Ostomy Support Group

The Ostomy Support Group connects patients, families, friends and caregivers for support and inspiration... More about this group

Ostomy reversals--how soon can/should be done

By 1junebug · New reply 11:23 am
Discussion in Coping after ostomy surgery · 4 replies
It's been 3 months since my husband's surgery, leaving him with what the surgeon called a permanent ostomy. Things have changed considerably since then, though. After getting a second opinion, his diagnosis ...

It's Done- Now to a New Beginning

By Jer_ · New reply 11:13 am
Journal · 14 replies
The procedure, as planned, was done exactly a week ago today. I woke up feeling good and continued to feel good throughout most part of the next 72 or so hours with having a very minimum of pain medication ...

Got my reversal date!

By ljg765 · New reply 11:04 am
Discussion in Coping after ostomy surgery · 8 replies
Just got my reversal date for my ileostomy this afternoon. It'll be on May 31st. I've had so many problems with this that I am VERY glad to be almost done. My only worry is the after affects of it...mainly ...

Sixty Two -- a birthday poem

By candacepoet · New reply 10:42 am
Journal · 17 replies
You knew it had to be coming -- how could I resist writing a poem for my birthday? I hope you can relate and enjoy. Love and Light, Candace Sixty Two Sixty two years now I’ve lived on this earth; Forty ...

Baby Steps

By kschalk · New reply 10:39 am
Discussion in Feeling good about yourself · 3 replies
So I am feeling good this morning. This was the first time since my surgery (3 weeks ago) that I changed my own sotomy bag. It was out of necessity since I sprung a leak but I did it nonetheless. I also ...

Day 11 and I feel like I shouldnt be posting daily now...

By kellybellybeans · New reply 9:56 am
Journal · 4 replies
Day 11 life is getting back to "normal" I went all day with no pain meds or motrin, only taking my colace and milk of mag. This morning I changed my bed clothes and did a load of laundry(a small load ...

Talking About Cancer at Work

By RachelIdon · New reply 8:53 am
Journal · 4 replies
http://www.1uponcancer.com/2013/05/24/ta lking-about-cancer-at-work/ Have a nice holiday weekend if you see this before Tuesday and have a great week if you see this post later. Rachel ...

Seven weeks post Botox

By candacepoet · New reply 7:56 am
Journal · 3 replies
I think that this will be my last weekly post on how I'm doing after the Botox injection. It was successful in allowing me to keep down solid foods and to "eat for pleasure." Not so successful in helping ...

Bad Luck

By buckeyes · New reply 7:45 am
Journal · 3 replies
Went in for Diverticulitis surgery to remove a "small section" of the intestine on March 9th, 2011. Six days later it leaked and I was into full blown sepsis, followed with 3 weeks of ventilator, 17 surgeries ...

farting in public!

By PattiLove · New reply 7:28 am
Discussion in Feeling good about yourself · 21 replies
Ain't life grand!? So embarrassing .... especially when you have just met a new "interest"! How do you explain this to someone new without scaring them away ...

skin prep

By foxwoods777 · New reply 1:20 am
Discussion in Rashes and skin problems · 8 replies
Hi everyone, I am not very good at posting, but I read all the posts here, I am A little confused about when I read to use "skin prep" does the label say skin prep Or is it called by a different name.i ...

Vegetable oil in bag??

By hops_68 · New reply 1:16 am
Discussion in Pouching options · 17 replies
Does anybody use vegetable oil to lubricate their bag ...

Changing of bag

By villam · New reply 12:55 am
Discussion in Coping after ostomy surgery · 12 replies
Just was wondering how often everyone changes their bag. Is once a week not often enough? Also why is my output always so watery ...

JULY 11th..Ileostomy Surgery!!!

By survived2000 · New reply yesterday at 7:09 pm
Journal · 13 replies
Its happening!! Total pelvic reconstruction. Female organs looking like endo cancer, another test tomorrow. Just got the call from Cleveland Clinic, who will be doing the surgery. I am so happy this is ...

Another RC patient -Maidan on the mend !

By snettie · New reply yesterday at 6:34 pm
Journal · 9 replies
I have received a message that I was asked would I relay to you. Maidan is recovering really well following her operation on Monday god bless her, the digestive system is already up and running and she ...

Pants/Skirts over/under Pouch

By LoveTheBeachNana · New reply yesterday at 6:24 pm
Discussion in Clothing · 21 replies
I had my colostomy in September 2012 and have also been undergoing chemo for Ovarian Cancer. I hope to have my last round of chemo in May and getting back to work by June/July. My stoma is above my pants ...

Illiestomy Reversal and Crohns

By Taylor2222 · New reply yesterday at 5:45 pm
Discussion in Welcome · 3 replies
Hi everyone, Im new here. I was diagnosed with Crohn's in December 2012, went on various medications and was hospitalised 4 times until I had emergency surgery and now I have a temporary (hopefully) illiestomy ...

On the 10th day of post op my surgeon said to me..........

By kellybellybeans · New reply yesterday at 5:28 pm
Journal · 9 replies
♫Looks like you're healing niccceeeely!♫ Ok I really am not a fan of Christmas or its music, lol, but it just fit :) Day 10 hasnt been so bad, I went to good ol Wal Mart and went and seen my surgeon ...

PFD Bad News

By cactusun · New reply yesterday at 3:02 pm
Discussion in Feeling good about yourself · 9 replies
I just spoke with the Mayo Clinic and was told that there is nothing else that they can do for me and that when I am ready that I should meet with a surgeon. I am devastated!!! I am going to try Botox ...

Doing my part to raise awareness

By Doogie29 · New reply yesterday at 2:07 pm
Discussion in Coping after ostomy surgery · 9 replies
Please read my personal story which CNN featured on their homepage last week for about four days. Now it has a permanent home. Please share and send this article to as many people as you can. The more ...

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The Ostomy Support Group connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by Great Comebacks, an Inspire trusted partner.