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Always hope my friends. I am going on 13 years now. Stg. 4. No recurrence to date.
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Hello there!
- By wolfi
- Posted October 6, 2008 at 11:55 pm · 21 replies
- In Survivor stories
- Shared with the public
Explore topics in this discussion:
Cancer Taxol Surgery Cervical cancer Breast cancer Ovarian cancer
21 replies
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- Newest first
- By thewishmaker
- Posted November 20, 2008 at 10:57 am
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Jan,
I too, am so happy to read a post from a long time survivor......during one of my treatments I was fortunate enough to sit across from a lady in her late 70's that was a 16 year survivor of stage IV also. Only now was she having a recurrance. I did ask her if she did anything differently after she was diagnosed and she replied "No, I just LIVED!"
Like you said we are not statistics.....and the one thing my onc keeps telling me is "Don't believe what you read on the internet."
S. 2569, the Ovarian Cancer Biomarker Research Act. is a bill that needs to come before the full Senate. Please contact your Representative.....take the time to do this ladies we owe it to our daughters, neices, granddaughters and girlfriends and for every woman who is sitting in her doctors office right now hearing those words we've all heard....."you have ovarian cancer" Just google S.2569 bill and you'll find the info on it. Below is the response I received from Senator Coker of Tennessee. We have to speak up and be heard like those breast CA women have done. And like we all know.....if it weren't for ovaries there'd be no breasts!!!
Dear Ms. Hime,
Thank you for taking the time to contact my office about S. 2569, the Ovarian Cancer Biomarker Research Act. Your input is important to me, and I appreciate the time you took to share your thoughts.
My heart goes out to the women suffering from ovarian cancer, and I certainly understand the need for a reliable screening test for this tragic disease. Early detection is essential for fighting any disease, and I am encouraged by the success rate for treating ovarian cancer if it is detected before spreading. Your advocacy is helping this important cause, and I appreciate the information in your letter. Should S. 2569 come before the full Senate, I will certainly keep your thoughts in mind.
Currently, I am cosponsoring two pieces of legislation aimed at helping those with cancer: S. 624, the National Breast and Cervical Cancer Early Detection Program (NBCCEDP) Reauthorization Act, and S. 597, a bill to reauthorize a special stamp that raises money for breast cancer research. S. 597 passed the Senate unanimously and was signed into law in December 2007.
Thank you again for your letter. I hope you will continue to share your thoughts with me.
Sincerely,
Bob Corker
United States Senator
Happy Thanksgiving to all!
Jenny
- By vc
- Posted November 20, 2008 at 4:17 am
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Thanks for your post. I forwarded it to my Mum who was diagnosed 3c in June 2008 and is nearing completion of chemo. Today her oncologist said that she is in remission. A 13+ year remission would be wonderful :-)
- By melf
- Posted November 17, 2008 at 12:01 am
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AWESOME! This certainly gives me hope
May you continue to be blessed!
Melissa
- By wolfi
- Posted November 16, 2008 at 11:45 pm
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Peace and blessings my friend.........Jan
- By Rose2
- Posted November 16, 2008 at 11:34 pm
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Wolfi.....I just read your reply. You are blessed indeed. I would not pick cancer for my life.....but I can honestly say I have learned much on this journey. God's grace has been sufficient and His comfort and encouragement beyond my understanding. I thank the Lord for your blessing. You are right, there is HOPE. Whether , our cancer continues or not. God is giving wisdom to the medical field, and we can all be thankful. God Bless you. And thank you for your reply to my question. ((HUGS))
- By wolfi
- Posted November 16, 2008 at 10:42 pm
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Rose 2.....I was dx. with ovarian cancer in Aug. of 1996. Stage 4. I believe tumor grade was 3. I had mets to the liver and prognosis was not good at all. But- after hesterectomy (complete) and then into chemo treatments ( 7, I think it was) mostly taxol, the tumor on the liver was shrunk down to scar tissue like. I was then cancer free and was tested every few months until about 3 or so years ago. Oncologist said no need to be checked by him any longer. I was released. Of course I see my gyn/ surgeon yearly for a going over and have a mammogram each year and all the other things one should do to try to stay healthy. No recurrence to date. who knows with this stuff ya know? I will tell you this....my oncologist did say to me that sometimes the body just begins doing the right things and you get well. Go figure. Oh sure as my primary care doctor says I could get another kind of cancer just like anyone else might. But - for now you are cancer free. I am very thankful. So........there ya have it my friend. There is always hope. I send you my best. Hugs and be well, Jan
- By Rose2
- Posted November 16, 2008 at 6:04 pm
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wolfe...What type of cancer do you have? I looked at your profile and do not see that. There is no indication whether you have ovarian cancer or are in stage 4 of another cancer. We all know the type of cancer makes a big difference in the staging. It is a blessing to hear you are doing so well. Best wishes to you and may God continue to encourage your heart as ou go thru your cancer journey.
- By wolfi
- Posted November 16, 2008 at 5:56 pm
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Here ya go...... These 3 are very good I think. Ordered through Cancer Nutrition Centers of America. Immunomax, Oximax and EPA max. I took these for a time and now take basic supements I purchase at Costco. Centrum. (multi vit) at least 1000 units of vitamin C, CoEnzyme Q10,flax or a fish oil. Vit. D as well. I also need the calcium as of recently. But you can kinda go over these and read up on them. Maybe find one or two to add to them as I have at times. Never over do . Not trying to promote any supplements here but you asked so I am just giving you an idea and as you can see these boost your immune system. That is a good thing. You need and get most of your vitamins from a good healthy diet. Elderberry is good in the cold and flu season too. Hope this helps. Be well and take care of you, Jan
- By ovagal
- Posted November 15, 2008 at 9:37 pm
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Jan,
Are there are any particular supplements that you have routinely taken over the years that you would
recommend? I take a variety of them, but am always open to recommendations.
Congratulations on your 12+ cancerversaries!
Thank you so much,
ovagal
- By CindyV
- Posted November 15, 2008 at 12:04 pm
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OMG !!! Thanks so much for sharing with us !! Everything about OVC sometimes is depressing but this is great news.. Congratulations and thank you again I'll pass this along to my mom.
Have a beatiful day everyone !!
- By mymompaulette
- Posted November 14, 2008 at 9:32 pm
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Hello,
My mom was just diagnosed with stage IIIC yesterday after debulking surgery. She is in the hospital now trying to recover while I am out searching for best treatments going forward. Thank you all for the inspiration! We need it now!
Wolfie/Jan, you mentioned that you take some supplements. Would you mind sharing what those are?
Thanks so much!
- By Dodie1
- Posted October 7, 2008 at 5:11 pm
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Congrats on your staying cancer free all of these years.
Take care & God Bless
- By wolfi
- Posted October 7, 2008 at 4:08 pm
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I guess I should have posted my name here. I think you may know me. It's me! Jan. Hey! I get around. PS. I get mixed up with screen names and real ones ya know. lol.
- By wolfi
- Posted October 7, 2008 at 4:06 pm
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Hi again ladies, I do nothing special but try to eat healthy pretty much that is and take some supplements. I want to spread hope and encouragement to all. I know all too well I needed it back when and some how did not get it. I got through it and I am very glad to still be here. Keep this in mind my friends....my oncologist told me a while back that some times the body just turns around and does the right things. What does that actually mean? Beats me. I do not think they know either. We are not statistics. Share with one another and never give up. Stay as strong as you can and try your best to stay on the lighter side. Throw that humor in as well. Got me through alot for sure. I was dx. at age 58 and I am now 72. Took the wind from my sails but I have learned how to raise them again . Not easy but we are all sisters in this and we share and care . Sharing a smile with you all here this day. Hugs and be well, Wolfi. PS. Big support hugs.
- By verlinda
- Posted October 7, 2008 at 1:29 pm
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Thanks, Wolfi,
We needed to hear that today!
Blessings,
Verlinda
- By djwaz184
- Posted October 7, 2008 at 1:00 pm
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Whatever you're doing to stay cancer-free, any tips etc....pass em on!
- By Mauralee
- Posted October 7, 2008 at 12:09 pm
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A BIG thank you, you made my day!!!! I am coming up on 1 year since diagnosis of stage 4 ovca, lets hear it for many more years for all of us!!
- By jolock2004
- Posted October 7, 2008 at 11:49 am
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That is wonderful....God Bless~~~~Joanne
- By JanJ
- Posted October 7, 2008 at 9:17 am
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Wolfi,
I can probably speak for all of us, to thank you for writing and sharing your inspiring story. We all need to hear those stories so badly! If you have any hints on what you think has helped you stay in remission, we'd probably love to hear that too!
Thanks,
Jan
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