The Ovarian Cancer National Alliance Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

All new and active discussions & journals

Issue with health insurance any suggestions will help ???

hope4seka
  • By hope4seka · New reply 9:30 pm
  • Journal · 14 replies
  • I have on question dose anyone know how to get health insurance to cover second opinion and new possible treatments to save someone’s life who is young and in need… but cannot afford … to travel and pay ...

What is with my appetite?

moorejmo
  • By moorejmo · New reply 9:20 pm
  • Discussion in Treatment · 3 replies
  • Okay- I had my first treatment a week ago today. The last 2 days I have been starving! I mean...I eat and then I want to eat again 2 seconds later. If I keep this up I am going to need some new pants ...

The kindness of strangers

Patricia123
  • By Patricia123 · New reply 9:17 pm
  • Discussion in Good news · 22 replies
  • I have been overwhelmed by the "kindness of strangers" and wonder if this has happened to others ...

Parking Rant!

kibbitzqueen
  • By kibbitzqueen · New reply 9:05 pm
  • Discussion in What, me worry? · 21 replies
  • Yet again I was 'confronted' if you will, with a rude comment from some man I didn't know in a Parking lot. It seems he took it upon himself to be judge and jury in a situation he knew nothing about by ...

Estrogen Sensitivity and Stuff to Avoid?

Brown_Eyes
  • By Brown_Eyes · New reply 8:40 pm
  • Discussion in Side effects of treatment · 18 replies
  • Hey Ladies, I'm going to see my Dr on Monday for a CT scan, Avastin/placebo etc... And I have a list of questions for him. One question is are there things like black cohosh or soy that may aggravate ...

drinking Hydrogen perioxide, Anyone tried this?

deeanlan
  • By deeanlan · New reply 8:30 pm
  • Discussion in Treatment · 14 replies
  • My friend has breast cancer and went to a natural doctor and since it was stage I they believe in using natural treatments. One treatment she is using is Hydrogen peroxide (pharm.grade) drops in her water ...

This is an update on my cancer.

MoYeah
  • By MoYeah · New reply 8:07 pm
  • Journal · 24 replies
  • This is an update on my cancer. The news is not good, so feel free to by pass. I received the results on my latest MRI and CT few weeks ago. Not good! I now have new and larger tumors in both my brain ...

Stable Disease/Remission

PLE
  • By PLE · New reply 7:50 pm
  • Discussion in Recurrence · 19 replies
  • I just had my 4th chemo/Avastin today for my first recurrence. Initial surgery was July 2007 and remission for 16 months. My CA was 1330 in March and is now down to 52. My CT scan yesterday showed no ...

Twelve years and going strong

LilySue
  • By LilySue · New reply 7:37 pm
  • Discussion in Survivor stories · 6 replies
  • July 1997, I was diagnosed with stage IIIC. Had a long remission and then recurrence four years ago with huge metastatic ovarian tumor in my chest. Had surgery, no chemo and am still NED. Life is great ...

Roll call for the Conference

hinsopa
  • By hinsopa · New reply 7:35 pm
  • Discussion in OCNA Annual Conference · 3 replies
  • Let's get a list of who's coming! Maybe just first names so we'll recognize our nametags? I'll start. I'm looking forward to meeting you all. Patsy in NC ...

It's back continued

zircons
  • By zircons · New reply 7:26 pm
  • Discussion in Recurrence · 1 reply
  • Well, I got confirmation yesterday that I do have recurrence. There are two 1 cm nodules on my left pelvic area. My doctor has suggested that I be in a Phase 1B clinical study. It would consist of carboplatin ...

Any Suggestions

vicki40
  • By vicki40 · New reply 6:36 pm
  • Journal · 4 replies
  • I've posted before letting everyone know about my cancer, Ovarian, 7 years, over 80 chemos, running out of options, NOW i have bowel cancer. Doc picked up a mass 4.5cm inside the bowel area. Thinks it ...

Steroids

dardar38
  • By dardar38 · New reply 6:04 pm
  • Journal · 8 replies
  • I am sick of the side effects of the dexamethasone that they give me orally before my gemzar treatment. I have gained 10 pounds since I started Gemzar on 5/9 - lots of water retension. (I had been on ...

What should you eat or take to build good cells?

kimsmom
  • By kimsmom · New reply 5:29 pm
  • Discussion in Late stage · 3 replies
  • My daughter has had but one chemo..carbo/taxol combo, and it was done IV. She is still leaking ascites fluid and they cannot do the IP catheter until that stops. She is worried about neuropathy and anemia ...

The Little Things...

goldi111
  • By goldi111 · Posted 5:06 pm
  • Journal · 0 replies
  • Today I went in to my doc for a mammogram and pre-op kidney and liver blood work. I was feeling very teary today, don't know why..like anything could make me burst into tears. (I was feeling a little ...

Update on surgery date

goldi111
  • By goldi111 · New reply 4:55 pm
  • Journal · 16 replies
  • Saw the gyn/onc surgeon today in the cities and he has scheduled me for a hysterectomy/exploratory surgery on Monday, July 6th. Hubby & I will travel down Sunday the 5th and check into the guest apartments ...

Taking Control of your Finances while Fighting Cancer!

kibbitzqueen
  • By kibbitzqueen · New reply 4:50 pm
  • Discussion in What, me worry? · 6 replies
  • Here are a few of my personal tricks for taking control of your financial situation. Below is how I finally took control. If you follow the steps you can too. These are only a suggestion and I make no ...

It's All About the Poop

CarolAnn1
  • By CarolAnn1 · New reply 4:42 pm
  • Journal · 13 replies
  • I never imagined it would come to this, but my mother and I are sharing the cancer experience together. We've sat side by side in our recliners getting our chemo, carpooled to the clinic, and compared ...

Hope4seka: The switching of Hats while Fighting Cancer

kibbitzqueen
  • By kibbitzqueen · Posted 4:25 pm
  • Discussion in Caregivers and family members · 0 replies
  • My mother felt the very same way. The ironic thing is, she had cancer and passed away while I was in what I call 'remission-ish'. She found out about her cancer in February (on my birthday mind you) and ...

Patient Advocates

JanJ
  • By JanJ · New reply 4:23 pm
  • Discussion in Financial and insurance issues · 6 replies
  • A former colleague of mine at a newspaper in Atlanta just sent to me an article she wrote about patient advocates, a group that helps patients fight the financial battle that comes with illness, whether ...

Sign in to see more

Don't have an Inspire account? Join now!
Forgot password?
Keep me signed in on this computer until I sign out

Inspire others

Register for the Ovarian Cancer National Alliance's annual conference

OCNA: The Ovarian Cancer National Alliance Invited to Testify on Capitol Hill. See OCNA Policy Director's testimony: http://tinyurl.com/n6k8wd

OCNA: Johanna's Law introduced in the House. Take Action: http://bit.ly/1ddLKL

OCNA: Only a Few More Days to Receive Discounted Hotel Room for OCNA Conference! Deadline June 15th. Go to http://tinyurl.com/kt5yvc

OCNA: 615 page health care reform proposal from Mr. Kennedy's office: http://help.senate.gov/BAI09A84_xml.pdf

OCNA: our discussion on health care reform representing OvCa Community. Go to http://tinyurl.com/l9zm2k

Group leaders

Discussion topics

You

About this group

The Ovarian Cancer National Alliance Support Community connects patients, families, friends and caregivers for support and inspiration. The Ovarian Cancer National Alliance Support Community is sponsored by the Ovarian Cancer National Alliance in partnership with Inspire.