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Home IV feeding (HPN, parenteral nutrition)
Share your story, ask questions, and offer support.
POLES FOR USE WITH HPN
- By Daughterhelpingmom · New reply October 28, 2009
- 16 replies
- Wondering if anyone has any experience with IV poles used with HPN. My mom is currently using a model by Sharp, that is very cheap, and can't be moved very easily on rugs. I need to get her a good pole ...
my first year "anniversary"
- By Woeful · New reply October 27, 2009
- 5 replies
- So next week is my first-year "anniversary" of when my life changed forever. Did that date stick out in anyone else's mind? 12 months later and I'm still firmly stuck in the shellshock/denial stage, I ...
your infusion company / heard of ThriveRX?
- By Woeful · New reply October 25, 2009
- 5 replies
- Anyone heard of a home infusion/healthcare company called ThriveRx? My GI doc would like to me to try this company. We've both been increasingly unhappy with my current home health company. They've had ...
Port vs PICC
- By karenlas · New reply October 25, 2009
- 8 replies
- Trevor may be starting TPN in the near future. He's an 11 yr old whose very active, when feeling well. He had a picc in May, had an infection and it was pulled. He's also got an immune deficiency so any ...
Port for TPN?
- By momto2girls · New reply October 22, 2009
- 19 replies
- My daughter is just starting TPN and I am having issues with the doctor's choice of a Hickman catheter. Her problems may be intermittent, she is multiply disabled and enjoys very little in life, but one ...
results of tpn snafu
- By cp20855 · New reply October 22, 2009
- 2 replies
- Okay, I admit it: I really messed up husband's infusion yesterday. Without all the details, what I did was use the pump set for hydration on the TPN. Thus, TPN had NO ramp up or ramp down time, no famotidine ...
TPN and Travel limitations
- By Frantik · New reply October 20, 2009
- 12 replies
- Hi all: It's been a long time since I've posted, I've had a hard time keeping up as I've taken on moderating a list for long-term cancer survivors after the previous moderator sadly passed away. That ...
nasal versus stomach feeding tube
- By Woeful · New reply October 16, 2009
- 16 replies
- I've noticed on here that several people have nasal feeding tubes instead of stomach tubes. Is there a reason for having one over the other? That's one of my biggest fears -- tubes down my nose or throat ...
Help I just started Tpn
- By btdt12 · New reply October 16, 2009
- 7 replies
- I just started TPN Feeding's at night. I am over whelmed to say the least. I just joined qroup looking forward to hearing from you with advice and support. Debbie ...
Suction machine for g tube
- By smileyface102 · Posted October 15, 2009
- 0 replies
- I am on TPN 10 hours a night. I have a g tube. My Dr. is suggesting that I use a suction machine on the g tube so I don't vomit as much. I have SBS. Anyone know anything about it ...
TPN allergies????
- By jillypooo · New reply October 14, 2009
- 8 replies
- TPN again. Was on it several years ago, with 8 different lines due to infections caused probably from having constant diarrhea, which caused UTI's, then twice sepsis. I have another problem that we are ...
Help! Nausea Ruining my life
- By Zacolton · New reply October 14, 2009
- 12 replies
- So anyone who saw me at the Oley conference knows that I had been having problems with nausea for a while. Well, I haven't been in touch with the outside world lately because the nausea has just gotten ...
Am I The Only One??
- By cheneyfox · New reply October 14, 2009
- 22 replies
- You know I am tempted to NOT hook up to my TPN again today. I know it helps me and I know it keeps me from starving to death but I get so tired of carrying the bag every where I go! Household chores are ...
High Liver Enzymes. Could this be due to HPN?
- By Daughterhelpingmom · New reply October 14, 2009
- 6 replies
- My mom has been on HPN for approximately 1 month, due to short gut syndrome. She presently has a line infection and was given a new line yesterday. During the course of all the blood work that she's had ...
Port surgery tomorrow
- By EverythingAfter · New reply October 13, 2009
- 1 reply
- So we've put off central access for as long as we can, but we can no longer keep my son's sugars up. He is hypoglycemic despite 24 hr J feeds and has had two life threatening events in the past month ...
Lack of intestines causing iron deficiency?
- By Woeful · New reply October 13, 2009
- 4 replies
- I saw yet another new doctor last week, a hematologist-oncologist, about both my mass and my continually decreasing RBCs, hemoglobin, hematocrit levels. This new doctor thinks I have severe anemia because ...
When bad news becomes worse news
- By Woeful · New reply October 7, 2009
- 17 replies
- Everyone tired of being thrown curve balls, raise your hand, lol. Sigh. I had two MRAs last week to check and see if I had developed any new blood clots or had occluded veins anywhere, etc. The good news ...
Has anyone been to Hopkins or Temple?
- By daviandsteve · New reply October 6, 2009
- 5 replies
- I am writing this on behalf of someone who contacted me today (she does not have a computer) whose doctors say they can't help her, she should go to Hopkins or Temple. She lives in southern Delaware ...
need advice
- By lgde · New reply October 3, 2009
- 9 replies
- I was diagnosed with post viral gastroparesis after spending 5 weeks in the hospital. I now am home and am on entral feeding and Iv TPN I continue to lose weight and have lost 40 lbs. since the first ...
Tube/TPN Feeding
- By shamrockmom · New reply October 3, 2009
- 9 replies
- I saw my doc. My results show normal small bowel transit but Markedly delayed colonic transit/colonic hypomotility appears global. Doc is giving me 2 weeks to gain weight by trying to drink 3-4 bottles ...
