Share your story, ask questions, and offer support.
- By dees · New reply yesterday at 8:54 pm
- 13 replies
- So my hubby and I went to one of those "home shows" and saw the Vita-Mix guy whipping up his drinks. B4 I had my G-tube, I never gave it another thought but I've heard from a few that they work. They ...
- By Mobilityteacher · New reply November 29, 2008
- 6 replies
- Hey Folks I am a teacher of special education in California. My student’s mostly have cerebral palsy, are medically fragile, have severe cognitive impairments and 3/4ths of them have gastronomy feeding ...
- By rd2b · New reply November 25, 2008
- 2 replies
- Hi! I am trying to find out if there is such a thing as a vegan formula (standard, polymeric formula), for a PEG. I'm in Canada, so any formulas available in Canada would be great - but I'm willing to ...
- By Little_Turtle · New reply November 24, 2008
- 2 replies
- I was doing ok for a few weeks after I got out of the hospital, but now things are getting worse again. The nausea is horrible, the pain is severe and waking me up at night, I'm falling behind in school ...
- By Sanford · New reply November 23, 2008
- 16 replies
- I've had a J tube since 02/06 and I have a new problem I've never encountered before. There are little black spots on the inside surface of the tube about halfway between my abdomen and the port. I was ...
- By MarieTwinTubes · New reply November 23, 2008
- 7 replies
- Hi to all you fellow g-tube users. I would like to know how many of of you change your own feeding tube or have a family member (or someone close to you) do it. I am reading experiences of some who do ...
- By Floyd · Posted November 22, 2008
- 0 replies
- Uhh, i have recently had to slow down my intake rate from "gravity works fine (about 10 mins" to about 2 cans an hour, 4 times a day. when do you do the diabetes blood tests ...
- By tah08 · New reply November 22, 2008
- 2 replies
- I just had my last treatment Sept. 3rd and my throat was swollen just a couple weeks ago after seeing my throat doctor, well now the swelling has gone and I want to start eating thru my mouth instead ...
- By SeussRN1 · New reply November 12, 2008
- 11 replies
- I have idopathic gastroparesis and currently am TPN dependent. I was recently removed off my TPN for a 2 week trial and lost 14lbs and ended up in the hospital. I have in the past had a G-J tube and anything ...
- By dees · Posted November 9, 2008
- 0 replies
- Any ideas on a new adapter for my 20 french tube? Only 10 wks & I've had to change out my adapter. The Boston Scientific 20fr Y port adapter is designed for those who use a pump, but I use cans and the ...
- By oleyfriends · New reply October 29, 2008
- 3 replies
- Nestle has created a product conversion chart that may be helpful for patients who are on a Nestle formula that is being discontinued. For details see http://www.nestle-nutrition.com/assets/p df/product_replacement_charts.pdf ...
- By LQ · New reply October 29, 2008
- 2 replies
- Hello, My daughter got a G tube last Friday and we are having a heck of a tme finding a bag to use for her to drain in during the night so we don't have to wake up and drain her with a syringe. She has ...
- By josada · New reply October 28, 2008
- 1 reply
- I appreciate all of the information shared regarding J tube feeds with a pump. Does anyone bolus small amounts into a J tube ...
- By josada · New reply October 26, 2008
- 8 replies
- I moved from a G to a J tube. Surgeon does not want me above a rate of 50. It takes so long to get through one vivonex feeding (6-8 hrs.), that I do not see how it is worth it. I also have more reflux ...
- By LQ · New reply October 26, 2008
- 4 replies
- hELLO EVERYONE, I WANT TO FIRST OF ALL THANK YOU ALL FOR THE HELP AND SUPPORT AND ENCOURAGMENT THAT YOU ALL HAVE GIVEN US WHILE WE ARE NEW AND LEARNING ALL WE CAN ABOUT G/J TUBES. NOW HERE i AM WITH ANOTHER ...
- By LQ · New reply October 24, 2008
- 3 replies
- Hello, My dd got a Jtube a month ago and she asked for a Gtube at the same time for venting and b/c she is constantly naucius ALL THE TIME! But the GI dr that did the Jtube said he did not have patients ...
- By LQ · New reply October 21, 2008
- 1 reply
- Hello Everyone, The Dr just gave my daughter a 'new' drug (to her) to use for her nausea and pain. It is called Marinol with the generic being Dronabinol. They are a deriveriated of marijuana (?). OOur ...
- By Floyd · New reply October 14, 2008
- 4 replies
- I am passing 2.5 years with my original g-tube and wonder how long they last on the average. At the Oley conference I heard from some manufacturers that they should last at least one year. My doctor has ...
- By LQ · New reply October 14, 2008
- 1 reply
- Hello Everyone, My daughter saw a new PCP today and she offered us something new for nausea, WELCHOL. It is known as a cholesterol m edication but they have had great results with it helping with the ...
- By signal10 · New reply October 13, 2008
- 12 replies
- Hi, My daughter has a j-tube. She takes nothing by mouth, A recent check up at the dentist showed that every single tooth was decayed. The dentists said this was xerostomia which is caused by not eating ...
