Edamame

• By alan41241
• Reply 3325316
• August 27, 2012 at 1:13 pm
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Well, you go ahead and whine. That's alright. We are all here to listen and offer help if we can. Sounds like you had some real trouble. Are you back to normal now?
I believe what I might have done first would have been to call my surgeon or my ostomy nurse. Usually, whatever we are going through, those people have seen it all and have answers which has to be better than trial and error. I'm not sure what edamame is but I'll bet it will be a long time before you eat it again.
Blessings,
Alan

• By erin5
• Reply 3325572
• August 27, 2012 at 2:56 pm
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Edamame-soy beans.
No plans on eating them for a very long time if ever. I forget about calling them since my last surgery was 2 years ago, but they're still part of the care team. Chicken and beef broth for now. Even told my friend when I ordered it "I probably shouldn't eat that". I was right. I think I'll email the ostomy nurse.

• By dollyme (Inactive)
• Reply 3326380
• August 27, 2012 at 8:35 pm
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erin, so sorry you are hurting and you can whine here I do a lot of that myself. I agree with Alan to get medical help.
God bless you
Dolly

• By HappyS (Inactive)
• Reply 3327171
• August 28, 2012 at 6:05 am
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I had a similar problem some time ago after eating mushroom. Then discovered that certain foods (Mushrooms are one) continue to swell after you've eaten them and it does not matter how much you chew - the bits swell and can block. Maybe this is what happened with the Edamame. Im trying to get a list of foods that do this but can't find one, trial and, painful, error seems the only way.

• By debleerl
• Reply 3327255
• August 28, 2012 at 7:34 am
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Happy, here's a link to the lists. There is also blockage treatment advice here too.

http://www.ostomy.org/ostomy_info/#diet_nutrition

I have some edamame in the freezer my daughter gave me saying I would like it. I'll be sure to be careful and not eat much if I try it at all.

• By herbsgal70
• Reply 3327385
• August 28, 2012 at 8:30 am
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Erin5 - sorry you had such problems - as opposed to what you have, I have an ileostomy (since last December). I, too, have the occasional nighttime accidental breakthrough, but I sleep every night, without fail, wearing an old pair of underpants and a Depends pull-up panty over them. I have had the entire contents of my pouch decide to come out, but it is completely contained. I sleep very well, knowing that I will not have a mess to clean up - I have never had to change my bedding - and I imagine my husband would be very distressed if I leaked all over the bed. When I wake to find the occasional accident, I can just throw the panties and Depends away, shower, and reapply. My husband kids me every night, reminding me to put on my "diaper"! Hope this hint will help you to be more secure at night. God bless and hugs from Marge

• By HappyS (Inactive)
• Reply 3327694 · In reply to 3327255 by debleerl
• August 28, 2012 at 10:31 am
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Deb,

Thank you that's a great help.

• By amt52
• Reply 3327767
• August 28, 2012 at 10:54 am
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Deb, THANK YOU for the link. I wanted to mention that eating foods that have been dehydrated or freeze-dried before cooking is also dangerous. Like the mushrooms, They will "swell' inside the stomach. Example: Betty Crocker (or other brand) boxed potatoes stove-top, ie. scalloped, julienne. I learned this the hard way!

• By herbsgal70
• Reply 3327879
• August 28, 2012 at 11:39 am
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amt5 - I, too, made the mistake of eating what used to be one of our favorites - Betty Crocker scalloped potatoes. Even though I thought I chewed them thoroughly, they came through my ileostomy in chunks and caused a major "blow-out". I will check out the list in Deb's post. Hugs from Marge

• By WyoJane
• Reply 3327966
• August 28, 2012 at 12:10 pm
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Just a note from one Crohn's stoma the to another you may be soy intolerant. Body can't breakdown soy and for those with sensitive guts you might want to limit soy of any kind to see if it helps with over all health. I have a two other cousins with Crohns and we can't have gluten or too much soy. That could definitely be part of the problem. Sorry about your pain too.
I have found drinking green tea can help move the bowels, that is what my WOCN nurse had me do. Had a similar incident with popcorn awhile back.

• By erin5
• Reply 3328898
• August 28, 2012 at 6:01 pm
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I just emailed my gastro and hope to hear from him soon. There's the minor issue of a hurricane, so it may be a bit delayed. I'll let everyone know when he responds. Feeling slightly better, but still in pain. Last night it sounded like a duck was trying to escape from my stoma. Still clear liquids. Too bad we have all our favorite snacks for the storm and I can't eat. This is one way to lose weight fast.

• By Whzbang
• Reply 3329828
• August 29, 2012 at 2:03 am
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Dang! I just had edamame and sushi myself for dinner tonight! I know that soy in all forms--edamame beans, tofu, soymilk, etc-- can cause mucho gas, but I hadn't heard about the blockage issue.

• By Mare5785
• Reply 3330452
• August 29, 2012 at 10:20 am
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Wow Erin... Not good!
Sorry you are suffering so much from the edamame! If I want to partake in something I know will slow my output down to almost nothing, I will drink plenty of fluids while I'm eating it as to help wash it through. Drinking fruit juices when you think things are clogged up a bit will help. I like to use V8 juice, because I know it's a straight shot from intake to output.
If you get very nauseated and start to vomit.. you should go to the er immediately. An obstruction is nothing to be taken lightly!
Good choice to stay on liquids! It's hard to tell with us Crohn's patience whether it's food related or symptomatic of the disease..

I'm praying for this all to "pass" for you..and to get through BOTH storms!!! Quickly!!

Thanks Deb for the link!

• By erin5
• Reply 3342164
• September 2, 2012 at 5:29 pm
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My gastro responded on thurs to stay on clear liquids and if I wasn't doing better we'd add something else. I told him I had been doing clear liquids and had no output at all for 2 days. I even went w/just gauze bc I was confident there'd be no output. That was a freedom I haven't experienced since I was 17. I took another giant dose of mirilax and hoped. Fri morning I woke up and had to run to the bathroom bc mt st Helens was erupting. Actually it wasn't that much. Bf I could email my gastro he emailed back that I should probably come to the er for a ct and get checked. Didn't go bc I had output. However today, it's like the ogre went back to sleep. I think clinic's closed tomorrow, but I'll schedule an appt ASAP. Had hummus last night and white rice today. They aren't sitting too well, so I guess more mirilax until I can see my gastro. This liquid diet is for the birds.

• By debleerl
• Reply 3342231
• September 2, 2012 at 6:02 pm
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So sorry you are still having problems. I think you better get to the ER it's been 5 days now.

• By alan41241
• Reply 3342275
• September 2, 2012 at 6:31 pm
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I agree. The ER never closes. No waiting.
Blessings,
Alan