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New discussions
Enteral Focus Groups, December 2009
- By Oleyfriend2 · Posted 2:45 pm
- In Home tube feeding (HEN, enteral nutrition) · 0 replies
- The Oley Foundation has been invited to coordinate a series of focus groups in early December. An enteral device manufacturer, who wishes to remain anonymous, is gathering input from tube-feeders and ...
TPN and getting heavy
- By momto2girls · Posted 12:22 pm
- In Home IV feeding (HPN, parenteral nutrition) · 0 replies
- Corinne (14 yrs) has been on TPN since her gut stopped working, temporariliy in October. This is her 2nd time on TPN. We have been encouraged to get her back up on her J feeds since things settled down ...
12.O FR MAC-LOC TUBE: SHOULD I ADVERTISE THIS?
- By mldelucchi · Posted 1:19 am
- In Out and about · 0 replies
- I have been seeing a lot of threads regarding tube problems. I sincerely feel for you all out there. I'm new to this thread and don't know much about alternatives to what I currently use. I don't know ...
How do I measure residual properly?
- By jackrabbit · Posted yesterday at 1:20 pm
- In Home tube feeding (HEN, enteral nutrition) · 1 reply
- I'd asked recently about stomach fluid gushing from my tube every time I open the cap on the temporary clampless replacement PEG. Folding the tube over before and after inserting/removing the syringe ...
The caregiver drama continues
- By jackrabbit · Posted yesterday at 12:38 pm
- In Home tube feeding (HEN, enteral nutrition) · 2 replies
- My mom's meanness just never ends. Anyone wanting to catch up on the recent idiocies so you have a fuller picture, check out: http://www.inspire.com/groups/oley-found ation/discussion/my-parent-is-embarrasse ...
is mickey causing internal stomach pain? frustrated
- By marinemomkerry · Posted November 22, 2009
- In Home tube feeding (HEN, enteral nutrition) · 2 replies
- my 9 yro son has a mickey he got early august. been difficulties ever since most of the time but not on the outside. thats usually fine. but it seems like it causes hiim pain. hes been in the hospital ...
Gushing out tube - preventing me from eating - HELP!
- By jackrabbit · Posted November 22, 2009
- In Home tube feeding (HEN, enteral nutrition) · 9 replies
- While the GI clinic waits for the Mic-Key button they've ordered to arrive, they inserted a temporary replacement PEG. It's Panda brand, only 4" long, and has NO CLAMP! Every time I open the silly thing ...
ORAL REHYDRATION HOME REMEDIES
- By Daughterhelpingmom · Posted November 21, 2009
- In Family and friends · 15 replies
- Does anyone have the name of a good oral rehydration liquid to use for short bowel syndrome. My mother can't seem to keep her output down and is becoming very dehydrated. She has used G2, gatorade, smart ...
Doctors Refuse TPN
- By CinTam · Posted November 21, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 4 replies
- My sister has been sick for over a year this time. She has terrible pain in the abdomen when she tries to eat. She weighed 98 lbs. (she's 5 ft. 9 in. tall), before a gastro finally put her on TPN in the ...
Bile Draining Methods
- By cdpmom · Posted November 20, 2009
- In Parents' corner · 5 replies
- My son has had a g tube for a year, and was "upgraded" to a g/j tube in August due to bilious vomiting. Feeding through the j port has dramatically improved his ability to tolerate feeds, but lately ...
Leakage on PEG
- By bbidals · Posted November 20, 2009
- In Home tube feeding (HEN, enteral nutrition) · 1 reply
- Both times that I had a PEG put in I had a lot of problems with leakage. I am fairly active so the more I moved, the more it leaked. Did not like going out in public because the front of my shirt got ...
Dealing with a hugely unsupportive caregiver
- By jackrabbit · Posted November 18, 2009
- In Home tube feeding (HEN, enteral nutrition) · 8 replies
- I'm sure some of you already read about the fiasco with my mother trying to make me cover up my g-tube so I didn't 'make people vomit' and 'get kicked out of public places by security', and then tried ...
Michael Moore's warning for Canada - he's CLUELESS
- By jackrabbit · Posted November 18, 2009
- In Home tube feeding (HEN, enteral nutrition) · 5 replies
- I know it's not new to rant about Michael Moore, but his inane statement about Canada's healthcare system make me really mad. From Yahoo news: Documentary filmmaker Michael Moore says Canadians have to ...
Triumphing inspite of Tube Feeding (Athletics, College, Traveling and More!
- By mldelucchi · Posted November 17, 2009
- In Out and about · 17 replies
- To those interested from reading the topic title; I've started this forum in hopes of galvanizing some good advice from all those who were born with, and those who later in life took on, a dependency ...
Mic-KEY button "sucked in"
- By PeytonsParents · Posted November 17, 2009
- In Home tube feeding (HEN, enteral nutrition) · 5 replies
- Hi, I am new to the group but not new to tube feedings. My daughter is now 26 months and has been g tube fed since shortly after birth. I am looking for advice on a new g tube problem that we don't have ...
Line sepsis experiences
- By regbrigidmom · Posted November 16, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 3 replies
- Brigid is 4, and has had a central line of one sort or another (first a port, then a broviac because the port reservoir turned to cement from her TPN) for 2 years. I'll leave out the lead-up story (it's ...
Vivonex RTF Formula & Rate
- By ranee · Posted November 14, 2009
- In Home tube feeding (HEN, enteral nutrition) · 3 replies
- I have been switched off of Peptimen which I could feed at a rate of up to 120mL / hr to Vivonex which they said I could not feed faster than 40mL / hr. This requires that I feed 24hours a day and is ...
J tube replacement w/o anestesia
- By ranee · Posted November 14, 2009
- In Home tube feeding (HEN, enteral nutrition) · 5 replies
- I recently had my J tube replaced for the 2nd time- only was shocked when the dr at a well known clinic did it with no warning and no anestesia or pain meds. Let's just say it was a bloody and painful ...
Adult TPN Patients, Be Part of Valuable and Exciting Quality of Life Study!
- By oleyfriends · Posted November 11, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 1 reply
- The Oley Foundation is conducting a quality of life study of adults on home parenteral nutrition (also called HPN or TPN). Your participation is vital as we seek to create a realistic and comprehensive ...
TPN
- By charliegirl3 · Posted November 10, 2009
- In Home IV feeding (HPN, parenteral nutrition) · 5 replies
- Does any one have the same problem I am having on Tpn. I am gaining so much weight on it and I don't like. I feel like A BLIMP. this is my last chance before they pit a tube in me. Is there exercices ...
