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Home tube feeding (HEN, enteral nutrition)
Share your story, ask questions, and offer support.
Having a hard time adjusting to my 'new normal'
- By jackrabbit · New reply September 25, 2009
- 7 replies
- I was doing well for the first two weeks after the PEG insertion. Everyone told me what a great attitude I had, how well I was adjusting. Well, I seem to have hit a concrete wall. I'm finding it really ...
Tired of the pain
- By karenlas · New reply September 21, 2009
- 3 replies
- Trevor's had a horrible week with pain. The gp is out of control and the sbbo is giving him fits. As his gi says,"I have no magic wand to fix this", I get it, but this is no way for an 11 yr old boy to ...
Question for those using Infinity Pumps.
- By marycb · New reply September 14, 2009
- 12 replies
- For those of you who use the Enteralite Infinity feeding pump, what happens it you run out of formula during a feeding. Are you able to refill the bag and continue the feeding without having air in the ...
Excess saliva
- By Vicik · New reply September 10, 2009
- 16 replies
- Does anyone else have trouble coughing up excess saliva? I have a swallowing disorder and aspirate into my lungs. I have days where I just seem to cough up excess saliva all day or I would choke on it ...
AMT Mini One Button vs Mic-Key button
- By peg07 · New reply September 10, 2009
- 7 replies
- Hello, Could you who have buttons tell me if you have found the AMT Mini One Button more reliable than the Mic-Key button made by Kimberly Clark? I am 62 have had a feeding tube for two years because ...
Complete lack of energy
- By jackrabbit · New reply September 6, 2009
- 2 replies
- I've been on Isosource HN with fiber for a little over two weeks. 6 cans/day. My energy levels have been progressively diminishing. I am beginning to feel almost as bad as I did before I had the tube ...
Iron Supplements... Help!
- By ShannonCanada · New reply September 4, 2009
- 7 replies
- Does anyone know of an iron supplement that can go down a J-tube and will NOT cause constipation? I have been anemic now for a few years. Unfortunately I cannot take any iron supplements by mouth. My ...
Feel Alone
- By KTennyson · New reply September 4, 2009
- 4 replies
- Well, here is my story. I was morbid obese and decided to have a "life-saving" operation. I had RYGB so that I could lose weight. Well, IT WORKED!!!! I kept, losing, and losing, and losing..... The doctor ...
pregnancy and tube feeding
- By prettykitty · New reply September 4, 2009
- 1 reply
- I use a GJ feeding tube for supplemental formula and my medications due to gastroparesis. Well, I'm getting to an age where I'm wanting to have a baby and I can't find any information anywhere on if women ...
what pump do u have?
- By prettykitty · New reply September 2, 2009
- 10 replies
- I was just curious as to what feeding pump do you guys have and like. Are there any pumps that you don't like? Is there anything you'd change on your pump to make it more user-friendly? I have used 2 ...
I am ALWAYS hungry on canned formula
- By jackrabbit · New reply September 2, 2009
- 12 replies
- I'm on 6 cans/day of Isosource HN with Fibre. My intake is about 1800 calories. It's only been ten days since my surgery, and since I'm fairly sedentary at the moment (until I get the okay from my doc ...
Homemade food vs. canned formula?
- By jackrabbit · New reply September 2, 2009
- 16 replies
- As a former athlete and health-concious eater, I'm not real happy about being on these canned meal replacement formulas. While I understand that they have a perfect balance of protein/carbs/fat/fiber/vitamins/mineral ...
Why is there a risk of aspiration?
- By jackrabbit · New reply August 31, 2009
- 5 replies
- I've been told that I have to feed while sitting upright, and that I have to remain upright for an hour afterward to prevent fluid aspiration into my lungs. I've forgotton a few times, because ever since ...
Unususal ring around J stoma
- By regbrigidmom · New reply August 29, 2009
- 2 replies
- My daughter is almost 4, and is TPN dependent with a trickle of elemental feeds going through her j-tube (a roux-en-y) and her g-tube to straight drainage. Her g stoma is usually decent looking (aside ...
Old Threads on Preferred Enteral Pumps?
- By Genia · New reply August 29, 2009
- 8 replies
- Hi, I'm sure that there have been discussions in the past about which enteral pumps people prefer. My son currently uses a Kangaroo e-pump. We despise it. I'd like to review people's opinions on various ...
A Little About "My J Tube"
- By WebDude · Posted August 28, 2009
- 0 replies
- Hi Folks --- A little more than one year ago I gave up my stomach, spleen, esophagus, a rib, and a little bit of the lungs. I checked into our local hospital in Mesa Arizona, for what was to be a three ...
a gtube with a balloon vs a non balloon system
- By jmkaya · New reply August 27, 2009
- 23 replies
- There was a discussion a while ago which somebody was talking about their button causing major pain and possibly being pulled in that the stomach was actually acting as if the balloon was food and trying ...
gtubes in toddlers
- By jmkaya · New reply August 27, 2009
- 27 replies
- hi everybody...i am looking for some help. my son is one and has had a gtube from the age of 2 months old. he has never gone more than 4 weeks without i spoke to the kimberly clark people and they told ...
What does G-tube feeding feel like? Our infant shows discomfort....
- By shawntain · New reply August 25, 2009
- 7 replies
- Just hoping that some adult users of g-tubes can help my husband and I understand what tube feeding feels like. Can it be uncomfortable? Our 3-month old son Heath sometimes (not always) is very sensitive ...
pain after gtube out
- By elysmom · New reply August 25, 2009
- 3 replies
- Hello, i just joined this group. I apologize if I'm putting this in the wrong topic. My 3 yr daughter had a MIC-key button since she was 6 months old. Three weeks ago, it came out and her GI said it was ...
