Ovarian Cancer National Alliance Support Community

The Ovarian Cancer National Alliance Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Looking forward

By Landrn · New reply 3:11 am
Discussion in OCNA Annual Conference · 4 replies
Hello! I've been lurking around for a couple weeks reading your amazing, supportive, inspiring, and informative communications. Looking forward to the conference in July. I just posted my profile if you ...

Whats the first word that comes to mind?

By Amanda1960 · New reply 3:04 am
Discussion in Just for fun · 15943 replies
This is a favorite game of mine. Its a simple association game. Didn't know how it would do here but the rules are only to think of the first word that comes to mind when reading the previous word. OK ...

Stage 3 Ovarian Cancer

By Tazzywazzy · New reply 12:54 am
Journal · 14 replies
I'm 43 years old and a single mother of one. In November of 2012 I had umbilical hernia surgery. I had been bloated prior to that surgery, assuming the bloating had to do with the hernia. By December ...

Recurrence #1 - Doxil Regimen

By shalsey11 · New reply 12:47 am
Journal · 4 replies
Day 1 - Doxil infusion - and the fun begins once again. Was just getting to liking my hair-do after it grew in from the last chemo that ended in November. Oh well. Bought Biotene Mouthwash and Bag Balm ...

Wicking sheets - any suggestions?

By SandySTL · New reply yesterday at 11:44 pm
Discussion in Newly diagnosed · 12 replies
Surgery 4 weeks ago. Chemo started Wed. Hot flashes kicked up to every hour and 1/2 at night. Researching wicking sheets online and haven't seen many great reviews. Does anyone have an recommendations ...

6 months post chemo and a recurrence

By Twoscoops · New reply yesterday at 11:11 pm
Journal · 17 replies
Hello. I was 44 years old when I was diagnosed with stage 4 ovarian cancer on May 14, 2012. On May 31, 2012 I had a radical debulking and started chemotherapy 3 weeks later. Chemo finished in October ...

Borderline follow up

By dolphin61 · New reply yesterday at 10:59 pm
Discussion in Treatment · 11 replies
I would really welcome some information on how long ladies who had borderline ovarian cancer are followed up for ? It would also be really helpful to know how often you have been seen and what the checkups ...

vaginectomy or a 7 th cycle of chemo

By varykino · Posted yesterday at 10:12 pm
Discussion in Treatment · 0 replies
I was diagnosed with Ovarian Cancer in September 2011. I had a total hysterectomy in 2011 and debulking. I had 6 cycles of chemo. In March 2012 , I was told that I was in remission. Then in October my ...

Doxil experiences?

By suska · New reply yesterday at 9:37 pm
Discussion in Treatment · 303 replies
I have just found this discussion group and noticed that the Doxil thread was from over two years ago. I wonder if anyone currently on Doxil can share their experiences and hopefully, success, with this ...

CA125 6, and CT shows active disease, how can HAPPEN this????????

By Dianne45 · New reply yesterday at 7:00 pm
Journal · 12 replies
Did anyone of you teal sisters had the same experience?????? When my Doctor told me that, I almost fell from my chair. I knew, the CA125 it wasn't a reliable reading for me, but today going for my 50th ...

NED

By kpanta · New reply yesterday at 6:08 pm
Discussion in Good news · 4 replies
Hello All .. just wanted to let you know that there was NED from my TAH BOO .. so I am staged at 1A, Grade 1 .. so no chemo or radiation required .. go back to oncol in 4 months and will continue for ...

Depression

By bustergirl · New reply yesterday at 6:00 pm
Discussion in Treatment · 20 replies
Hi Everyone, I've been dealing with borderline Ovarian Cancer that has spread to numerous places but is slow growing. I know it's going to get me eventually but in the meantime I don't want to live my ...

Can men carry, transmit & suffer the Braca gene

By Bogdan · New reply yesterday at 3:43 pm
Discussion in Research · 8 replies
I'm under the impression that the Braca gene can be carried and transmitted by a female or male and that both have an increased chance of a variety of cancers. Am I right ...

New Immunotherapy medicine MPDL3280A

By yongmu · New reply yesterday at 3:09 pm
Discussion in Clinical trials · 2 replies
Hi, Anyone familiar with MPDL3280A from Genentech (a subsidiary company of Roche)? Or anyone already in its clinical trial? See the article below for more details about it. If that's real, it's promising ...

Katrhi Eulogy

By BluEyedTygr · New reply yesterday at 2:21 pm
Journal · 13 replies
I am blessed that I was able to spend the last moments of my Mom's life with her. I was given the opportunity to cuddle with her, hold her hand, smell her skin, kiss her face, and let her know how much ...

My mother had first chemo Monday

By Sam1212 · New reply yesterday at 12:34 pm
Discussion in Newly diagnosed · 13 replies
Hello Everyone, My mother was diagnosed with Ovarian (?) cancer 3C at the end of February. Her 52 year old sister died from the same thing 25 years ago. My mother is also a breast cancer survivor. They ...

CA125 from 6 - 3 and Met a women 13 years healed

By Prostripe · New reply yesterday at 12:11 pm
Journal · 2 replies
I am 19 months NED and just went to my doc. My CA125 was steady at 6 for 6 months. This time it is a 3. I had been praying for a 3 specifically, and God answered my prayer it is amazing. I am healthy ...

Illeostomy very low maynesuim

By Vicola · New reply yesterday at 12:10 pm
Discussion in Side effects of treatment · 6 replies
Hi I have just had a illeostomy 8 weeks ago, unfortunetely I have a very low magnesium level and have to go on a drip once a week over a 4 hours. I also take magnesium tablets but it still doesn't seem ...

75 year old Mom recently diagnosed with cancer

By nurse_linda · New reply yesterday at 11:57 am
Discussion in Newly diagnosed · 17 replies
My mom is 75 years old. She started getting swelling in her legs and pain in the bottom of her feet. She started slowing down and we noticed weight loss. She began complaining of certain foods causing ...

Celebrated 10 Years on May 5, 2013

By 1TuffCookie · New reply yesterday at 11:52 am
Journal · 9 replies
I still remember that day like yesterday, anyone who has been told they have the "BIG C" usually does. This experience has been a blessing, because I feel cancer made me a better person. Life is a precious ...

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About this community

The Ovarian Cancer National Alliance Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Ovarian Cancer National Alliance, an Inspire trusted partner.