blind from not processing it correctly in the brain?

Keera hasn't ever stopped moving her eyes or acted like she could see since she was born, they used to go side to side quickly and then plung deeply down to where you could just barely see any of her eye. they've slowed down, but she had an appt in Seattle a few weeks ago with a eye specialist and she said that her eyes were good as far as not retinal disease and everything is there, so that led us to another specialist the next day who performed a VEP on her eyes so we could know how much if any she can see. it went terrible! Keera refused to look at the screen long enough, he seemed to think that it was very abnormal for her to not settle down and look at the screen after they hooked all the wires on her head. its only supposed to take 5 mins, but we tried and tried and he only got 2 of the 5 tests completed, he then told us to bag it and come back another time, he said, "what i did get, was very abnormal, so i don't want to go off of it." We've heard this from the first day i took her into the emergency room back in november when she got diagnosed. i mean about everything, every test, MRI, EEg, and every other thing they've performed on her. so we asked him what he'd say if he did go off of it, he replied, "well it's kind of important how fast it gets to the brain." thats it! she is progressing in the way that the Opthmologist in Spokane (who we first saw) couldn't get her eyes to dialate 2 times, and the second time they used three sets of drops! but this last exam in Seattle, they looked at me like i was imagining it,(they for some reason didn't have the medical records) and sure enough they dialated!! so this is good right? Everyone says that the eyes ALWAYS dialate, but they didn't with her, what does that mean? Has anyone else had this happen? we have to go back to seattle on the 25th to try it again, i hope she atleast cooperates to get a diagnoses! I also want to get a second opinion on her metabolic disorder with a specialist in Boston I've heard about, but how do I go about it? do i just ask him ? what about a referral? I really want keera to develope to the best of her abilities, at this point she is 9 months old, and just last week is the first time she's ever rolled over from back to stomach (only on the floor where its a hard surface), her brain looked very bad on the last MRI, bad enough that the Nuerologists have said, "there's some severe concerns for the future, we don't want to give you any false hope." And when they first told us, "we don't know what this means for keera but its a good possibility that she may never sit up, crawl, walk, talk, or go to public school!" So, i think even though she has medicaid we have the right to a second opinion right? Thanks to all who take the time to read this! I just need to vent, and hopefully get as much info as i can!