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Hello. I am on my 3rd group of chemo drugs which now I am on Doxal. I have a spot on my liver and a couple of lesions in my abdomen (I'm sure there's more that ct scan can't pick up)
Has anyone had a good outcome using Doxal?
I was on Doxil for 8 months earlier this year, for treatment of my second recurrence. It worked for 6 months and then stopped. When it stopped, I didn't get a dramatic increase in my CA125, but it did go up and it was confirmed by a CT scan.
Some women on this site had good results and were on it for a long time, but it is an individual thing - like everything else. I wish you good luck and hope you are one of the ones who has great success with it.
Hi...I had 8 Doxil treatments first one done in January and then last done in Oct. Did a cat scan and it showed my cancer spread instead of it helpin me...Just like some people have good results from the drug but Ive seen lots of negative from Doxil than positive... But I do wish you lots of luck:)
Doxil was the only chemo I had side effects from....rashes, mouth sores. I had to drop it and go on Gemzar. May not affect you that way. Good luck.
I am on Doxil right now. I have had 5 treatments of Doxil after already having 6 months of weekly Avastin/Taxotere. I have had 9 different chemos drugs and 3 oral chemos as well. I can tell you this, the CT Scan a couple months ago said the numbers and size of my tumors had decreased. I have another CT Scan on Dec 22nd. Here is what I have to say about this chemo.....
Lots of side effects! For me the mouth sores have been the worse ever. I have about 8 sores right now. I do all the mouthwashes, paste and now on a steroid mouthwash which isn't helping either. I can't eat and I've lost 30 lbs so far. I still have another chemo to go so I don't know if I will lose more or not. I also have had the rashes, albeit only 2 times, I also have feet issues with the skin red/raw and peeling along with a few blisters. And, yes I do use the ice gloves and packs on my feet and hands. I do experience low white counts, but they haven't come up above 4 in 36 months. So..... The nausea last about 3 days along with the flushing, but that does pass and I do use my meds.
Would I do Doxil again? I was against using it and did fight my doctor because I had the assay done and this drug was the least response to my cancer. But I gave in and did it. I just have to say I WANT TO LIVE so I guess I'll do anything, even with the terrible mouth sores, and the fatigue too. Doxil may not work in the end, or the cancer return..... but I plan on trying to find the right treatment as long as I can.
Good luck to you and whatever you do.
I just realized that you are on a different chemo than I am... You are on DoxAL not DoxIL...... Well..... now you know about Doxil..... sorry.
Hi...I did not know there are 2 chemo's that sound alike. Doxil and Doxal...they told me I might get mouth sores and blisters on my hands and feet; sounds like the same drug you are on. I have only had 2 treatments; an hour transfusion every month. I'm so sorry you are going thru pain. Hang in there, ok?
hi
I suspect you have spelled it wrong. The drug you call Doxil is called Caelyx in G B.
I have just finished 6 treatments. Nothing too difficult. After 3 my CA went down to 214 from 880 last feb.
I finished on oct 12 and managed to persuade my onc to give me another CA 125 . Oncs are not keen on doing the CA any longer . So he is as horrified as I was to find the count has gone up to 840 !!!
It was intended that I should see him again in early January but I am now going to see him this Thursday.
Maybe the CA is wrong. I was rushed to hosp with a very high temperature a few days after the blood test so hopefully it is unreliable as he says.
JanPurple
Hi Jan!! I hope you are feeling better...and that you are not getting the flu.
My tumor markers are over 1,000 and the lab doesn't count them over that amount so I wonder if it's because it's a small town lab or...? does anyone know why a lab wouldn't count the ca125 over 1,000? I sure hope the doxil will help me. there are so many different types of ovca; mine started out borderline then became a low grade cancer ephilial type which I don't remember how to spell. So what works for someone may not work for another...
stay strong!!
I have had 4 treatments of Doxil. My first 2 were a breeze but the 3rd one caused a severe rash under my arms, mouth sores and severe pain in my hands, itching, burning, painful to bend my fingers. Had my fourth dose at a reduced strength and still have mouth sores and painful hands. Did not have any nausea. My numbers were still going up on my last CA 125 and the CT scan after the 3rd treatment did not show and shrinkage in the tumors. So, I don't think it is working for me.
I just finished 6 rounds of Doxcil. Doxcil killed the cancer behind my heart, as well as the spot pressing on my ureter. I had a tumor removed (3 weeks ago) that was as big as a tennis ball. Doctor sent it to a lab that would grow it then see which chemotherapy would KILL it fastest!
I went to my doctor on Monday. He was to tell me which chemo would kill it fastest but there was a problem. The tumor wouldn't grow! It was so far into the 'dying' stage (necro somthing he said) that the lab simply could not make it grow!!!
This really is fantastic news! I've done many, many chemotherapies in my 18 year battle. Doxcil seems to be the one that has kicked butt and taken names!
I will now be receiving Topotecan in case there are some microscopic cancer cells the doctor didn't see while doing the surgery. LOL
Hope this gives you some encouragement!
Good Luck!
~Kibbie
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