Ostomy Support Group

The Ostomy Support Group connects patients, families, friends and caregivers for support and inspiration... More about this group

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Started a BLOG, it feels good to share

By RandyHenniger · New reply yesterday at 10:29 pm
Journal · 7 replies
If you are not journaling or blogging, I suggest you consider starting one. I find it really helps me focus and sharing with others makes me feel better. http://activeostomates.wordpress.com/ Be WELL ...

I'm overwhelmed !!

By Jamesmemaw · Posted yesterday at 9:42 pm
Journal · 0 replies
Before I was 58 I had only been in the hospitable 4 times. When my sons were born, I had a surgery when I was 24, and at about 40 I broke my leg in 3 places. And then i had a heart attack, and before ...

Disposable poaching systems

By Stewby · New reply yesterday at 8:41 pm
Discussion in Pouching options · 8 replies
I had my colostomy 7 weeks ago. After trying the drain able one piece systems (messy) I am now using the two piece disposable Hollister pouches. Has anyone had experience with them? Good or bad ...

Spa Visits

By Rosebud2012 · New reply yesterday at 8:29 pm
Journal · 6 replies
Has anyone had a spa day post ostomy surgery? For mothers day this year my son gave me a real nice gift to a spa. The type of spa treatment would include a mud soak, and deep tissue massage. I haven't ...

Opalbentley

By Opalbentley · New reply yesterday at 7:29 pm
Discussion in Coping after ostomy surgery · 4 replies
Went rafting the other day, it was awesome. I'm back to old self post IleostomyI of 4 months ...

Shower without bag and wafer?

By ReneG · New reply yesterday at 1:59 pm
Discussion in Bathing and showering · 53 replies
Does anyone out there shower without the wafer and bag attached. I have been told on a few occasions that people do this, and that water, soap etc will not get in or bother the stoma ...

SCARED

By fancy1965 · New reply yesterday at 1:57 pm
Discussion in Coping after ostomy surgery · 32 replies
I had my ileostomy a month ago. I have become so depressed that I have thought of suicide. I am not sure if this will help but I have talked to people that can not understand this life changing event ...

Just had a colostomy in December

By Melissaj72 · New reply yesterday at 1:49 pm
Discussion in Taking medication · 8 replies
I my name is Melissa I am 39 yrs old and went thru a year of operations to repair a rectovaginal fistula, which ended with all surgeries failing I think a total of 7 surgeries. I had my colostomy surgery ...

pouch odod

By llamamama · New reply yesterday at 12:13 pm
Discussion in Gas and odor management · 48 replies
I have had my colostomy after emergency surgery about 9 wks now. I have found the best help from the ostomy nurses at ConvaTec. My question, is it normal to have odor from you pouch? The nurse tells me ...

weight loss/gain and taste

By Chas924 · New reply yesterday at 10:44 am
Discussion in Diet and exercise · 4 replies
I had my colon removed on April 17 - spent 3 weeks in the hospital because of complications and the fact that the surgeon could not remove it laparoscopically (?) but had to make an incision. I have now ...

ouch pain

By dollyme · New reply May 15, 2012
Discussion in Coping after ostomy surgery · 2 replies
Hello once again, The past few days I am having pain in my side where my gall bladder once was. It starts there and goes down to the rectum. I am puzzled I have had them off and on. I even went to hospital ...

13 Days Post Op....So many questions...

By LuckyHubby · New reply May 15, 2012
Discussion in Coping after ostomy surgery · 10 replies
Hello.....Im am new to this site and am not really sure what Im doing. I just had a illeostomy with full collectomy (they sewed my bum shut...omg) on April 30, 2012 and am 13 days into this new life journey ...

Why, mommy?

By mariegirls · New reply May 15, 2012
Discussion in Dating, relationships and sexuality · 3 replies
Hi all, I have a toddler at home and though she's too young now, I know the time is coming when she'll ask questions about my colostomy. I'd love to hear from anyone with kids/grandkids about how you ...

You might be a cancer survivor if...HUMOR

By RandyHenniger · Posted May 15, 2012
Discussion in Feeling good about yourself · 0 replies
You might be a Cancer Survivor if: You commonly use the abbreviations – dx, hx, rx, sx, tx – and you have never been to medical school. You actually know the meaning of NED….not a guy from a movie You ...

Physical Activity linked to improved colon cancer survival

By RandyHenniger · New reply May 15, 2012
Discussion in Diet and exercise · 19 replies
Edward L. Giovannucci, M.D., ScD, of the Department of Nutrition at the Harvard School of Public Health, writes that physical activity may extend the life-span of the cancer survivor, as well as their ...

Bathing Suits and the beach...

By xformerveganx · New reply May 15, 2012
Discussion in Clothing · 21 replies
Just wondering if young women have had any success wearing fashionable bathing suits and how they deal with the beach and water... Any tips/pointers would be greatly appreciated ...

Ileostomy reversal: Worries

By ThreeStone · New reply May 14, 2012
Discussion in Coping after ostomy surgery · 27 replies
Next week I will have surgery to reverse my ileostomy. I've heard that some people doing this have serious difficulties with incontinence, skin irritation and in general cannot be too far from a toilet ...

Mon. May 14,2012

By kissamebear · New reply May 14, 2012
Journal · 1 reply
Day 7 since my surgery. Things are still very difficult and the pain is still great at times. This is my first day of having my 25 yr. old son as my helper as my hubby had to go back to work. I hope today ...

NEDSMOM

By NEDSMOM · New reply May 14, 2012
Discussion in Welcome · 5 replies
I received a message from someone in this group suggesting a company in the UK to get information regarding hernia belts and/or girdles. I have been emailing them but have not received any replies. Has ...

New Ostomate

By peds · New reply May 14, 2012
Journal · 9 replies
My husband received an ileostomy eight days ago to deal with aggressive Crohn's which they could no longer control with meds. We have been practically "homebound" for the last 2 years, due to the unreliable ...

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The Ostomy Support Group connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by Great Comebacks, an Inspire trusted partner.