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Home IV feeding (HPN, parenteral nutrition)
Share your story, ask questions, and offer support.
fatigue
- By janasowk · New reply 12:46 pm
- 21 replies
- Is chronic fatigue pretty much the norm for most people on here? I have pseudo-obstruction and I am a full time college student and have a busy active life, but I could seriously sleep all day if i could ...
Finding qualified home health care providers
- By Matt_M · New reply November 5, 2009
- 4 replies
- Hello all. I'm new to the group and the whole topic. My elderly mother has recently been placed on TPN as a part of her Crohn's treatment. She is still in the hospital, but hopes to be discharged soon ...
getting a Hickman's: deep breath
- By Woeful · New reply November 4, 2009
- 5 replies
- Nothing like short notice. I get a call today that my outpatient surgery is scheduled for this Friday. They are going to try and drain this ovarian mass (the thinking being it's not cancer but fluid build-up ...
lipids?
- By momto2girls · New reply November 4, 2009
- 5 replies
- Hi, I've been reading some discussions here since my daughter started on TPN a little over a week ago. I have a question about lipids..I've read that some have 2 bags to hang or a double chambered bag ...
RECURRENT LINE INFECTIONS
- By Daughterhelpingmom · New reply November 4, 2009
- 42 replies
- My mom has been on HPN for approximately 3 months. She's had two picc lines and a Hickman catheter. The Hickman has only been in 13 days and already she's back in the hospital with another infection ...
TPN and Clotting Factors
- By cheneyfox · New reply November 2, 2009
- 1 reply
- Flew about 600 miles yesterday for my follow up appointment. I was told today that the blood work they did yesterday came back with a PTT abnormality. How does TPN affect clotting factor? My bp was elevated ...
has anyone had surgery after going on TPN?
- By Woeful · New reply November 2, 2009
- 6 replies
- I guess I'm addressing this question to anyone who has lost most of their intestines (in particular, all of their ileum), or to those like me who don't have a colostomy because you no longer have bowel ...
J tube users - used for drainage only?
- By Woeful · New reply November 2, 2009
- 12 replies
- I think I asked this question a while back, but can't remember now (too much clutter in my head these days). Is there anyone here who has a J tube that is used for drainage, NOT for feeding? (I'm fed ...
Profuse sweating during infusions
- By Judi-1 · New reply October 30, 2009
- 2 replies
- I have been on HPN for 18 years. Over the past several years, I have been experiencing profuse sweating beginning about four to five hours into my twelve hour infusion. I am literally drenched so that ...
new ideas to control diarrhea?
- By cp20855 · New reply October 30, 2009
- 14 replies
- Hi, We learned recently about liquid Lomotil, made for children but more easily absorbed for adults. My husband has been using what the pharmacist thinks is a huge amount (20 ml, 4 times a day), and it ...
POLES FOR USE WITH HPN
- By Daughterhelpingmom · New reply October 28, 2009
- 16 replies
- Wondering if anyone has any experience with IV poles used with HPN. My mom is currently using a model by Sharp, that is very cheap, and can't be moved very easily on rugs. I need to get her a good pole ...
my first year "anniversary"
- By Woeful · New reply October 27, 2009
- 5 replies
- So next week is my first-year "anniversary" of when my life changed forever. Did that date stick out in anyone else's mind? 12 months later and I'm still firmly stuck in the shellshock/denial stage, I ...
your infusion company / heard of ThriveRX?
- By Woeful · New reply October 25, 2009
- 5 replies
- Anyone heard of a home infusion/healthcare company called ThriveRx? My GI doc would like to me to try this company. We've both been increasingly unhappy with my current home health company. They've had ...
Port vs PICC
- By karenlas · New reply October 25, 2009
- 8 replies
- Trevor may be starting TPN in the near future. He's an 11 yr old whose very active, when feeling well. He had a picc in May, had an infection and it was pulled. He's also got an immune deficiency so any ...
Port for TPN?
- By momto2girls · New reply October 22, 2009
- 19 replies
- My daughter is just starting TPN and I am having issues with the doctor's choice of a Hickman catheter. Her problems may be intermittent, she is multiply disabled and enjoys very little in life, but one ...
results of tpn snafu
- By cp20855 · New reply October 22, 2009
- 2 replies
- Okay, I admit it: I really messed up husband's infusion yesterday. Without all the details, what I did was use the pump set for hydration on the TPN. Thus, TPN had NO ramp up or ramp down time, no famotidine ...
TPN and Travel limitations
- By Frantik · New reply October 20, 2009
- 12 replies
- Hi all: It's been a long time since I've posted, I've had a hard time keeping up as I've taken on moderating a list for long-term cancer survivors after the previous moderator sadly passed away. That ...
nasal versus stomach feeding tube
- By Woeful · New reply October 16, 2009
- 16 replies
- I've noticed on here that several people have nasal feeding tubes instead of stomach tubes. Is there a reason for having one over the other? That's one of my biggest fears -- tubes down my nose or throat ...
Help I just started Tpn
- By btdt12 · New reply October 16, 2009
- 7 replies
- I just started TPN Feeding's at night. I am over whelmed to say the least. I just joined qroup looking forward to hearing from you with advice and support. Debbie ...
Suction machine for g tube
- By smileyface102 · Posted October 15, 2009
- 0 replies
- I am on TPN 10 hours a night. I have a g tube. My Dr. is suggesting that I use a suction machine on the g tube so I don't vomit as much. I have SBS. Anyone know anything about it ...
