Why did you have your surgery?

• By hrcamacho
• Reply 3374463
• September 14, 2012 at 9:45 am
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Also wanted everyone's "two cents" about this. At 9 I was diagnosed with UC, at 19, Crohn's. When I had my surgery, the pathologist that looked at my colon said it was UC. Was I misdiagnosed, or is Crohn's the reason that I have a section between my stomach and small intestine didn't "wake up" properly, and now hurts all the time? Or is it just the surgery that makes you nauseated all the time?

• By tjane
• Reply 3374927
• September 14, 2012 at 12:18 pm
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I have Crohns and have for 40 years. It has been some roller coaster ride. I was diagnosed in my early 20's and will be 60 in December. I had the cramps,weight loss and crappy feeling. When I was 29 my large intestines perforated and had perintinitus. It was a long road back with TPN, staff infections and a few flare ups. I had a colostomy for 6 mo and had a reversal. It only lasted 4 days and it perforated again and woke up with an iliostomy. Waited another 6 mo and had the reversal. I struggled with Crons till it brought me here 7 mo after my final and permanate colostomy. This flare up started in my eyes with inflamation of the eyeball (never new Crohns could affect your eyes) I was treated with steroid eye drops. When the eyes flared up so did my gut. I had a vaginal rectal vistula and alot of scaring in my rectum so the treatment was a colostomy. I spent a month in the hospital because I got a blockage and sepsis. But it was much easier road than the first ostomies. I was treated with alot of prednisone over the years so have osteoarthritis and ostoperosis. So that is pretty much my story. Crohns can be a nasty little desease and would not wish this on anybody not even my worst enemy. But I cope pretty well and have decided not to let it get me or run my life. I call it a little inconvience and press on. It certainly has its ups and downs. It is alot better symptom wise than when I was younger.

• By Mare5785
• Reply 3374933
• September 14, 2012 at 12:19 pm
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Good morning hrcamacho,
I was diagnosed with Crohn's disease at 17, and symtomatic from age 10... as of now.. it's been 45 years with this chronic disease.
I had 6 surgeries which removed my illium first and part of the colon then reanastomosis with each one until the iliostomy surgery, 26 years ago. I have Short Gut Syndrome because of the sections which were removed from my small intestine with the previous and last surgery. My transit time can sometimes be 10-15 minutes from intake to output! I have had medication come out in my pouch, untouched and you could still read the inscription on them!! I had on Dr call me a liar and said it wasn't possible! Don't see him any longer! lol. In a chinese restaurant, I can easily do a bathroom visit 3-4 times during the meal.. It's ok though..cause I love chinese food and refuse to give it up!
With each surgery, I had total obstructions due to the Crohn's.. many complications. After I had my pregnancy for my son, I became extremely ill within a matter of hours after his birth. The drop in steroids that you body naturally produces during pregnancy were not there. My disease exacerbated and I had developed an abcess from my intestine, connecting to my right kidney as well. Some thought that the pregnancy and pressure on the bowel caused the abcess. Not sure.. as many women do not experience this problem after pregnancy.
The abcess was so large and full of puss that they removed that area and gave me the "temporary" ileostomy, to be "continued" in 6 months, after the bowel had a chance to heal and to make sure there was no longer any infection. When that time came to talk about reversal.. my answer was "NO THANK YOU! I have had many surgeries out of saving my life, I'm not going to elect to have another! My iliostomy has given me a better quality of life from before, I'm sticking with it." My output prior to that surgery was crazy as it was, being in the bathroom all the time.. having accidents.. at least with the pouch on, I knew where it was going.
My colon was removed 16 years later, due to surgical colitis and possible cancer from letting it sit idle. as well as my ovaries and gall bladder because I had over a dozen large stones. 14 months later, I had my left kidney removed..because they cut an tied my ureter tube to the left kidney when they cut the supply to the left ovary! For 14 months, I walked around with a kidney full of urine and my dr not listening to how sick I was and blowing it off as recovering from a major surgery a year earlier. Finally an mri showed the obstruction. The urine was in there for so long that the urostomy surgery I had to have for 6 weeks did not allow the kidney to regenerate itself.. It was as thin as an onion skin. So.. out it came.. leaving me with the one kidney that was damaged and diseased and is only functioning at 50% at best. But.. The surgeon who is known in all states of the US, could NOT have made a mistake or one of his students in the OR suite... They blamed it on my Crohn's for killing the left kidney..... so wrong..

You my dear.. are very soon out of post op!! There are so many changes going on in your body from the surgery. It is having to heal and begin to make changes to compensate for what it lost. Trust me.. over time the body can do amazing healing with itself ..
God gave us a miraculous system!! Your muscles were cut through.. there is probably still swelling inside from the trauma of surgery. I remember with each surgery there would be a time after feeling better that I'd feel worse again.. then the climb back up.

If your nausea becomes worse or you do vomit or have concerns that something is wrong.. Get in to see your doctor. Trust your body, you know it inside and out.. listen to what it's saying. I pray that what you are feeling is within the "normal post op" and will subside as time heals. I would go with the pathologists reports and pray that it is 100% accurate, for removal of the colitis is a cure!
You will be feeling better than you have in years in the very near future!!

Because I have Crohn's, suregery is not a cure for this, I have had flare ups over the past years, but ones that could be handled and quited down with meds and diet. Thank you God!

Good bless you and prayers for a speedy recovery. Please keep us posted as to your progress.
Mare

• By Mare5785
• Reply 3374962
• September 14, 2012 at 12:28 pm
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Hi Tjane,
YES..Crohn's can affect the eyes!! I had iritis when I was 18 and had to wear a patch for several months, with the addition of steroids. I too have the lovely side effects from that drug and the aching body and cataracts!
There are many other symptoms that can occur from our auto immune disease... or because we are susceptible to other auto immune diseases.

Glad you have the right attitude and to hear, that even with the ostomy, life is a little better..a little sweeter than it was before!

Prayers,
Mare

• By tjane
• Reply 3375317
• September 14, 2012 at 2:48 pm
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Mare I also had cataract surgery about 5 years ago. I had kidney stones the size of golf balls about 3 years ago. I had 6 lipotripsey surgeries 3 on each side and had stints put in for a week after surgery. I never knew kidney stones could get that big. My lowest weight was 86 lbs after my first ostomy surgery. I am now 107. I have gained about 4lbs since my surgery. Most of my disease was in my large intestines. You are right the human body is amazing in the ability to heal itself. I am always in awe how my body comes back. I also had alot of problems after my 2 pregnancies. After my 2nd dauger was 6 mo old is when I first perforated. I have had 7 abdominal sugeries and the 6 lipotripsies. Both babies were c-sections. Belly looks likea road map lol. But I earned every little scar on there. They are my badge of courage. I too am feeling better and little or no symptoms of Crohns. Hope it stays that way. The only thing I wonder about as when you get older your skin is thinner and the adhesives on the bag if it will damage the skin easier.

• By Cookielin
• Reply 3375355
• September 14, 2012 at 3:09 pm
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Wow on reading all of your posts. You have all been through so much. Crohns can be incredibly difficult. I had UC. I was diagnosed with UC and the diagnosis never changed which is a lucky thing for me . I choose the surgery because after 30 years of meds, pain, bleeding and a very retricted life, wanted my health back. I was just ready. When younger I used to tell my docs that at age 50 if I need to have the "bag" i won,t care. ( Then I was age 23 maybe. ) Needless to say, at 52 when I did do it, I cared. BUT what made me so "sure" was that I could go out again and live my life. The ostomy truly freed me from the pain, blood, urgency and FEAR. I am hoping HRCamacho that you heal as though you have UC and hopefully you do. It is a cure if that is the case. I have heard of flip flopping of doctors thinking it is one or the other. I have also heard of a disease sometimes being a combination of crohns/colitis. My doctors were at Mt. Sinai in nY and were the pioneering docs in the Crohns and colits foundation which originated in nY. So the info was based on other patients I know at Mt. Sinai. I had and have many friends with crohns. Because you have not had any other issues I am hoping that it is UC.(Not thatother isses can,t come up too with uC. BUT upon the removal of your colon your disease would be over. Yes dealing with the ostomy can be annoying, depressing etc etc. BUT you will find you way through that. IN time. Hopefully your healing will really start to move along now after 3 months. Yes I did get nauseaus after surgery. And still do, but usually because I ate too much fatty stuff. Which just makes me a bit nauseaus. Watching my diet corrected that. Hang in there, give yourself some time and keep us posted, Best of luck in healing well..

• By Mare5785
• Reply 3375627
• September 14, 2012 at 4:48 pm
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Tjane... I'm not sure about the skin.. I think the very first weeks/months is when it takes the abuse from the flange.. Now..after so many years.. it has not seen the "Light of Day".. so how could it be "old skin"??? lol.. I have not heard that.. or experinced that .. but then again.. I'm only Double Nickles and 26 years with the ostomy.. So maybe one of our ostomates who have a bit more of the knowledgeable years on us will chime in and hopefully, make that statement a myth!
It took my body which ended up at a low of 108 a good 8 years before it figured out that it had to start taking in calories as soon as my nose took in any scent of food at all!!! lol.. That's when my digestion began, and I put on weight.. Now, I am pretty stable, going from 125 to 131.. I can drop 6 lbs in a day if it's too hot or I get diarrhea from a bug or something I ate.

Cookielin.. Yes.. I had the crohn's/colitis going on.... I moved to Vermont from upstate NY back in 1983 because I was driving here every month for appointments in snow blizzards and the most important reason being.. the Medical Center Hospital of Vermont is one of the 7 research centers in the country!! I opted to do any drug test or what ever they were researching throughtout the years because I wanted to make sure I could be part of finding a Cure for Crohn's so that other people who were not diagnosed yet could have a healthier existance. My dad had Crohn's as well.. He was diagnosed at 42.. myself at 16 and my sister at 40. They each had only one surgery to remove affected areas..and were fine after that, able to maintain with medication. .. but mine was aggressive and about every 3 years I would need surgery again.. until my iliostomy.. I know it did not cure it.. but I think the fact that food does not linger in the bowel.. may have something to do with it staying mostly in remission. Any thoughts on that?

It's all a process. It is no different than grieving for a lost loved one... Our bodies as we knew them, are gone!! Learning to accept our new image, new dynamics, new eating patterns.. and so much more.. have the same cycle as grief.... the anger... depression.. sadness.. denial.. then the healing..

Allowing ourselves to feel all of it and reaching out to others is the key to survival and strength!

God Bless,
Mare

• By dollyme (Inactive)
• Reply 3375937
• September 14, 2012 at 7:11 pm
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here I go again tears from all the fiery darts you all endured and have such sweet uplifting spirits. You all have blown me away with how very brave you all are and how stong you are in your faith. I know Christian folks who are healthy that need to just take time out and read our posts. They are healthy and so down about crazy things in life that do not mean a hill of beans.

I am proud to have been able to meet you all. It has blessed me more than you know. I was always a people person before I got an ostomy I alway had a tender heart and God had me serve him by praying for people. I had a prayer group that met for over 25 years at my home and we would pray for 4 to 5 hours straight. It was so amazing to have Christians who were called like me to pray. It was at my kitchen table evey monday morning. We would have a quick cup of coffee and that is all. We would sometimes take communion together and the Holy Spirit would show up in a mighty way.

We saw many people get save and people got healed through prayer. I give all the Glory to Jesus for letting us pray and see it come to pass.

My reason for the colostomy is minor compared to you all. I had a ruptured colon from divers with very bad infection. I almost died from the infection. I am still trying to get to my old self. It has been 11 months since my surgery and I have many good days but still some really bad days as far as pain and weakness. My flesh is weak but my spirit is strong expecially after being on this ostomy site. I am so blessed by all of you for being examples to all of us with your love of God and love of life.

I was angry at first and felt sorry for myself like everyone else. As i read your stories and see how much harder you all had to fight for your lives is a testimony me. You all are my heros. Thanks for taking time for giving hope to so many

God bless Hugs and hugs
Dolly

• By Mare5785
• Reply 3376235
• September 14, 2012 at 9:43 pm
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Thank you Dolly for all your prayers for each of us! I wish I could have been at your kitchen table to experience all of what you shared.. I grew up with a little Italian lady and her husband as neighbors... She would start praying as soon she awoke in the morning, till she went to bed at night.. said she had to, so everybody would fit into her day of prayer!

I think of her often. She used to bring me Italian wedding soup and sometimes fava beans with swiss chard. This was during my stints of taking in liquids only.. She didn't realize I couldn't eat it when I was at my sickest. Mom and I never told her, because I knew the prayer and love that went into making those dishes for me was more than any one Dr. could do for me! When I am feeling down for any reason.. I will often make those two dishes as my "comfort food". They never had children and thought of us as their own. When I sit down to enjoy my soup.. I can still feel her presence, love and prayer.

I think each of us has knocked on death's door with our illnesses at one time or another. We are truly blessed to be alive. Thank you God.

Your spirit and God's work through you Dolly, is very strong.. I feel it in every one of your posts. Nothing "minor" about any of our surgeries as well as waking to find an ostomy! I often thank God for that 1st person who had the guts and knowledge to cut into another person to try and make them healthy.. for their abilities and strength. Without them, where would we be?

Prayers an blessings,
Mare

• By dollyme (Inactive)
• Reply 3376284
• September 14, 2012 at 10:11 pm
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Mare, I will send you some recipies I am writing a cookbook for my boys and friends. I have three sons and thought when I die all of my recipes are in my head. So four years ago I started my Book of love for them called Luchie's Cuncina ( luchie's Kitchen). I cook each meal and take photos of my step by step instructions for them to see exactly how it is done.
I am almoIst done I was trying to finish last year to have it sent off to print and bound real professional looking. Well bingo I got sick in Oct of last year and that stopped my Christmas gift to them.

I am ready to get back to work on it so I can finish it not for Christmas because I am incorporating old photos of our Italian parents and family.
I am writting some tid bits of information on the people we came from. My book is honor of my wonderful mother-in-law who I called the meatball queen.lol Mama is gone and boy do we all miss her she was one of a kind woman who loved her family and she loved to feed anyone.
The greatest cook ever. I learned from cooking side by side with her. I can say I am a pretty wonderful cook also because I learned from the queen.lol

I love being Italian and being the mama Luchie of my kitchen. My family calls me mama Luchie for nick name. lol I love cooking for them and serving them. I get rewarded with all the oos and aaaahs as they loosen their pants to make room for their expanded bellies. lol
I must tell you all we are not fat none of us we do not eat as much pasta as americans. We really eat lots of soups and salad veggies and fish. I can make many kinds of pasta and it is usually a side dish with all the other courses of food.
Sorry I got off on a subject dear to my heart.lol
Food and family and friends.
I think Jesus will say to me when I go to heaven Dolly you fed me when I was hungry because girl you feed everyone who came to your door.lol If you did it for them you did it for me. Praise God lol

Good night you all God bless
Dolly

• By hrcamacho
• Reply 3376379
• September 14, 2012 at 10:48 pm
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Thank you so much for sharing your stories with me. Today, has not been good to me. Beginning to feel a lack of confidence in my surgerical team. While in the hospital, I developed a kidney infection. No biggie. Treat it, I'm fine. They didn't treat in the hospital. As many of you know I had a stint in the ER. Today a nurse at the hospital ER called me, and said I had two different bacteria growing and that I needed to see my GP ASAP. She gave the names of all of the drugs that the bacteria's were sensitive to, and all but one is I.V. The one that I ended up getting used to only be available I.V. Thank the Good LORD for this blessing. Thank Him, I have insurance, because 20 pills without would have cost me $2600. Absolutely unreal! I began to cry in the dr office. I told her that if she put me back in the hospital, I truly thought I would die. That's how I feel right now. Emotionally a wreck. I even cried on the phone to the feller that called me from Coloplast!
My journey has been tedious. Better than some. I always tried to keep a positive attitude. This time I'm going back and forth between acceptance and denial and pure vicious anger. I know that the All Mighty God sits with me daily. He was there when I needed him most, and He has never faultered me. I find it hard to give it to God at times. Seems we are creatures that try to take care of everything ourselves.
Prayer is the greatest most powerful thing in this world. I believe ALL prayers are answered, sometimes the answer is no, but, they are always answered in His time, and in His great wisdom. Dolly, I ask that you include me in your prayers. You are an amazing woman. Hopefully one day we can meet. All of you are amazing. You have survived great trials, and keep such an uplifting attitude. I hope that I can one day call you all my friends.

• By tjane
• Reply 3376432
• September 14, 2012 at 11:21 pm
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Dolly thank you for the kind words. I envy you I am not a great cook. Give me a crock pot please. lol I just never enjoyed cooking. You sound amazing with your recipies. I think that is lovely putting together a book for your family.
Hrcamacho I am glad you are getting the antibiotics you need. I think you will feel better and maybe not so emotional once the medicine kicks in. Can't believe it is so expensive. Hang in there you are all in our thoughts and prayers. Get better xox terri

• By dollyme (Inactive)
• Reply 3376675
• September 15, 2012 at 3:01 am
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Hrcamacho, I have you covered already friend yes I said it friend. I want to share this with you that we love God and we do not see him we love Him spirit to spirit. we let our spirits touch and by doing that we touch the heart of God. I can fall in love with you in a nano second because of our spirits touching. So now we have that straight I am not waiting for one day to call you friend we are friends. lol
Now I said I have you covered I mean prayer and I am calling in the big guns to help me.lol Bobby and Inez 2 of my buddies I prayed with for 25 years at my kitchen table every monday 4 to 5 hours. I will tell them about you and anyone else who wants my gals to pray.
You all said so many nice things about me and amazing is all of you really I mean that. Thank you for what you did say.

I am gong to end this with a prayer right now.
I pray for hrcamaccho Sweet Lord, Please touch this sister with your healing power as she reads this prayer for her. Let her feel our spirits mesh into oneness with you Father. Our faith mixed together coming to you boldly into the Holy of Holies with Jesus. I pray for you to heal every part of her hurting body and all sickness. I pray for angels to come and encamp around her and be with her when she is alone and in fear protect her from fear and overwhelming thoughts that the enemy would bring to her. You gave her a spirit of love and power and a sound mind.
God wrap her up in a blanket of love right now let it flow through her whole body. Give her hope and peace and joy. Lord let her melt into your holyness and rest. Thank you God that she will feel better each and every day give her energy. Thank you so much Sweet Jesus most of all for the blood you shed for us. Amen
God bless you from the bottom of my heart
Dolly

• By Cookielin
• Reply 3376737 · In reply to 3375627 by Mare5785
• September 15, 2012 at 5:52 am
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Hi mare, I know several crohns patients, like you, who after ilieostomy or colostomy feel much better. Their lives are frankly more in control. Plus your colon was probably the most diseased part of the illness and it is gone. Some friends, after 20 years never had a recurrance that was anything too serious. I hope this is the case for you. Once an active inflammation of crohns is removed, the rest of your body can gather its strength again. I sort of laugh at people (healthy people) who get coffee enemas to cleanse them. Apparently, our colon is a storage tank for feces, germs and just a holding tank. Not having this mess inside us is a plus. Yes, it is in the bag, BUT NOT inside us! With a good attitude and faith and some trials and errors it can be managed. Nothing feels as good as "feeling good feels!" I can,t imagine driving through blizzards to doctors. I am glad that you found doctors that you were happy with. having faith in your doc is important. You did good!

• By Cookielin
• Reply 3376738 · In reply to 3376284 by dollyme
• September 15, 2012 at 5:56 am
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Dolly, I also think Pasta is such a great food for ostomates. I have never had a problem from Pasta and eat it alot.

• By dollyme (Inactive)
• Reply 3376815
• September 15, 2012 at 7:15 am
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Yep pasta is a good a ting ( that is how my sweet old mother in law would say in her broken english) Cookielin

Tjane, I have some killer crock pot recipies too! Just a few!

God bless
Dolly

• By herbsgal70
• Reply 3376872
• September 15, 2012 at 7:47 am
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I had emergency surgery to save my life when my colon perforated and deposited 5 liters of fecal matter in my abdomen. I now have an ileostomy since the 22nd of December last year. I didn't have Crohns, but severe diverticulitis and massive scar tissue from 5 C-sections and a hysterectomy when I was 35. I did have UC about 45 years ago - along with frequent migraines - from severe stress due to marriage to an abusive alcoholic - they disappeared when he died in 1994. I will have the ileostomy for the rest of my life, along with a large abdominal hernia because all the muscles were cut to enable the surgeon clean out the fecal matter. There seem to be various causes that contribute to the ileostomies, colostomies, or urologies that we all have. Hugs from Marge

• By Mare5785
• Reply 3376966
• September 15, 2012 at 8:32 am
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Hrcamacho,
So sorry that you received more upsetting word about your health.. Thankful though, that you are covered and have help with medical expenses.. That's so important for us. It is always on my mind, when I think of going into business for myself.. it quickly comes to mind.."health care insurance..Mare.. Health care.. can't live without it.." so I stay where I'm at.I
I can't believe the cost.. what med is it?
You, my dear.. ARE a friend.. just as Dolly stated. We are connected here by spirit.. pure and simple.. divine.. Yes.. consider yourself my friend as well.
As soon as I finished reading your post, I immediately prayed for you... Very much like Dolly's prayer, only not so elequently said.. lol.

Dolly... I LOVE to cook.. all kinds of food!! I love making soups and am rather known and popular with my friends around that. Guaranteed at least one pot of soup a week..if not two. I also share, either at my own table.. or delivered to people I care about. I used to have a Thansgiving dinner at my house on Thanksgiving and any friend of mine who was alone, no family in the area or were my "chosen family".. or a friend of a friend.. were always welcome.. the door was open. The table seemed to grow as more people showed up.. we were elbow to elbow.. but all at the same table.. It was amazing.
When my son took an interest in cooking.. in his freshman year of college.. he called me.. "Help me cook a Thanksgiving dinner for my dorm friends, Mom. Tell me how to prep the turkey." Mind you.. this child of mine never touched raw meat.. . was disgusted by it.. lol.. so this was totally a new experience for him. ..and with some of his best friends watching him... So brave he was.. or.. slightly crazy.. lol. He called me about a dozen times that day at work to ask me questions.. and when his hands were full, his best friend (who I am Mom#2 to) would call and get the instrutions/help! I smile and teary thinking of this memory... so fun... His dinner was a totally amazing hit!! After that, they held a dorm dinner once a month.. and the college even paid for it as their "dorm activity".
The "behind the scenes" part of it.... I showed up to bring him a couple of serving dishes and platters, as I'm driving into the parking area, along side of the dorm.. I see something falling or being thrown from above. I had no clue what it was. I was let into the dorm house and walked to the kitchen.. I could hear uncontrollable laughter.. what I saw as I looked into the kitchen (which was the size of a closet.. barely 6' wide at the most) was Chrissy and Ethan chucking the burnt rolls out the open window!! Chrissy says "Bird food mom.. don't ask!" What had happened before this was, Ethan used the foil roasting pan for the turkey.. it got punctured somehow and allowed the grease/fat to drip into the oven.. which caused a huge amount of smoke in that tiny kitchen.. Automatically, as it's a college boarding space..the alarm goes off to the fire department... They show up!! Laugh.. and leave.. They see it's all under control. By now.. he has wrapped, God knows how many layers of aluminum foil around his pan so it would no longer drip (would have been easier to go to the store for another.. just 3-4 miles down the road..but crunched for time) Back in the oven it goes. Of course there is still left over juices that could not be cleaned up totally.. and yup.. AGAIN.. smoke and alarm goes off!!! Ethan called the fire department immediately.. told them it was the same thing they were just there for.. but was told.. "sorry son, we still need to make an appearance and verify the building is not at risk." Afterwards the chief told him.."If we need to come back.. next time we will have to charge you the cost of coming out." He was mortified. By now.. dinner is running late.. he is in a hurry.. Oven totally cleaned out now.... and in go the rolls... of course, at a much higer temp than needed cause they are late. Yup.. Burnt... One of the girls was standing on a chair, fanning away the smoke from in front of the smoke detector.. window open.. and rolls being chucked out. I thought I was going to pee my pants laughing so hard. I tried to keep it serious, cause I could see the look on Ethan's face.. but couldn't hold it together!!! sooo funny... but such a happy, rewarding ending for him.
Then the following year, he came to me.. Mom.. I want to cook our "family" Thanksgiving dinner this year. You have been cooking and working hard for years, I want to do it now." Wow... I said yes.. but stayed close by in the kitchen to avoid any smoke alarms going off! It was tough to hand over "my kitchen".. but now.. I love it... He takes over... people come to his house now.. usually enough food to feed an army.. and about 6 deserts to choose from!! Best part is.. I walk out the door at night, or next morning, with leftovers!!! : )

Sorry.. got way off topic on this one.. but.. hopefully helped someone to forget their pain or situation for a minute and smile or laugh. Thanks for letting me share that with you. Dolly.. I would LOVE some of your recipes!! Would even buy a copy of your cookbook book, Mama Luchie! I like to cook all kinds of different ethnic meals. Ethan grew up not eating the same meal more than once in about every six months.

My prayers and thoughts go out to you Hrcamacho!!
Mare

• By purrfect46
• Reply 3377058
• September 15, 2012 at 9:10 am
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I had C-Diff,,,,,they removed all of my large intestine.colon. I was so close to dying that I was thrilled to have a pouch. I wanted to show everyone in the hospital! Sometimes I get mad when I put a new pouch on and it starts leaking the same day. The main thing is being so drained all the time.....its hard to describe but I feel like my legs want to melt. Other than that my illy doesn't bother me,,,,,,I eat everything I ate before surgery I even started eating popcorn recently!!!!

• By dollyme (Inactive)
• Reply 3377164
• September 15, 2012 at 9:46 am
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Oh Mare, that is too funny lol what a wonderful story. Oh my nothing like good old family stories. I love hearing them and you are right it is nice to have time out for a good laugh it keeps us balanced even though we are going through sickness and hard times. your son sound like a great guy you did good Mare with him.

I will give you one of my books when I am finished. Maybe you could share some of your recipies with me too.
Gosh you are a servant too cooking and sharing that food with others love expressing its self through your cooking. I think you might be Italian! lol

I would love to live by you girl.
God bless you
Dolly