The Ovarian Cancer National Alliance Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

What now?

  • By Scarfaholic · New reply 1:56 am
  • Discussion in Recurrence · 4 replies
  • I had my first recurrence of PPC in January 2015. Multiple small tumors and one 4 cm tumor near my liver. I have had 6 chemo sessions of taxol and carboplatin. I had a scan today and also my CA125 numbers ...

SIster's too quick recurrence

  • By lauraleey · New reply 12:39 am
  • Discussion in Recurrence · 8 replies
  • After NED from Stage 3 PPC and then a 5 month recurrence after frontline, my sister has went with my wishes and made an appointment for a second opinion on treatment with Dr, Chon at Moffitt in Tampa ...


  • By Glynisjoan · New reply 12:37 am
  • Discussion in Awareness and fundraising events · 539 replies · Photos
  • This post is an update from the post ( NEW DISCOVERY ) Hi All , myself, my new dear utterly supportive and inspirational friend Billy and many other dear friends have been hard at work, researching and ...

Stage 1C ovarian cancer

  • By shareevans · Posted yesterday at 11:55 pm
  • Discussion in Treatment · 0 replies
  • Just recently had a grapefruit size tumor removed from my right ovary. It is stage 1C ovarian cancer. CA125 is 7.8 and pet scan came back clear. My dr. wants to do 3 to 6 rounds of chemo as a preventative ...

primary peritoneal carcinoma

  • By avas2102 · New reply yesterday at 11:38 pm
  • Discussion in Treatment · 7 replies
  • Hi everyone, Is there anybody out there with stage 4 ppc high grade who has had pleural effusion? Can you please give me information on treatment you have had and the outcome. I was diagnosed in April ...

Diagnosed Stage 2 Granulosa Cell Tumor

  • By moree2000 · New reply yesterday at 8:54 pm
  • Discussion in Newly diagnosed · 4 replies
  • Hello my name is Marie and I am only 36 yrs old. I was recently diagnosed with granulosa cell tumor stage 2. It has spread outside the uterus and I am going in for my third surgery within three months ...

slight drop in CA 125 a good sign?

  • By karen49 · New reply yesterday at 8:37 pm
  • Discussion in Good news · 12 replies
  • I think I got good news today concerning my blood work from yesterday. Since finishing chemo July 2012, I've had my CA 125 done every 3 months. It was 500 before my Jan 2012 surgery and then ranged from ...

My sister has Stage 3C ovarian cancer, so far so good

  • By lauraleey · New reply yesterday at 8:32 pm
  • Journal · 13 replies
  • I haven't posted in awhile, My sister Julie has stage 3C ovarian cancer she is 48 years old. She has optimal debulking surgery, and has completed 2 rounds of chemo. She was a little nauseous for a few ...


  • By ohiosteph · New reply yesterday at 8:01 pm
  • Discussion in Treatment · 33 replies
  • Has any one out there who has had ovarian cancer been advised to take Tamoxifen ...

Etoposide success?

  • By Meglo · New reply yesterday at 6:45 pm
  • Discussion in Side effects of treatment · 2 replies
  • I was just wondering if there was anyone on here that has good luck with etoposide? My mom is starting this next week and is having a rough time thinking about starting her 5th type of chemo. I think ...

Whats the first word that comes to mind?

  • By Amanda1960 · New reply yesterday at 6:05 pm
  • Discussion in Just for fun · 22320 replies · Photos
  • This is a favorite game of mine. Its a simple association game. Didn't know how it would do here but the rules are only to think of the first word that comes to mind when reading the previous word. OK ...

Would Chemo Oncolgists treat their own

  • By Rusky · New reply yesterday at 3:16 pm
  • Discussion in Treatment · 38 replies
  • Would chemo oncologists treat their own wife or daughter or sister with the same chemo they practice on others? I doubt it. The chemotherapy destroys the body, more than the ovarian condition or carcinoma ...

Race Across America 4 OCNA!!

  • By Diane_OConnor · New reply yesterday at 2:04 pm
  • Discussion in Awareness and fundraising events · 10 replies · Photos
  • I am very excited to announce that my son, Lane O'Connor, and 3 fellow cyclists have signed up to participate in the RACE ACROSS AMERICA on June 20.. The 4 man Race for OCNA team will ride in the 2015 ...

Too much nervous energy

  • By Laura6131 · New reply yesterday at 1:43 pm
  • Discussion in Treatment · 11 replies
  • I am have just completed my second cycle of intraperitaneal chemo ( today is day 13 of round 2). I am on cispatin and taxol. I am handling it fairly well but have been struggling with too much nervous ...

Scheduled Maintenance of Inspire 5/30 2-3am Eastern Time

  • By TeamInspire · Posted yesterday at 11:51 am
  • Journal · 0 replies
  • All, We are planning an outage of the website on Saturday, May 30th at 2-3 a.m, Eastern for system maintenance. The site will not be available for some or all of this window. Please let us ...

Can anyone tell me my options please?

  • By KatieTattie · New reply yesterday at 11:06 am
  • Discussion in Newly diagnosed · 3 replies
  • Hello everyone. Firstly I like to apologise if this is an ovarian cancer support group the options for posting was a bit unclear. I have a history of endometriosis for which I had excision surgery back ...

Foods that help you fight back cancer (free download)

  • By Bluehill · New reply yesterday at 9:58 am
  • Discussion in Nutrition · 10 replies
  • Thought you might want to take a look at this free book er_Survivors_Guide.pdf ...

Avastin and Cytoxan

rschointuch (Inactive)
  • By rschointuch (Inactive) · New reply May 28, 2015
  • Discussion in Financial and insurance issues · 15 replies
  • Hello. My wife had surgery over a year ago - complete hystorectomy and colonectomy. She went through regimens of first line chemo and was determined to be platinum resistant. Her CA 125 kept rising from ...


  • By Lmsailor · New reply May 28, 2015
  • Journal · 3 replies
  • My daughter's mucinous cancer reoccurred as carcinomatosis in her peritoneal cavity. She had to have a bowel resection and now has a colestomy .her prognosis is not good. Has anyone delt with this? She ...

looking for more friends

  • By thatisnotit · New reply May 28, 2015
  • Discussion in Just for fun · 3 replies
  • Hello, to members who are looking for local support I live in Middletown NY and anyone who would just like to talk or have help with whatever am hear to listen because everyone needs someone who knows ...

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The Ovarian Cancer National Alliance Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Ovarian Cancer National Alliance, an Inspire trusted partner.