Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Recommended
hickman catheter removal
- By thelilangel · Posted November 9, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 1 recommendation
- i have had a hickman catheter in for about 4 months and i will be getting it removed soon. my doctors office schedualed the apointment with the surgen to remove it so i didn't get a chance to ask how ...
Thank you.
- By mom101 · Posted October 31, 2009
- Journal · 1 recommendation
- SuperGroverT - Thank you for sharing you and yor son's journey. I am a mom of a soon-to-be 13 year old who started off with a life threatening heart defect at birth - had surgery at 1 week and also left ...
Feed Pump Question
- By Duran · Posted October 23, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 1 recommendation
- Hi - I'm new to Oley/Inspire and am looking for opinions on feeding pumps. Planning to get a pump for g-tube feedings for my son, but want one that you can clean the bags and tubing without using the ...
balloon vs. non-balloon
- By jackrabbit · Posted October 8, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 1 recommendation
- I'm sure there's been discussions about this before... I'll be getting my PEG replaced with a button in a couple weeks and want to know which kind to get the doctor to request. I'm not real keen on having ...
My parent is EMBARRASSED by my PEG!
- By jackrabbit · Posted September 22, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 1 recommendation
- I wear the tube pinned to the outside of my shirt. I find this more convenient, less hassle, easier access, more comfortable. My mom thinks it's rude of me to have the tube visible. She says I will gross ...
Some days can be more difficult than others....
- By cheneyfox · Posted September 18, 2009
- Journal · 1 recommendation
- I hate when I am so tired that my day is spent doing nothing constructive. I try to stay positive but if I listen to my head on days like these I get angry at myself for being a slug. So today I am making ...
Surviving
- By cheneyfox · Posted September 7, 2009
- Journal · 1 recommendation
- Having had Crohn's disease since I was 13 with multiple resections over the years I now have short bowel syndrome. Over the years I had been on TPN but the last couple of years I have been on it more ...
I'm a nervous wreck!
- By Sanford · Posted May 5, 2009
- Journal · 1 recommendation
- Well, today I went for a tilt-table test, since I've been having trouble with my blood pressure for a while now. Someone here mentioned last year that it sounded like autonomic neuropathy. First, I had ...
here we go.......
- By cchaircuter34 · Posted March 26, 2009
- Journal · 1 recommendation
- Please don't take this as a complaint in anyway. I love my life, I just neede to vent ........This week hasn't been so good. Jason has had several days of pain and emotional issues. He doesn't tell us ...
DON'T AGREE WITH MY DIAGNOSIS
- By pandabear · Posted March 22, 2009
- Journal · 1 recommendation
- i have been having joint aches and pains from head to toe for about a year and half now. it has gotten worse over time. i have elevated crp's and esr's but no explanation as to why. i was referred to ...
Key elements of line care
- By daviandsteve · Posted March 7, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 1 recommendation
- Hi all! Several weeks ago, in a discussion about PICC line infections, Pancreasgirl said she was interested in knowing what others have been taught as far as the key elements of line care are concerned ...
Mineral oil and g tubes???
- By stephsnfrd · Posted March 1, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 1 recommendation
- I've posted some questions about my son's g tube issues and have had many suggestions. Alot of the homemade remedies that people have suggested for stoma care include desitin and other over the counter ...
J Tube Unhooking Causing Floods- HELP
- By ranee · Posted February 20, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 1 recommendation
- Hello fellow J tubers. I have had my J tube for 51 days and the port where the bag/tubing/nozzle hooks in is stretched and now it frequently comes unhooked. I seem not to notice until the front of my ...
Just a bit of good news...
- By Jameson · Posted February 13, 2009
- Journal · 1 recommendation
- Well, after numerous hiccups and delays, I finally am a certified teacher! I completed my student teaching in the fall, and I just found out yesterday that my paperwork all went through. So now I'm working ...
G-Tube Infections
- By JenD · Posted February 10, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 1 recommendation
- Hi all, I've been having repeated infections of my g-tube site from the beginning. Usually every 4 to 6 weeks. I've even had antibiotic resistant infections. This week I have been unable to get an appointment ...
This store is closing; all items must go!
- By Sanford · Posted January 21, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 1 recommendation
- Well. I went for another (futile) iron infusion yesterday and got the final results of my bone marrow biopsy. While I don't have cancer (yay) and my marrow seems to be doing fine (yay), I HAVE NO STORED ...
Managing Nausea
- By ranee · Posted January 16, 2009
- Journal · 1 recommendation
- Yesterday, while feeding I became significantly nauseated. I decreased the rate (from 110 to 90 to 70) two times and did not improve. I detached and discontinued feeding for the day with about 3 of the ...
Headed for jejunostomy tube and feedings-SCARED!
- By LizAA · Posted January 15, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 1 recommendation
- Hi, I have been having gastroparesis for years, and getting to the point where I can barely eat. It looks like I am headed for a j-tube and feedings. I'm terrified!! I have a 3 year old son, and I'm worried ...
Hope- We are not alone
- By ranee · Posted January 13, 2009
- Journal · 1 recommendation
- Inspiration to keep us going! Hope is like a road in the country; there wasn't ever a road, but when many people walk on it, the road comes into existence. -Lin Yutang ...
cirrhosis of the liver
- By Ems-mom · Posted January 11, 2009
- Discussion in Family and friends · 1 recommendation
- Hello, I need some info. please. My child has had a feeding tube for 9 years, so I am use to dealing with them. My question is, my father has cirrhosis of the liver. He has lost so much weight. We have ...
