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Home IV feeding (HPN, parenteral nutrition)
Share your story, ask questions, and offer support.
Doctors Refuse TPN
- By CinTam · Posted 1:03 pm
- 0 replies
- My sister has been sick for over a year this time. She has terrible pain in the abdomen when she tries to eat. She weighed 98 lbs. (she's 5 ft. 9 in. tall), before a gastro finally put her on TPN in the ...
Line sepsis experiences
- By regbrigidmom · New reply November 17, 2009
- 3 replies
- Brigid is 4, and has had a central line of one sort or another (first a port, then a broviac because the port reservoir turned to cement from her TPN) for 2 years. I'll leave out the lead-up story (it's ...
Dressing Changes Once a Week
- By cheneyfox · New reply November 13, 2009
- 13 replies
- So, we all have some sort of IV line for our HPN, right? Well do we all have to go see a nurse every week to get the dressings changed? I think this is unnecessary. I can change my own dressing. i had ...
Adult TPN Patients, Be Part of Valuable and Exciting Quality of Life Study!
- By oleyfriends · New reply November 12, 2009
- 1 reply
- The Oley Foundation is conducting a quality of life study of adults on home parenteral nutrition (also called HPN or TPN). Your participation is vital as we seek to create a realistic and comprehensive ...
TPN
- By charliegirl3 · New reply November 11, 2009
- 5 replies
- Does any one have the same problem I am having on Tpn. I am gaining so much weight on it and I don't like. I feel like A BLIMP. this is my last chance before they pit a tube in me. Is there exercices ...
hickman catheter removal
- By thelilangel · New reply November 10, 2009
- 2 replies
- i have had a hickman catheter in for about 4 months and i will be getting it removed soon. my doctors office schedualed the apointment with the surgen to remove it so i didn't get a chance to ask how ...
fatigue
- By janasowk · New reply November 8, 2009
- 21 replies
- Is chronic fatigue pretty much the norm for most people on here? I have pseudo-obstruction and I am a full time college student and have a busy active life, but I could seriously sleep all day if i could ...
Finding qualified home health care providers
- By Matt_M · New reply November 5, 2009
- 4 replies
- Hello all. I'm new to the group and the whole topic. My elderly mother has recently been placed on TPN as a part of her Crohn's treatment. She is still in the hospital, but hopes to be discharged soon ...
getting a Hickman's: deep breath
- By Woeful · New reply November 4, 2009
- 5 replies
- Nothing like short notice. I get a call today that my outpatient surgery is scheduled for this Friday. They are going to try and drain this ovarian mass (the thinking being it's not cancer but fluid build-up ...
lipids?
- By momto2girls · New reply November 4, 2009
- 5 replies
- Hi, I've been reading some discussions here since my daughter started on TPN a little over a week ago. I have a question about lipids..I've read that some have 2 bags to hang or a double chambered bag ...
RECURRENT LINE INFECTIONS
- By Daughterhelpingmom · New reply November 4, 2009
- 42 replies
- My mom has been on HPN for approximately 3 months. She's had two picc lines and a Hickman catheter. The Hickman has only been in 13 days and already she's back in the hospital with another infection ...
TPN and Clotting Factors
- By cheneyfox · New reply November 2, 2009
- 1 reply
- Flew about 600 miles yesterday for my follow up appointment. I was told today that the blood work they did yesterday came back with a PTT abnormality. How does TPN affect clotting factor? My bp was elevated ...
has anyone had surgery after going on TPN?
- By Woeful · New reply November 2, 2009
- 6 replies
- I guess I'm addressing this question to anyone who has lost most of their intestines (in particular, all of their ileum), or to those like me who don't have a colostomy because you no longer have bowel ...
J tube users - used for drainage only?
- By Woeful · New reply November 2, 2009
- 12 replies
- I think I asked this question a while back, but can't remember now (too much clutter in my head these days). Is there anyone here who has a J tube that is used for drainage, NOT for feeding? (I'm fed ...
Profuse sweating during infusions
- By Judi-1 · New reply October 30, 2009
- 2 replies
- I have been on HPN for 18 years. Over the past several years, I have been experiencing profuse sweating beginning about four to five hours into my twelve hour infusion. I am literally drenched so that ...
new ideas to control diarrhea?
- By cp20855 · New reply October 30, 2009
- 14 replies
- Hi, We learned recently about liquid Lomotil, made for children but more easily absorbed for adults. My husband has been using what the pharmacist thinks is a huge amount (20 ml, 4 times a day), and it ...
POLES FOR USE WITH HPN
- By Daughterhelpingmom · New reply October 28, 2009
- 16 replies
- Wondering if anyone has any experience with IV poles used with HPN. My mom is currently using a model by Sharp, that is very cheap, and can't be moved very easily on rugs. I need to get her a good pole ...
my first year "anniversary"
- By Woeful · New reply October 27, 2009
- 5 replies
- So next week is my first-year "anniversary" of when my life changed forever. Did that date stick out in anyone else's mind? 12 months later and I'm still firmly stuck in the shellshock/denial stage, I ...
your infusion company / heard of ThriveRX?
- By Woeful · New reply October 25, 2009
- 5 replies
- Anyone heard of a home infusion/healthcare company called ThriveRx? My GI doc would like to me to try this company. We've both been increasingly unhappy with my current home health company. They've had ...
Port vs PICC
- By karenlas · New reply October 25, 2009
- 8 replies
- Trevor may be starting TPN in the near future. He's an 11 yr old whose very active, when feeling well. He had a picc in May, had an infection and it was pulled. He's also got an immune deficiency so any ...
