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Hello all, I just wanted to continue to post my progress from my alternative treatment i am recieving in Chicago at contermpary medicine. My ca125 had topped out at 1870 in July and after 5 weeks at one a week treatment my ca125 fell to 56 and 5 weeks later again, it is now 34. I hope that if anyone is looking for another source check out there web site, as i have found success and hope this helps. Much blessing Karen
What treatments are you receiving?
Hi Karen , May I ask , what treatments you are getting and are they in lieu of chemo ? My daughter is fascinated with the prospect of " protcell therapy " ... She is Stage 1-c, low grade serous and mucinous Ovarian Ca . Thanks for your insight and continued good health !!
Hi Karen - is this new journey you are taking different from what you originally started?
I find this fascinating and am glad you are doing well. I started looking into alternate options, but only found Gershon and the idea of 4 coffee enemas a day just didn't seem to make sense to me. What is a moderate plan? Is there an approach that combines changes in diet with chemo? I went back and read your earlier discussions and was interested in the insulin chemo combination.
I was dx in Sept 08 with Stage IIIC and CA125 of 1980, non-optimal debulking followed by 6 carbo/taxol w/avastin and 2 Gemzar with taxol. NED with CA125 of 15. 8 months later reoccurence and went into VEGf inhibitor study at MDAnderson. Went into remission that only lasted 3 months. Back in chemo w carbo/taxol and docs recmending high dose chemo w stem cell transplant. This scares me.
Thanks.
Karen:
Wow, I'm fascinated by this. I have always been interested in alternative treatments vs. regular chemo. I found the web-site for them. I'm going to call them tomorrow. My CA125 has been climbing, but not much since my is low grade - I'm at 72, but I would love to get rid of this blasted disease without regular chemo especially since type is mostly chemo resistant. Below is the web-site. Thank you !
http://contemporarymedicine.net/index.php?md=20
Hi Girls, as deb put in the above reply, you can read about the treatment right on there web site. The treatment last about 2 and a half hours, you only recieve 10% of chemo, it's injected after the insuline. Kind of hard to explain, but please read the web site and if anyone wants to know how it makes you feel, or have questions i will love to answer. There are other sites around the united states doing this also. I just was so excited to tell you all about this.
Yes Kelly, i am on to something different, did protocel for a year but had to move on to something more effect for myself. I believe that the body wants to heal it self, so what ever anyone finds that works for them, keep on doing it.
Kathy, check out the web site of contemporarymedicine.net I have been able to recieve treatment and still leave a normal life, did not loose my hair, had minor fatigue, and a little nausea. Good luck and keep me updated.
Karen:
Question - did your insurance cover this ? I'm reading that since it's still an investigational procedure, most insurances won't cover it. ?
I'll call mine tomorrow to see.
Karen,
Thanks so much for sharing your success story. Could you tell us a bit more about your situation and treatment and the journey you took to recovery. Also wondering about the insurance as well...
All the best,
Dunya
what i did is get my doctor to refer me the clinic which then, put me into innetwork rates, we pay everything up front, but will recieve some money back. I think all insurance are different as some companys pay more then mine, and some less. I believe this clinic may work with people also. Dunya, you can probably get most of my story from my journey part 1 through 4 that i have posted. Let me know if you have any other questions. karen
ellen, stage 3 ovarian , but probably the time i started at chicago i was stage 4 if stages can change. I was given 2 months to live by the doctor who performed my colostomy. good luck to all and i will keep you updated, as this cancer will probably be on going all of my life. karen
Hi Karen, I am interested in trying IPT as I like the idea of low dose chemo. I assume you can tolerate it for longer as the side-effects and damage caused by the chemo are much less. My Doc told me it was not an option for me as I have an ileostomy bag but I see you also have a stoma? So this was not an issue? Thanks for all the info!
Mary, i was never told that, having my colostomy would be a problem with treatment, and i have not had any. Yes the treatments are easily tolerated. I have had such great results, and i hope anyone who tries will have the same success. Karen
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