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Welcome to Inspire!
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New journals
I Am Thankful
- By cheneyfox · Posted yesterday at 12:37 pm
- 0 replies
- Ahhhh, here I am again. Another holiday and lots of fabulous food sitting in front of me on my table. The rich smell of turkey, ham, pies, potatoes teasing my taste buds. I know, eating causes me so much ...
Gravity feed, Nutrition formula.
- By Arthur49 · Posted November 25, 2009
- 0 replies
- Hi, I do a gravity feed with a formula called "TwoCal HN". In so doing I have to hold both the syringe and the tube with one hand so they don't separate. I'm looking for a device that could hook the two ...
Is my J-tube Mic-Key button suppost to rotate????
- By Rodeogrl02 · Posted November 23, 2009
- 1 reply
- My mic-key j-tube (just j-tube in the jejunum) keeps turning around a bit, interventional radiology wasn't sure if the size they put in would be correct that it was just a little small and I might need ...
N E ONE HAVE A KANGAROO JOEY OR PORTABLE TUBE FEEDING PUMP PREFERENCE????
- By Rodeogrl02 · Posted November 23, 2009
- 7 replies
- I'm going to be traveling to Disney world December 5th, and Atlanta, GA-Madison,Wi, and Illinois for family events and horse events (florida is a trip I earned after 3 weeks fighting for my life in the ...
Thrombosis
- By jalenboyce · Posted November 22, 2009
- 2 replies
- Jalen started not feeling well for a couple of days but with no major symptoms. So we thought this was just going to be a viral type of thing...ha. About a week later Jalen out of nowhere complains of ...
IS THERE A BETTER WAY TO GET THE BILE OUT OF MY PEG TUBE????
- By Rodeogrl02 · Posted November 22, 2009
- 2 replies
- I had a PEG tube put in last tuesday to use as a vent for air and drainage of bile that otherwise would not leave my stomach (there is a ton of it built up) While i was in the hospital for 3 days they ...
New MIC-KEY J-TUBE, and a traditional PEG TUBE??????CONFUSED!!!!!!!!!!
- By Rodeogrl02 · Posted November 20, 2009
- 12 replies
- I finally got my new low profile MIC-KEY J-tube (just j-tube right into the jejunum) and the interventional radiology put it in, the surgeon special ordered it for me since it's a permanent residence ...
Today is a Good Day
- By cheneyfox · Posted November 20, 2009
- 5 replies
- After my recent life and death battle with my on going intestinal problems I am finally doing much better. I pray it continues. But I have learned much in the last 3 years. Mostly that being a patient ...
Diagnosed with Gastroparesis - Any Advice Appreciated!
- By Ando · Posted November 15, 2009
- 1 reply
- I was diagnosed with gastroparesis, and before diagnosis I gained 50 pounds. Over 1/3 of my body weight. I cannot eat very much, but try and eat 1,000 calories/day, but it is painful. The doctors I have ...
Modular feeds
- By HelenB8 · Posted November 14, 2009
- 3 replies
- Ben is going into Great Ormond Street hospital for a trial of modular feeds. He is doing better being fed into the jejunum but has not gained any weight for nearly 2 years! Our dr thinks he cannot tolerate ...
ANYONE HAVE A MIC-EY J-TUBE?????
- By Rodeogrl02 · Posted November 13, 2009
- 15 replies
- I asked my surgeon if there are any other options for J-tubes since mine is permanent for like my life. My j-tube is kinda long and hangs in the way of everything , also gets caught on tons of stuff and ...
In the Interest of Why?
- By SuperGroverT · Posted November 12, 2009
- 0 replies
- This came to me in a flash last night. I thought it might be worth sharing. If you want to learn more, please contact Grover via Ning at: http://ning.com/supergrovert or http://supergrovert.com and http://freegrovert.blogspot.com ...
In the Interest of Why
- By SuperGroverT · Posted November 12, 2009
- 0 replies
- There is an inherent beauty in innocence. I see it in Avery’s eyes still, yet I know it won’t be there forever. Invevitably, she’ll encounter something, somewhere, someday that makes her understand ...
PEG Tube placement recovery ?
- By Rodeogrl02 · Posted November 11, 2009
- 13 replies
- I have a J-tube in place directly into my jejunum of my intestine (that was a huge hastle and required major surgery & exploratory anyways) Now on tuesday they are going to put a peg tube in (or g-tube ...
Bowel Obstruction from J-tube?????
- By Rodeogrl02 · Posted November 6, 2009
- 9 replies
- I had a colonoscopy and an endoscopy this past monday (the colon part because of having severe diarrhea for weeks), then before we started the procedure my dr asked if he could add on an endoscopy last ...
Weaning From TPN..
- By cheneyfox · Posted November 6, 2009
- 5 replies
- Well I am excited because for the next 2 days I have to measure everything that goes in and out of my body. Oh Boy... Gotta love measuring poo.. I know, we have all had to do it, but still.. It ain't ...
A Joyful Place
- By grannylu · Posted November 4, 2009
- 0 replies
- Just wanted to say thank you to part of my daily "inspiration." On FB, I receive occasional inspirational messages, and today's was ". . . that to burn out the pain, just find a place filled with joy ...
Mad and thankful at the same time
- By sacarver · Posted November 3, 2009
- 7 replies
- I first have to say I am so thankful I don't have to have a Jtube like a lot of people on here. Was supposed to have one placed 3 years ago, but because of blood clotting reasons, I was not a candidate ...
Going To Wean Off Of TPN
- By cheneyfox · Posted November 2, 2009
- 5 replies
- Leaving soon to go to Omaha for 2 weeks to wean off TPN onto their IRP diet. I hope it works. It will be great to NOT have to carry my bag around with me. I am hopeful... I long for a break from my recent ...
Thank you.
- By mom101 · Posted October 31, 2009
- 1 reply
- SuperGroverT - Thank you for sharing you and yor son's journey. I am a mom of a soon-to-be 13 year old who started off with a life threatening heart defect at birth - had surgery at 1 week and also left ...
