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Home tube feeding (HEN, enteral nutrition)
Share your story, ask questions, and offer support.
J tube feeds
- By josada · New reply November 8, 2009
- 5 replies
- I appreciate all of the information shared regarding J tube feeds with a pump. Does anyone bolus small amounts into a J tube ...
balloon popping in the GJ tube
- By prettykitty · New reply November 1, 2009
- 6 replies
- Has anyone had trouble with the balloon that holds a GJ tube in place deflating before they are scheduled to get the tube replaced? Do your tubes fall out completely as a result? I had this happen in ...
C. Diff
- By kayjay35 · New reply October 28, 2009
- 8 replies
- Has anyone contracted c. diff while having a j-tube? My husband received his first j-tube in January 2008 and has had c. diff 3 times since then. It usually occurs shortly after having his tube changed ...
Vita-Mix really worth the money?
- By dees · New reply October 28, 2009
- 18 replies
- So my hubby and I went to one of those "home shows" and saw the Vita-Mix guy whipping up his drinks. B4 I had my G-tube, I never gave it another thought but I've heard from a few that they work. They ...
Stoma bleeding - normal?
- By jackrabbit · New reply October 25, 2009
- 4 replies
- I know, I know, all I ever do on this forum is ask questions, but hey, I'm brand new to this. Previously I wore a gauze pad under the PEG's rubber stopper 24/7 (changing it once a day, of course) to help ...
Help My Friend w/disabled enteral feeding child
- By cheneyfox · New reply October 24, 2009
- 9 replies
- I have a friend who has a child who is completely disabled. She is on enteral feedings. Recently she and her family, she has 2 other children, moved to a rural community. Now she is having trouble finding ...
short bowel children and eating while have enteral feeds
- By sophie517 · New reply October 21, 2009
- 6 replies
- My daughter is 17 months old has short bowel and is currenly on TPN 3 nights a week and hydration 4 nights a week. She receives 46cc per hr enterally, she is able to eat food and she was eating a small ...
How much water should I be taking?
- By jackrabbit · New reply October 18, 2009
- 2 replies
- I'm struggling to get enough water in on top of my formula. I'm usually averaging no more than 4 c of water/day, and some days far less. My dietician told me that since the formula is 70 percent water ...
How do I know when my stoma is healed enough to exercise?
- By jackrabbit · New reply October 18, 2009
- 6 replies
- I was told that I need to wait 6-8 wks for my stoma to heal b4 starting any exercise program. It's now been 7 and 1/2 wks and I don't know how to tell if my stoma is healed enough. What does a healed ...
Doudenal tube feeding?
- By nikki242 · Posted October 14, 2009
- 0 replies
- I just had a duedenal tube placed. I went in to have a J tube placed, but b/c of a prior surgery they couldn't place it that far without open placement so its in the duedenom. I've never heard of this ...
Losing weight on formula...
- By jackrabbit · New reply October 13, 2009
- 15 replies
- I'm on Isosource HN High Protein with Fiber, 6 cans per day (300 cals/can = 1800 cals/day) (BTW, I know I'd talked about switching to a blenderized diet previously, but at the time I don't have the money ...
Need help with g-tube draining bag and connectors
- By LQ · New reply October 12, 2009
- 3 replies
- Hello, My daughter got a G tube last Friday and we are having a heck of a tme finding a bag to use for her to drain in during the night so we don't have to wake up and drain her with a syringe. She has ...
balloon vs. non-balloon
- By jackrabbit · New reply October 11, 2009
- 9 replies
- I'm sure there's been discussions about this before... I'll be getting my PEG replaced with a button in a couple weeks and want to know which kind to get the doctor to request. I'm not real keen on having ...
Rib muscle pain ever since PEG insertion
- By jackrabbit · New reply October 8, 2009
- 2 replies
- Just wondering if this was a common thing... Ever since my PEG insertion, I've had pain in my left side around my ribs/abs. I can't sleep on my left side; and any time I exert myself or go over a bump ...
Almost passed out when adjusting PEG - normal?
- By jackrabbit · New reply October 7, 2009
- 3 replies
- It's been 1 and 1/2 months since I had the PEG inserted, and I'm supposed to turn the tube every day as well as push it in and out to keep it from adhering to the stomach wall. I was really sick recently ...
Seven Weeks in the Hospital and Counting
- By Abiah · New reply October 7, 2009
- 30 replies
- So I've been in the hospital now for seven weeks today. It has to do with that awful pain by my J tube that won't go away and makes using the tube torturous. Since I use my J tube for all my meds, they've ...
Name of sticker to hold tube against body?
- By Sweater20 · New reply October 7, 2009
- 1 reply
- Hi there, I'm new here. My 13 month old son has a GJ tube and I'm looking for ways to make sure he can move around without yanking on the tubes (he has an active twin as well!). I've heard of a "bone ...
My parent is EMBARRASSED by my PEG!
- By jackrabbit · New reply October 2, 2009
- 18 replies
- I wear the tube pinned to the outside of my shirt. I find this more convenient, less hassle, easier access, more comfortable. My mom thinks it's rude of me to have the tube visible. She says I will gross ...
Having a hard time adjusting to my 'new normal'
- By jackrabbit · New reply September 25, 2009
- 7 replies
- I was doing well for the first two weeks after the PEG insertion. Everyone told me what a great attitude I had, how well I was adjusting. Well, I seem to have hit a concrete wall. I'm finding it really ...
Tired of the pain
- By karenlas · New reply September 21, 2009
- 3 replies
- Trevor's had a horrible week with pain. The gp is out of control and the sbbo is giving him fits. As his gi says,"I have no magic wand to fix this", I get it, but this is no way for an 11 yr old boy to ...
