Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Active

RECURRENT LINE INFECTIONS

Daughterhelpingmom
  • By Daughterhelpingmom · New reply 4:38 pm
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 45 replies
  • My mom has been on HPN for approximately 3 months. She's had two picc lines and a Hickman catheter. The Hickman has only been in 13 days and already she's back in the hospital with another infection ...

ORAL REHYDRATION HOME REMEDIES

Daughterhelpingmom
  • By Daughterhelpingmom · New reply 1:45 pm
  • Discussion in Family and friends · 13 replies
  • Does anyone have the name of a good oral rehydration liquid to use for short bowel syndrome. My mother can't seem to keep her output down and is becoming very dehydrated. She has used G2, gatorade, smart ...

How do I measure residual properly?

jackrabbit
  • By jackrabbit · Posted 1:20 pm
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 0 replies
  • I'd asked recently about stomach fluid gushing from my tube every time I open the cap on the temporary clampless replacement PEG. Folding the tube over before and after inserting/removing the syringe ...

The caregiver drama continues

jackrabbit
  • By jackrabbit · Posted 12:38 pm
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 0 replies
  • My mom's meanness just never ends. Anyone wanting to catch up on the recent idiocies so you have a fuller picture, check out: http://www.inspire.com/groups/oley-found ation/discussion/my-parent-is-embarrasse ...

IS THERE A BETTER WAY TO GET THE BILE OUT OF MY PEG TUBE????

Rodeogrl02
  • By Rodeogrl02 · New reply 12:37 pm
  • Journal · 1 reply
  • I had a PEG tube put in last tuesday to use as a vent for air and drainage of bile that otherwise would not leave my stomach (there is a ton of it built up) While i was in the hospital for 3 days they ...

Gushing out tube - preventing me from eating - HELP!

jackrabbit
  • By jackrabbit · New reply 11:03 am
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 7 replies
  • While the GI clinic waits for the Mic-Key button they've ordered to arrive, they inserted a temporary replacement PEG. It's Panda brand, only 4" long, and has NO CLAMP! Every time I open the silly thing ...

Doctors Refuse TPN

CinTam
  • By CinTam · New reply 9:07 am
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 3 replies
  • My sister has been sick for over a year this time. She has terrible pain in the abdomen when she tries to eat. She weighed 98 lbs. (she's 5 ft. 9 in. tall), before a gastro finally put her on TPN in the ...

is mickey causing internal stomach pain? frustrated

marinemomkerry
  • By marinemomkerry · Posted yesterday at 10:51 pm
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 0 replies
  • my 9 yro son has a mickey he got early august. been difficulties ever since most of the time but not on the outside. thats usually fine. but it seems like it causes hiim pain. hes been in the hospital ...

Triumphing inspite of Tube Feeding (Athletics, College, Traveling and More!

mldelucchi
  • By mldelucchi · New reply yesterday at 8:00 pm
  • Discussion in Out and about · 17 replies
  • To those interested from reading the topic title; I've started this forum in hopes of galvanizing some good advice from all those who were born with, and those who later in life took on, a dependency ...

Thrombosis

jalenboyce
  • By jalenboyce · Posted yesterday at 4:03 pm
  • Journal · 0 replies
  • Jalen started not feeling well for a couple of days but with no major symptoms. So we thought this was just going to be a viral type of thing...ha. About a week later Jalen out of nowhere complains of ...

New MIC-KEY J-TUBE, and a traditional PEG TUBE??????CONFUSED!!!!!!!!!!

Rodeogrl02
  • By Rodeogrl02 · New reply yesterday at 10:19 am
  • Journal · 11 replies
  • I finally got my new low profile MIC-KEY J-tube (just j-tube right into the jejunum) and the interventional radiology put it in, the surgeon special ordered it for me since it's a permanent residence ...

Mickey G-J tube

SBMom4
  • By SBMom4 · New reply yesterday at 9:06 am
  • Discussion in Parents' corner · 13 replies
  • I am new to the group....hoping someone can help! My daughter had her Gtube removed in January (due to increased aspiration pnuemonia) and they placed a low profile Mickey G-J tube. She is on continous ...

Bile Draining Methods

cdpmom
  • By cdpmom · New reply yesterday at 9:05 am
  • Discussion in Parents' corner · 5 replies
  • My son has had a g tube for a year, and was "upgraded" to a g/j tube in August due to bilious vomiting. Feeding through the j port has dramatically improved his ability to tolerate feeds, but lately ...

Today is a Good Day

cheneyfox
  • By cheneyfox · New reply November 21, 2009
  • Journal · 2 replies
  • After my recent life and death battle with my on going intestinal problems I am finally doing much better. I pray it continues. But I have learned much in the last 3 years. Mostly that being a patient ...

new ideas to control diarrhea?

cp20855
  • By cp20855 · New reply November 21, 2009
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 15 replies
  • Hi, We learned recently about liquid Lomotil, made for children but more easily absorbed for adults. My husband has been using what the pharmacist thinks is a huge amount (20 ml, 4 times a day), and it ...

Leakage on PEG

bbidals
  • By bbidals · New reply November 21, 2009
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 1 reply
  • Both times that I had a PEG put in I had a lot of problems with leakage. I am fairly active so the more I moved, the more it leaked. Did not like going out in public because the front of my shirt got ...

Dealing with a hugely unsupportive caregiver

jackrabbit
  • By jackrabbit · New reply November 21, 2009
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 8 replies
  • I'm sure some of you already read about the fiasco with my mother trying to make me cover up my g-tube so I didn't 'make people vomit' and 'get kicked out of public places by security', and then tried ...

Adult PEG tubers

Katie811
  • By Katie811 · New reply November 20, 2009
  • Discussion in Out and about · 52 replies
  • I would really like to hear from some other adults that use PEG tubes. I have been on my tube for almost 2 yrs, not having any problems, but would like to meet some other "tubers" out there. As far as ...

When is too much too much

aloha64
  • By aloha64 · New reply November 20, 2009
  • Journal · 7 replies
  • I just got the news that I may be having surgery for an infection surrounding my knee replacement. I had a revision last Jan '09. The infection is probably from the many PICC lines I have had. Infections ...

Mic-KEY button "sucked in"

PeytonsParents
  • By PeytonsParents · New reply November 20, 2009
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 5 replies
  • Hi, I am new to the group but not new to tube feedings. My daughter is now 26 months and has been g tube fed since shortly after birth. I am looking for advice on a new g tube problem that we don't have ...

Helpful links from the Oley Foundation

Group leaders

You