Doing fine

I thought I would send a message to you and say I am doing fine. Remember I had a Laparoscopic partial colectomy. I was lucky that the Dr. re-created my colon and intestines. The cramping is getting better and I am watching what I eat and eating very slow. My energy level is very low but I still do what I can. I can drive so that give me freedom. I only get on the scales once a week now because I get upset if I have not gained a lb. My weight last week was 106 and my normal weight before I got so sick was 135. My face is so thin it looks like a road map and my bones stick out all over this thin body except in the tummy area where I am bloated. I did go and by some tight pants yesterday so you can see I have a butt. I wore a size 8 pant to go shopping and without a belt they would fall off my hips. I am one of the lucky ones missing the Ostomy and I still read all that everyone is going through. Thank you doe this sight....Lou

10 replies   

Congratulations Lou!! I'm happy for you..and things are going well.. You will regain the weight in time.. be patient...
I would give anything to wear a tight pair of fitting jeans again!! lol.. Been 26 years since I have!!! I went around in sweat pants for the longest time.. now I guy 1 size larger.. just so it's comfortable to sit in while I'm eating.. and things are rushing to get out!! lol..

I have a problem with women's pants.. skirts..dresses.. as most skirts or dresses, do not have pocket... and almost all jeans or dress pants do not have nice big, long pockets like the mens pants do!!! I like to be able to put my hand in my pocket and feel my pouch.. or to conceal it a bit while I walk to the bathroom because it looks like a football stuffed in my pants! lol..

Glad things are good.. Please keep us posted..and thanks for letting us know!
Prayers,
Mare

Hi Louwho! I am glad to hear you are out of the woods and doing better day by day. As far as the weight gain goes, it is not unusual to lose 10-20 lbs according to my surgeon, and he also said that almost 100% of all the calories you ingest after surgery will go towards healing, but after several weeks, you will start gaining the weight back. I am six weeks out of my reversal surgery and am just now gaining weight again having lost 16 lbs this last time. The fun thing for me is that I can eat anything so I have been treating myself to hot fudge sundaes without feeling guilty!
I'll bet now that the infection is out of your body you will get the weight back on in good time.
Best wishes,
Cindy

Glad to hear you are doing good Lou. I always like to hear success stories.

Good Idea on the mens jeans Mare. Since the surgery I have lost 50 pounds so all of my clothes do not fit, but the jeans are the worst because before this I loved my low waist jeans so they just hit in that wrong spot.

Keep it up Lou.

JRO

Cindy... Glad you are enjoying your fudge sundaes!! After my surgery.. would have a HUGE float every night!! I don't do that anymore.. lol.. Glad things are going well!!

Janet.. I don't wear the men's jeans.. I would just like their larger pockets!!! lol..

oh hee hee, I get you. But it may not be to bad of an idea really, mens jeans just might work well.

I love floats to, yum, makes me want one right now.

Have a great night.

Thank you all for replying to my message. I have a closet full of size 6,8, and 10's pants. When I go out I go through a long process on what fits and what does not look so good. Yesterdays pants with out a belt I could walk out of them and they were a size 8. What Whzbang said is true. All the calories go to the healing process and then to the body after a many weeks. Whzbang I love your dog. We lost our Mikkie 2 months ago at 12 yrs. old. He was a diabetic and I sure miss him. He was a peak/malt, white with big brown eyes. i remember when I had the drain tube out my side I looked like I had one ball hanging down on the side of my pants. I then wore my larger pants to hide it. Take care everyone.....Lou

Hi lou - I have the opposite problem - I have gained about 20 pounds since my ileostomy surgery last December. On top of that I have a large abdominal hernia where my muscles were severed to clean out 5 liters of fecal matter when my colon perforated. I was told I could live with what I have now, instead of facing another life-threatening surgery at age 80. Fortunately, my shorts - which was all I had in my closet, living in south Florida, all have an exandable string closure. When we went north two weeks ago I needed some long pants, so I bought a pair of maternity pants which have a stretchy panel that goes over my hips all the way up to under the bust. They worked like a charm! A few days ago I started - with my primary doctor's permission - cutting back gradually on the 5mg Prednisone dose I have been taking for at least 3 years to combat polymyalgia rheumatica. I am now down to 2.5mg a day and next week I will go to the same every other day, and the next week every 3 days, etc. Hope this will help me be able to lose a few pounds, which I know will help with the belly bulge. I also wear a 9" wide surgical wrap during the day which supports my back which is stressed from the loss of support from the adbominal muscles.

Hugs from Marge

Marge, sometime I feel guilty reading what others are going through. I do thank God every day for giving me life back. You have been on Prednisone for such a long time. I know it is a very good drug but it also puts weight on you. At 80 years you sound like you are handling your situation pretty well for what you are going through. Take care and thank you for replying on my post...Lou

louwho - actually I am one of the lucky ones - I only had diverticulitis and scar tissue that caused the colon to perforate and I am left with the ileostomy and abdominal hernia, but it is no big deal. My "Mr. Wonderful" husband often compliments me on how I am dealing with my "Buddy" and wishes he could change places with me. I am just so happy to be rid of the crippling abdominal pain that I had for a couple of years that lasted from early evening, sometimes into the next afternoon, that I welcome the ileostomy. I am also dealing with insulin-dependent Type II Diabetes, but there is pretty much a no-brainer. I sometimes feel guilty too, not having to deal with cancer and some of the multiple surgeries, pain, and depression that so many others are. Actually, my one brief spot of depression was the afternoon I had a good cry for myself and felt much better - especially since my husband was holding me and comforting me! I say hooray! for being pain-free! LOL

Love and hugs from Marge

Marge we both my feel a little guility in our own ways for the health we have without pain and another operation etc. But we can contimue to support those who are still struggling. I have had ulcerated colitius since I was around ten yrs.old. Then they thought I had crohn's and maybe cancer. The surprise came when they operated on me I also had diverticulitis and that is what causes the infection and the hole in my intestine. Well that is all gone for now. I still have to remind myself I am not young any more and I need to slow down in recovery and let my body heal. The weight will come with time and then I will complain because I gained to much. Such is life. [ were is the speller when I need it ] Take care......

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