.

What worked for us was Hollister's 2 piece system-#14802for the skin barrier, #18003 for the pouch. He moulds an Eakin Chohesive Seal to the back of the barrier building it up on the one side where I seem to have a valley in my skin before he places it on my stoma. The hardest part is the timing and trying to keep it dry when applying it. We use alcohol free spray skin prep, wipe that alittle then apply Nystatin powder(prescription). When my skin is really bad, he puts the skin prep, dries it a little, then Bactroban cream(prescription) very thinly, then powder, blow off the excess, use hair dryer(air only) to dry the area and then use low setting to warm the skin barrier before applying it. Press down all around the outside of the stoma in the skin barrier and have your wife hold her warm hand on it for a few minutes to help get the seal. We do this procedure the very first thing in the morning before I start moving around and we do it every other day. I would love to be able to go longer as I hear some people keep their seal for 5 or 6 days, but I'm afraid to not change it and end up back where I was with all the pain and leaking. Good luck I hope some of this info will help you. Oh, I almost forgot--once I started wearing a belt that hooks onto my bag it really helped to keep the seal.

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• By Arby
• Posted November 7, 2009 at 8:00 pm
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For lots of answers regarding ostomies go to the support web site for ostomates--C3Life.com it's very helpful!

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