Agenda for the 12th Annual Conference July 6th- 9th

Monday, July 6, 2009

4:00 p.m. – 5:00 p.m. Meet with the CEO of the Ovarian Cancer National Alliance

Karen Orloff Kaplan, Ovarian Cancer National Alliance CEO

4:00 p.m. – 6:00 p.m.
Pre-Conference Welcome Reception and Registration (Blue Ballroom Prefunction) Exhibit Hall Marketplace Open
Catch up with old friends and meet new as you discuss this weeks activities. Be sure to browse our exhibitors and learn about our sponsors, Partner Member organizations and purchase a variety of fabulous items.

5:00 p.m. – 6:00 p.m.
Newcomers Gathering (Blue Ballroom)
If you’re new to our community, come buddy up with someone who has been with us for a few years and learn how the community can support you!

6:00 p.m. – 7:30 p.m.
Ovarian Cancer 101 (Palladian Room)
Come learn the ABC’s of ovarian cancer. Whether you are recently diagnosed, or just need a refresher this session will provide all of the basic information about ovarian cancer.

Speaker: Vivian E. von Gruenigen, University Hospitals Case Medical Center, Associate Professor, Gynecologic Oncology

7:45 p.m. – 9:00 p.m. Survivors Teaching Students: Saving Women’s LivesSM (Embassy Room)
For facilitators and participants only.

Speaker: Linda John, Director of Survivors Teaching Students
Diane O’Conner, Ovarian Cancer National Alliance Board Member


Tuesday, July 7, 2009

7:30 a.m. – 9:00 a.m. Conference Registration & Breakfast (Blue Room Prefunction)
Exhibit Hall Marketplace Open
Coffee and a light breakfast are waiting with our exhibitors to start your day out right!

9:00 a.m. – 9:30 a.m.
Welcome! (Palladian Room)
This year’s Conference is about you, and the part you play in helping to find a cure. It’s about empowering you to use your story, your voice, and your commitment – together with other stories and other voices – until the sounds we make are heard loud and clear by everyone who can help make a difference.

Speakers: Karen Orloff Kaplan, Ovarian Cancer National Alliance CEO
Judith Abrams, Ovarian Cancer National Alliance President

9:30 a.m. – 10:45 a.m. Plenary I: Research Update Part I (Palladian Room)
Learn about what’s going on with ovarian cancer research today and what’s needed with respect to early detection, treatment and recurrence.

Speakers: Dr. George Coukos, Celso Ramon Garcia Associate Professor Associate Chief, Division of Gynecologic Oncology and Director of Ovarian Cancer Research Center at the University of Pennsylvania

Dr. Elise Kohn, National Cancer Institute Senior Investigator of Molecular Signaling Section

10:45 a.m. – 11:00 a.m. Morning Break (Palladian Room Foyer)

11:00 a.m. – 12:15 pm. Plenary II: Recurrence (Palladian Room)
This session will provide information on the medical options available to survivors facing recurrence and review how they can work with their medical team to make well-informed choices.

Speaker: Dr. Deborah Armstrong, John Hopkins Kimmel Center

12:15 p.m. – 1:30 p.m. Lunch to Honor the Ovarian Cancer National Alliance Partner Members (Blue Ballroom)
Exhibit Hall Marketplace Open
Come hear about the dedicated work of our Partner Members across the country.

Presenter: Sue Ellen Moore, Ovarian Cancer National Alliance Board Member

1:30 p.m. – 2:30 p.m. Breakout Sessions

Breakout # 1 Exercise and Nutrition (Hampton Room)
Learn the importance of maintaining a healthy diet which includes exercise while battling ovarian cancer.

Speaker: Monica Koltzet, Physical therapist for 30 years, specializing in women with cancer.

Breakout #2 Disparities in Health Care (Capitol Room)
Ovarian cancer affects all women. Yet, a closer look at statistics can reveal some significant differences in what women with the disease experience. This session will focus on the multi-faceted issue of health disparities and provide a framework for developing approaches to the issue.

Speaker: Shelia I. Thorne, Multicultural Healthcare Marketing Group

Breakout #3 Genetics (Governors Room)
While most ovarian cancers are sporadic, approximately 10 percent are heredity. Learn more about ovarian cancer genetics and how to identify families who may be at heredity risk for ovarian cancer. Review the benefits, risks and limitation of genetic testing for ovarian cancer. Identifying BRAC 1 & II

Speaker: Sue Friedman, FORCE: Facing Our Risk of Cancer Empowered Executive Director

Breakout #4 Long- Term Survivorship (Calvert Room)
Two long-term survivors will share their stories and provide their perspective about how to battle ovarian cancer and sustain hope for the future.

Speakers: Annette Leal Mattern, 22 –year ovarian cancer survivor, Ovarian Cancer Alliance of Arizona President and Ovarian Cancer National Alliance Board Member

Karen Mason, R.N., 8 -year ovarian cancer survivor

Breakout #5 Sexuality (Embassy Room)
This session will explore issues for both survivors and their partners on this topic. Participants will gain evidence based approached to overcoming these issues.

Speaker: Evelyn Larrison, RN, BSN, Gynecologic Oncology Nurse Consultant

2:30 p.m. – 2:45 p.m. Afternoon Break (Palladian Room Foyer)

2:45 p.m. – 4:00 p.m. Plenary III: Research Update Part II (Palladian Room)
Learn about past and potential early detection and recurrence tests, as well as the regulatory assurances of safety and efficiency.

Speakers: FDA

Dr. Katrina Trivers, Center for Disease Control

4:00 p.m. – 5:00 p.m. Afternoon Break (Blue Room Prefunction)
Exhibit Hall Marketplace Open

5:00 p.m. – 6:30 p.m. Clinical Trials Forum (Blue Ballroom)
This Forum will showcase a variety of national ovarian cancer clinical trials currently being conducted throughout the United States. Learn the basics of ovarian cancer clinical trials, what they are, why they are important and hear the key components of clinical trial design. Meet with representatives of these trials and visit with members of the Ovarian Cancer National Alliance Scientific and Medical Advisory Committee.

Speaker: Dr. William McGuire, Harry and Jeanette Weinberg Cancer Institute at Franklin Square, Medical Director

6:30 p.m. – 8:00 p.m. Celebration of Survivors Reception (Blue Ballroom)
Spirit of Survivorship Award

Presenter: Judith Abrams, Ovarian Cancer National Alliance President

7:00 p.m. – 8:00 p.m. Meet with the CEO of the Ovarian Cancer National Alliance
Come talk with Karen personally, and hear all that she’s been up to and advocating for in the last year!

7:30 p.m. – 9:00 p.m. ACOR Listmembers’ Meeting

Wednesday, July 8, 2009

7:00 a.m. – 7:45 a.m. Optional Morning Exercise with Monica Kolzet

7:00 a.m. – 8:30 a.m. Continental Breakfast
Exhibit Hall Marketplace Open

8:00 a.m. – 9:15 a.m. Breakout Sessions

Breakout #1 For Men Only (Hampton Room)
Join other men to see if they have similar struggles, and what they do to best tend to the needs of their loved ones in difficult times. Learn how to deal with the challenges of filling one of the most important roles in a survivor’s life.

Speakers: Dennis Oziel, Rhonda’s Club, Ovarian Cancer National Alliance Board Member

Winston Wilkinson, Ovarian Cancer National Alliance Board Member

Breakout #2 Young Survivors (Capitol Room)
Meet other young survivors and discuss topics specific to being diagnosed at a young age. Learn about ways others have lived with ovarian cancer at such a young age.

Speaker: Sarah Noonan, Minnesota Ovarian Cancer Alliance

Breakout #3 Caregivers (Governors Room)
Come meet other caregivers and talk about the integral role you play in communicating with and care for your loved ones, as well as yourself.

Speaker: Liz Carrino, MSW, Johns Hopkins

Breakout #4 Newly Diagnosed (Calvert Room)
Talk with others about your experiences and hear from a survivor talk about some of the struggles she experienced in the first few years following her diagnosis.

Speaker: Jane Beard, Invisible Light

Breakout #5 Survivors Teaching Students: Saving Women’s Lives
Whether you are a facilitator and participant or want to learn more, join us to hear about the innovative program that brings ovarian cancer survivors into the classrooms of medical and health professional students.



9:30 a.m. – 10:00 a.m. Remembrance and Celebration of Life Ceremony (Outside Gardens)
Honoring Life

Featuring Consuelo Costin

10:15 a.m. – 11: 45 a.m. Plenary IV: Healthcare Reform
As the health care reform bill moves through Congress, this session will help patients understand what is in the bill, and how the proposals may or may not help ovarian cancer patients and their families.

Speakers: Sheila Burke, Harvard

11:45 a.m. – 1:15 p.m. Lunch to Celebrate Founders, Board and OCNA year in review
Exhibit Hall Marketplace Open
Learn how an idea became a cause (founders), where we are now (board) and the progress we need to celebrate and where we go from here.

Karen Orloff Kaplan, Ovarian Cancer National Alliance CEO

1:30 p.m. – 1:45 p.m. Awards Ceremony (Palladian Room)
Rosalind Franklin Excellence in Ovarian Cancer Research Award
Voice for Ovarian Cancer Leadership Award

Presenter: Judith Abrams, Ovarian Cancer National Alliance President

1:45 p.m. – 2:15 p.m. “The Politics of Cancer” (Palladian Room)
Listen to Washington insights in relationship to the new Administration and Congressional proposals on healthcare reform.

Keynote Speaker: Dana Milbank, The Washington Post reporter

2:30 p.m. – 3:45 p.m. Making a Difference: Getting Involved at a Local Level (Palladian Room)
Learn from our Partner Members about ways to be involved and have an impact at a local level.

Panel:COCA, MOCA and Kaleidoscope of Hope

3:45 p.m. – 4:15 p.m. Closing Speaker “My Journey, My Ride, My Mission” (Palladian Room)
Hear one survivors experience on her recent cross country bike ride from California to Florida to help raise awareness about ovarian cancer and empower women to listen to their bodies.

Speaker: Laurey Masterton

4:30 p.m. – 6:30 p.m. Lobby Day on Capitol Hill Training

Speakers: Ilisa Halpern Paul, Drinker Biddle Reath
Cara Tenenbaum, Ovarian Cancer National Alliance Senior Policy Director

Thursday, July 9, 2009

7:00 a.m. – 8:00 a.m. Bus to Capitol Hill

8:00 a.m. – 9:30 a.m. Breakfast on Capitol Hill

9:30 a.m. – 3:00 p.m. Visits on Capitol Hill

4:00 p.m. – 5:00 p.m. Shout Back

Speaker: Cara Tenenbaum, Senior Policy Director, the Ovarian Cancer National Alliance

5:30 p.m. – 7:00 p.m. Partner Member Summit Reception