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Home IV feeding (HPN, parenteral nutrition)
Share your story, ask questions, and offer support.
memory?
- By cp20855 · New reply September 17, 2009
- 3 replies
- My husband has short bowel syndrome, has been on TPN for 4 years, takes a ton of meds to slow his motility, and recently has become very worried about his memory. He has been forgetful, but to me it seems ...
Issues with vomitting
- By BetsyH · New reply September 17, 2009
- 8 replies
- I am writing to try to help my dear friend. She began TPN about 15 weeks ago and was on 24 hour feedings. At some point (about six weeks ago)when she had infection, a wound to deal with and fevers too ...
life expectancy and HPN
- By Woeful · New reply September 17, 2009
- 19 replies
- For those of you on TPN and with short bowel syndrome or ultra short bowel syndrome, have your doctors given you life expectancy rates? My mother and I got to talking today about my hospitalization last ...
TPN and Muscle Cramps
- By cheneyfox · New reply September 13, 2009
- 6 replies
- I have been on and off TPN for a couple of years now and I am having muscle cramps all over my body. My back, feet, legs, etc. I took k+ since usually I am depleted, I have short bowel, and that didn't ...
Heard of the new feeding tube available?
- By Woeful · New reply August 27, 2009
- 7 replies
- My GI Joe had decided to replace my current J tube with a new one in hopes maybe a new tube will help eliminate all the pain I'm having around the area (of course, this was before they found that 11-centimeter ...
that mysterious J tube pain / return of granulation tissue?
- By Woeful · Posted August 23, 2009
- 0 replies
- There are so many discussions about J tube pain that doctors seem unable to account for, I wonder, is any clinician doing research on this? I have never gotten a clear answer from any doctor other than ...
GI tube with oral feedings
- By smileyface102 · New reply August 15, 2009
- 5 replies
- I have sbs. I currently have TPN nightly for 12 hours. I can now take start oral feedings (small amounts). What can I eat ...
MRA questions / peripheral vascular disease?
- By Woeful · New reply August 14, 2009
- 3 replies
- Has anyone ever had an MR angiogram? How long does it take? Is it similar to a CT scan (of which I've had several)? My new primary care doctor has scheduled me for an MRA on Monday. Interestingly, he ...
medical malpractice concerns - advice?
- By Woeful · New reply August 14, 2009
- 5 replies
- I think I posted once before that I wondered if something 'hinky' happened during my lengthy hospitalization last year because so much went wrong that didn't make any sense. Now I'm even more convinced ...
Financial Assistance for TPN (Coram)
- By bluangl77 · New reply August 7, 2009
- 7 replies
- Hello Everyone. Does anyone know the breakdown Coram uses for financial assistance? What do they look at? Salary, medical bills, household bills, etc. After sending Coram detailed copies of all my bills ...
Triamcinolone question
- By Woeful · New reply August 6, 2009
- 6 replies
- Per the suggestion of some folks on here, I got my GI Joe to call in a script for me for the triamcinolone (sp?) steroid cream, to see if that will help reduce the granulation tissue. How many of you ...
BEGINING TPN
- By redbaron · New reply August 5, 2009
- 6 replies
- I have been home on TPN and supplemental hydration for two week. Because of a small bowel fistula, I'm not allowed to swallow any food or water. It has been difficult since everyone in the family continues ...
About to have a bowel reversal. Need advice!
- By BraliansMom · New reply July 28, 2009
- 3 replies
- I have been on TPN going on four years after having nerve damage to my bowels during a Whipple for a pancreatic tumor. I am scheduled for a Bowel Reversal on July 31st where they will take a section of ...
Looking for input on different airlines for flying with TPN
- By Jack_ · New reply July 26, 2009
- 16 replies
- We are flying to LA end of August for a wedding and I need to take my TPN, not sure if we can ship it yet as the hotel might not want to receive it. Anyone have experiences with which airlines are most ...
Looking for someone with similar symptoms
- By Monique-L · New reply July 23, 2009
- 4 replies
- In March of 2007 I was diagnosed with colonic inertia. I had about 90% of my colon removed. I had resection surgery in July and one in Dec. of 2007. I continued to have obstructive symptoms. I had an ...
Vicodin, Percocet to be pulled off the market?
- By Woeful · New reply July 23, 2009
- 12 replies
- So did anyone catch on the news this morning that the FDA govt advisory committee has advised the FDA to take Vicodin and Percocet (actually, any narcotic pain medicine with acetominophen) off the market ...
CT angiogram
- By Woeful · New reply July 21, 2009
- 10 replies
- Again, I'd like to apologize for basically spamming the message board this evening with my endless posts, but I promise, this is my last one. Has anyone on TPN (with a PICC line versus a Hickman's or ...
Know of a good online medical supplies site?
- By Woeful · New reply July 21, 2009
- 7 replies
- Can anyone recommend a good, reputable, fairly priced (cheap is even better!) website for ordering medical supplies? I'm specifically looking for non-woven sponge pads, 4x4s, made by Medi-Pak (McKesson ...
Dealing with Social Security disability benefits
- By Woeful · New reply July 21, 2009
- 21 replies
- I'm curious how many of you have gone through the nightmare of trying to collect Social Security disability benefits, and if you were successful without hiring a disability attorney. I'm still overwhelmed ...
Port won't access. What can the problem be?
- By happyone · New reply July 12, 2009
- 4 replies
- Anyone know what this can mean? My nurse tried accessing my son's port last night. She attempted it 3 times and each time we got no blood return, and swelling at the site when flushed. Any advice ...
