Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Aunt Donna

0 Recommendations

Updating you all on my Niece and need some feed back on this please. After a second set of test, Blood and ultra sound they have oppted out of doing surgery just yet. Is this normal I dont know enough to say myself but it just seems odd to me they would not at least remove her ovaries asap. They diagnosed Ovarian Cancer put her on pill form Chemo for 3 weeks then re did some of the test and said they felt they got some good results and now want to put her on inter veinious Chemo for another 8 weeks then re test again.. Maybe this is good news I just am not sure what to think... but why are they not doing surgery and at least removing the ovaries asap? She is so nauseated all the time not eating well although i continue to encourage this and make shakes and protien drinks I just feel lost in how to help her through all this.
Thank you for listening

4 replies

Aunt Donna, please check out the link to Johns Hopkins Understanding Ovarian Cancer@
www.ovariancancer.jhmi.edu

Have you questioned her docs? Maybe they are trying to preserve her fertility. Is it possible to get a 2nd opinion. The only thing I can think of is they want to eliminate as much bulk and stop progression before they attempt surgery. In any case, you need explanations from your neices docs for what they are trying to do. I am not familiar with oral chemotherapy. I am currently taking Tamoxifen but I don't think it is considered chemo.
Kathy

Sometimes they shrink the cancer and then do surgery if there is considerable disease. That is what I have been told and read.

I was diagnosed with Ovca but never had surgery. After the usual 6 rounds of chemo the cancer seemed gone, and I thought they would take my ovaries out then so it wouldn't start again. Now my regular oncologist (and my second-opinion doctor, a gyn-oncologist) say that there never appeared to be anything in or from my ovaries, and so it actually must have started in my peritoneum, making it Primary Peritoneal Carcinoma, which acts just like ovca, and is treated the same because it starts in the same kind of cells. They said there was no point in putting me through surgery to remove perfectly healthy ovaries. So that may be why they aren't taking out your niece's ovaries--to be sure where it really started, which I guess they couldn't be sure till the cancer was gone.

Add to the discussion

Don't have an Inspire account? Join now!

Forgot password?

OCNA: @InStyleMagazine @JanetJackson InStyle magazine's December issue features the Ovarian Cancer National Alliance http://tinyurl.com/ykjhdx6

OCNA: Two Broken Broads fight ovarian cancer ... http://www.youtube.com/watch?v=HCxv9p1dvzs&feature=player_embedded

OCNA: @JanetJackson ABC Special with Janet Jackson tonight at 10:00pm EST http://www.ovariancancer.org/2009/11/18/abc-special-with-janet-jackson/

OCNA: You are invited to our Virtual Holiday Dinner Party! http://www.ovariancancer.org/party/

OCNA: We want to serve our community better. Please help us by taking a quick moment to fill out this survey. Thanks! http://tinyurl.com/yg634a4

Group leaders

You