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Home tube feeding (HEN, enteral nutrition)
Share your story, ask questions, and offer support.
Leakage on PEG
- By bbidals · New reply 3:51 pm
- 1 reply
- Both times that I had a PEG put in I had a lot of problems with leakage. I am fairly active so the more I moved, the more it leaked. Did not like going out in public because the front of my shirt got ...
Dealing with a hugely unsupportive caregiver
- By jackrabbit · New reply 9:34 am
- 8 replies
- I'm sure some of you already read about the fiasco with my mother trying to make me cover up my g-tube so I didn't 'make people vomit' and 'get kicked out of public places by security', and then tried ...
Mic-KEY button "sucked in"
- By PeytonsParents · New reply yesterday at 1:05 pm
- 5 replies
- Hi, I am new to the group but not new to tube feedings. My daughter is now 26 months and has been g tube fed since shortly after birth. I am looking for advice on a new g tube problem that we don't have ...
Michael Moore's warning for Canada - he's CLUELESS
- By jackrabbit · New reply yesterday at 12:41 pm
- 5 replies
- I know it's not new to rant about Michael Moore, but his inane statement about Canada's healthcare system make me really mad. From Yahoo news: Documentary filmmaker Michael Moore says Canadians have to ...
Adapter
- By dees · New reply November 19, 2009
- 1 reply
- Any ideas on a new adapter for my 20 french tube? Only 10 wks & I've had to change out my adapter. The Boston Scientific 20fr Y port adapter is designed for those who use a pump, but I use cans and the ...
The biggest GTube in Food Inc the film
- By DungBeetle · New reply November 18, 2009
- 2 replies
- I know I said I wanted a pill port and didn't care how big the stoma needed to be~~well, I changed my mind after seeing the biggest dang stoma and "button" on a COW in the film Food Inc. They are using ...
Food-deprivation driving me mad - help!
- By jackrabbit · New reply November 16, 2009
- 9 replies
- The damaged nerves in my face affect my tongue, teeth, and the roof of my mouth. Any flavor, texture, or temperature difference causes murderous pain which lasts for days, hence the reason for my g-tube ...
Vivonex RTF Formula & Rate
- By ranee · New reply November 16, 2009
- 3 replies
- I have been switched off of Peptimen which I could feed at a rate of up to 120mL / hr to Vivonex which they said I could not feed faster than 40mL / hr. This requires that I feed 24hours a day and is ...
Asking g-tube athletes - questions about formula's fat level
- By jackrabbit · New reply November 15, 2009
- 2 replies
- Before my injury I had a muscular, rock hard physique. Post-injury I lost 25 lbs of muscle, and my leanmass-fat ratio changed drastically. After having the PEG tube inserted I've gained back 11 lbs, but ...
J tube replacement w/o anestesia
- By ranee · New reply November 15, 2009
- 5 replies
- I recently had my J tube replaced for the 2nd time- only was shocked when the dr at a well known clinic did it with no warning and no anestesia or pain meds. Let's just say it was a bloody and painful ...
Feed Pump Question
- By Duran · New reply November 12, 2009
- 16 replies
- Hi - I'm new to Oley/Inspire and am looking for opinions on feeding pumps. Planning to get a pump for g-tube feedings for my son, but want one that you can clean the bags and tubing without using the ...
Calorie questions...
- By jackrabbit · New reply November 11, 2009
- 8 replies
- I've talked b4 about wanting to switch to a homemade blender diet, but I can't afford it right now. I cannot afford any food whatsoever, so am unsure what to do about my constant hunger. Perhaps the hunger ...
Can I still remain physically active/fit with a g-tube
- By jackrabbit · New reply November 11, 2009
- 22 replies
- My surgeon has never inserted a PEG tube in someone who's still able to walk. By this I assume he means he's only performed the procedure on disabled/bedridden/elderly/dying patients. I'm his first physically ...
Skin red around Amt Button
- By peg07 · New reply November 11, 2009
- 3 replies
- Hi It is me again -- I had my first Amt button inserted on Thursday. It feels tight and the skin around the button is red. Is this the way it is suppose to be? Peg ...
Need Advice about AMT feeding extensions
- By peg07 · New reply November 11, 2009
- 15 replies
- To those of you who have AMT balloon buttons. How long do you use your feeding extension tubes? The AMT website says they should be changed every two to three weeks. Is that your experience? I went longer ...
I need a Gtube with a pill port
- By DungBeetle · New reply November 11, 2009
- 16 replies
- I am being told of new meds on the market that could really help my guy who is 100% Gtube (no swallow/gap reflex) to help manage his crohn's dx~~~alas, the meds are pill and must keep whole to work in ...
J tube feeds
- By josada · New reply November 8, 2009
- 5 replies
- I appreciate all of the information shared regarding J tube feeds with a pump. Does anyone bolus small amounts into a J tube ...
balloon popping in the GJ tube
- By prettykitty · New reply November 1, 2009
- 6 replies
- Has anyone had trouble with the balloon that holds a GJ tube in place deflating before they are scheduled to get the tube replaced? Do your tubes fall out completely as a result? I had this happen in ...
C. Diff
- By kayjay35 · New reply October 28, 2009
- 8 replies
- Has anyone contracted c. diff while having a j-tube? My husband received his first j-tube in January 2008 and has had c. diff 3 times since then. It usually occurs shortly after having his tube changed ...
Vita-Mix really worth the money?
- By dees · New reply October 28, 2009
- 18 replies
- So my hubby and I went to one of those "home shows" and saw the Vita-Mix guy whipping up his drinks. B4 I had my G-tube, I never gave it another thought but I've heard from a few that they work. They ...
