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Parents' corner
Share advice with fellow parents of HPEN consumers on such issues as school, siblings, mobility, etc.
Mickey G-J tube
- By SBMom4 · New reply November 22, 2009
- 13 replies
- I am new to the group....hoping someone can help! My daughter had her Gtube removed in January (due to increased aspiration pnuemonia) and they placed a low profile Mickey G-J tube. She is on continous ...
Bile Draining Methods
- By cdpmom · New reply November 22, 2009
- 5 replies
- My son has had a g tube for a year, and was "upgraded" to a g/j tube in August due to bilious vomiting. Feeding through the j port has dramatically improved his ability to tolerate feeds, but lately ...
Swallowing dysfunction
- By Val123 · New reply October 29, 2009
- 8 replies
- My doughter is two. Few months ago, she had G-tube placed because of aspirations. She cannot have anything by mouth, not even some water. She is otherwise healthy toddler. Does anybody has tha same or ...
Help with ideas for getting around with a TPN dependent 19 month old
- By mlhps · New reply October 26, 2009
- 8 replies
- My daughter recently had a central line placed and is on 24-hour TPN/Lipids. After 19 months of tons of GI problems and not feeling well because of them, she finally feels great and wants to just run ...
Newbie to the Group
- By Bensmamma39 · New reply October 24, 2009
- 17 replies
- I was diagnosed with gastroparesis on 8-15-09. Although I had the upper abdominal swelling and discomfort for quite a while but just thought I was getting fat.... I have to say the nausea is the worst ...
Neocate one plus...
- By ninandtom · New reply October 19, 2009
- 3 replies
- Our Son Conor is on Neocate One Plus and we are very fortunate that it is covered by his medical. As we know the expense of the formula and that not everyone is as fortunate to have decent coverage we ...
I need your help to deliver a message to researchers of gastroparesis
- By Pammers52 · New reply October 13, 2009
- 6 replies
- I am the mother of a 23 year old daughter with gastroparesis. I decided about 3 weeks ago that I needed to become more involved and become an advocate for those with gastroparesis as many don't have the ...
Starting school
- By regbrigidmom · New reply October 5, 2009
- 3 replies
- I am sorry for the short notice on this question... Brigid, my daughter, is ready to start school this year. Due to administrative incompetence (the details of which would take hours to explain) she is ...
Hello!
- By jalenboyce · New reply October 3, 2009
- 3 replies
- I am a single mother of two boys. My oldest son is 7. His name is Jalen and he was born with short gut syndrome. He has a cental line and has been TPN depentent since birth. He recives feeds through a ...
Baby has Pseudo Obstruction
- By Sweater20 · New reply September 3, 2009
- 2 replies
- Hi there...I'm new here. My 13 month old son has a GJ button, and has thrown up constantly since about 2 months old. We always thought it was just severe reflux, until we had a motility study done on ...
Looking for Help
- By Mac123 · New reply September 1, 2009
- 8 replies
- I will soon be losing my son's 2ndry insurance which covers the formula he needs to gain weight. Over 1/2 of his neutrition is supplied through this formula. I have went to the company which makes it ...
Liver and Transplant
- By AlissasMommy · New reply September 1, 2009
- 1 reply
- Hi, I am writing to ask about your transplant. my daughter Alissa is facing a multi-vis transplant. she is 2 and I am terrified right now. I really need some advice. As well as to just ask questions about ...
help g-tube or gj tube
- By ojayw31 · New reply August 24, 2009
- 20 replies
- i need some in put on my daughter is eight she was diagnose with reflux she also has a phon-doe is totally depending on someone to do for her. my question is one day i put her on a for night feeding and ...
Obstructive Pseudo Motility Disorder Please Help!
- By proudmom2x · New reply August 20, 2009
- 18 replies
- Ok I am praying that I can find someone on here that may can help me know what is the next step for treatment of my daughter. My daughter is almost 5 years old and in August 2008 she was diagnosed with ...
Urinary Tract Infections [UTI's]
- By whos_your_dolly · New reply August 15, 2009
- 10 replies
- My younger son, 18, has been partially paralyzed from the waist down for several years [since a spinal surgery gone wrong] which has led to him having to be catheterized 4-6 X/day. Even though we use ...
Scared for my daughter
- By kaitlynsmommy85 · New reply June 16, 2009
- 2 replies
- So I'm getting really scared for next week. My daughter Kaitlyn will undergo her second open heart surgery in a years time. The last time she had surgery we amost lost her 3 times. Out of the those three ...
NPO, Aspirations and water fun
- By Val123 · Posted June 10, 2009
- 0 replies
- My daughter is 2.5 and can not eat neither drink because of the aspirations. She loves to play in the water and we are going to Florida in July for the conference. However, yesterday while in her baby ...
Infants and MIC-KEY buttons
- By shawntain · New reply June 9, 2009
- 4 replies
- We have had a doozie of a time with our 3 month old son's MIC-KEY button! Just wondering if others have thoughts/solutions to these issues.... - It is larger and more rigid than the base of the silicone ...
J tube drainage/Roux n Y surgery
- By janegmx · New reply May 14, 2009
- 4 replies
- Our 15 year old son is profoundly disabled and has been tube fed for 12 years. We first placed a G-tube and a few years later attempted to solve severe reflux with a Nissen fundoplication. The surgery ...
Blended food diets for G-tube users
- By jsmom67 · New reply February 26, 2009
- 2 replies
- I was wondering if anyone knows about a menu available for blended food diets for g-tube feedings? My son is 20 months old and has CP--complicated by weak neck muscles. He is 100% g-tube fed, and i am ...
