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Recommended
Finding a New Normal
- By MarieTwinTubes · Posted April 13, 2008
- Journal · 4 recommendations
- My twin tubes (feeding tube and tracheostomy) will have a two year anniversary on May 14. It has been quite a learning experience; but for me life is much better. I breathe better than I have in years ...
Dealing with school
- By mary0305 · Posted April 15, 2008
- Discussion in Parents' corner · 3 recommendations
- I have a four year old who has a g-tube and he goes to preschool right now. In the fall he will start all day kindergarten. I am a little worried about how he will eat at school and how the other kids ...
This Is Great!
- By Zacolton · Posted March 24, 2008
- Journal · 3 recommendations
- I'm so pleased to see this site finally active, and I must say it is even greater the plan of action I suggested last conference in Cape Cod. I'm happy to have helped if even in just suggesting this and ...
Unknown Bone Marrow Problem???ANYONE????
- By Rodeogrl02 · Posted September 26, 2009
- Journal · 2 recommendations
- I'm 26 years old and this pastspring I had a bone marrow biopsy after tons of lab work, that showed my platelets and white bllod cells are always low, and occasionally by red blood cells. So we went for ...
My new "Normal"
- By Lynee · Posted July 24, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 2 recommendations
- Hi Everyone. I joined this forum not that long ago although I've been on tube feedings for over a year. I had somewhat of an epiphany just recently and thought I'd share. By the way...this forum has been ...
Know of a good online medical supplies site?
- By Woeful · Posted July 19, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 2 recommendations
- Can anyone recommend a good, reputable, fairly priced (cheap is even better!) website for ordering medical supplies? I'm specifically looking for non-woven sponge pads, 4x4s, made by Medi-Pak (McKesson ...
Excess saliva
- By Vicik · Posted June 30, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 2 recommendations
- Does anyone else have trouble coughing up excess saliva? I have a swallowing disorder and aspirate into my lungs. I have days where I just seem to cough up excess saliva all day or I would choke on it ...
Feelings
- By nmhusky · Posted June 12, 2009
- Journal · 2 recommendations
- I have been feeling kind of down lately. During my check-up at the Mayo last week the PET scan showed glucose uptake in several locations in my lungs and on the base of my tongue. The lung hotspots can ...
Husabnd Has Esphageal Cancer
- By Tigerette · Posted May 2, 2009
- Journal · 2 recommendations
- My husband was dignosis with esphageal cancer in Oct 9, 2008, he's been on chemo, then on March 16, 2009 went in for major surgery, to remove all his lymp nodes, and mostly all his stomach, now he has ...
J-Tube
- By margamouse · Posted March 24, 2009
- Journal · 2 recommendations
- I have had my j-tube for one month. But have been sick for over a year. I had my gallbladder out last February, developed c-diff, was on flagyl for two weeks which made me even sicker, then vancocin for ...
My grandfather head the pain until it was to late!
- By Davita · Posted March 10, 2009
- Journal · 2 recommendations
- All of my life my grand parents has played a extreme roll in helping me grow up to become a well rounded, God fearing, loving, kind, responsible adult. They never smoked or even got sick besides a cold ...
Happy, heathy New Year
- By daviandsteve · Posted January 1, 2009
- Journal · 2 recommendations
- Wishing all of my Oley friends good health in the coming year. I hope the bumps in the road aren't too rought to navigate, and that it helps knowing we are all here to help navigate them with you. May ...
questions about the tunnelled groshong line
- By Kathryn1972 · Posted November 15, 2008
- Journal · 2 recommendations
- I am new to the forum and have only just started posting. I have severe gastroparesis and Behcets Disease. I have been on and off TPN for a few years, but 5 months ago it was decided I needed to go on ...
My Story
- By tah08 · Posted November 14, 2008
- Journal · 2 recommendations
- Last year 2007 I kept having this sharp pain on my right side of my head and neck, plus a sore throat, so I went to Primed and they treated as a cold and it lighten up, but didn't go away, then I went ...
Jake
- By shan789 · Posted November 7, 2008
- Journal · 2 recommendations
- So we ended up at the ER last night, with a very clogged NG tube. The dr. had a nurse try to unclog it, but it wouldn't budge. So they ended up putting in a new one. This one is a little bigger, and last ...
Another Day more pain
- By DGSTRICK · Posted August 18, 2008
- Journal · 2 recommendations
- Well today is another day of pain and agony. I tried to increase to speed of my feeding pump ( Kangaroo Joey) but it hurts too much. I woke up last night in soo much pain and I had to turn the setting ...
need help
- By BONNIE-MEME · Posted July 8, 2008
- Discussion in Home tube feeding (HEN, enteral nutrition) · 2 recommendations
- hi. i have systemic scleroderma . i have had j tube and g tube placed in march. my stomach is not functioning. my stomas stay very sensitive. have problems tape on skin . is there a holder or sling to ...
G tube issue
- By Alisha · Posted June 19, 2008
- Discussion in Out and about · 2 recommendations
- I am wondering if it is normal to be draining a little blood from the G tube. I have called my doctor, but he hasnt returned my call. I dont have the greatest doctor where I live. My docotr is not to ...
Stoma leaking profusely
- By Hleclair · Posted June 17, 2008
- Discussion in Home tube feeding (HEN, enteral nutrition) · 2 recommendations
- Hi everyone, Our mom is dealing with oral cancer. She has been through chemo treatments and for the time being it seems to have shrunken the tumors. The problem is her G-tube leaks profusely at the stoma ...
Dressing Changes Once a Week
- By cheneyfox · Posted November 10, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 1 recommendation
- So, we all have some sort of IV line for our HPN, right? Well do we all have to go see a nurse every week to get the dressings changed? I think this is unnecessary. I can change my own dressing. i had ...
