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Overwhelmed

turtle
  • By turtle · Posted 10:44 am
  • Discussion in Grieving · 1 reply
  • I've been in the hospital since sept 24th for the worst flare of my crohn's disease since i was diagnosed 5 years ago. i've been on and off TPN for 3 years. As soon as I was admitted the orders for a ...

need advice-please respond

Little_Turtle
  • By Little_Turtle · Posted November 28, 2008
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 0 replies
  • I'm 16, have had gastroparesis and other stomach problems for almost 4 years now, and desperately want some sort of central line. Preferrably a port-a-cath, as it's more permanent and less infection problems ...

This is ridiculous!

Little_Turtle
  • By Little_Turtle · Posted November 27, 2008
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 4 replies
  • Those of you reading this have probably read my previous posts and seen that I really would like and think I need some kind of central line, like a picc or a port. My veins have been horrible lately ...

Happy Thanksgiving

MarieTwinTubes
  • By MarieTwinTubes · Posted November 26, 2008
  • Discussion in Family and friends · 1 reply
  • Happy Thanksgiving, Everyone! I hope the holiday weekend finds all of us surrounded by loving family and friends. If not, I hope you have a heart at peace. Maybe we should call it Thanksgiving Joy. I ...

about remicade

cofiftyseven
  • By cofiftyseven · Posted November 26, 2008
  • Journal · 2 replies
  • Last year I had all but 40cm of my small bowel removed. I have been on HPN ever since. At my last Doctor visit my gastroenterologist has suggested I take infusions of Remicade. I would like to hear from ...

I can eat, finally

4feet
  • By 4feet · Posted November 26, 2008
  • Journal · 6 replies
  • I've had trouble eating since having most of my small intestine removed. My hemotologist prescriped "pangestyme", it's a pancreatic enzyme. I take 1 with snack, 2 with meals. It has really helped. Since ...

port-a -cath?

Little_Turtle
  • By Little_Turtle · Posted November 25, 2008
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 0 replies
  • I'm 16, have had gastroparesis and other stomach problems for almost 4 years now, and desperately want some sort of central line. Preferrably a port-a-cath, as it's more permanent and less infection problems ...

It never ends!!!

Little_Turtle
  • By Little_Turtle · Posted November 24, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 2 replies
  • I was doing ok for a few weeks after I got out of the hospital, but now things are getting worse again. The nausea is horrible, the pain is severe and waking me up at night, I'm falling behind in school ...

diabetest testing and g-tube.

Floyd
  • By Floyd · Posted November 22, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 0 replies
  • Uhh, i have recently had to slow down my intake rate from "gravity works fine (about 10 mins" to about 2 cans an hour, 4 times a day. when do you do the diabetes blood tests ...

Changing G-tubes

MarieTwinTubes
  • By MarieTwinTubes · Posted November 20, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 7 replies
  • Hi to all you fellow g-tube users. I would like to know how many of of you change your own feeding tube or have a family member (or someone close to you) do it. I am reading experiences of some who do ...

My Little Girl with Short Bowel Syndrome

FaithandHope
  • By FaithandHope · Posted November 20, 2008
  • Journal · 7 replies
  • My user name is Hope and Faith, because sometimes that's all you have left as a parent. My daughter has had short bowel since birth. She is the most precious thing to me and I feel so blessed to have ...

my life line letter

thatkellogggirl
  • By thatkellogggirl · Posted November 20, 2008
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 0 replies
  • hey everyone I just wanted to Know if you guys have had a chance to read the artical that i posted in the life line letter and if you have i would like your thoughs and tell me if it has helped you in ...

Hernia Repair and Adhesion Barrier Composites

OkeyDay
  • By OkeyDay · Posted November 19, 2008
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 1 reply
  • My daughter continues to experience hernias and this Friday will go in for her fourth hernia repair. The surgeon is talking about implanting an adhesion barrier composite (Gortex), however, he is hesitant ...

need advice- please respnd

Little_Turtle
  • By Little_Turtle · Posted November 18, 2008
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 4 replies
  • First of all, thank you guys for all being so supportive. Your messages have given me strength and hope when I needed it most. Anyway, I've decided to give up on the idea of a PICC line. Even if I did ...

Vita-Mix really worth the money?

dees
  • By dees · Posted November 17, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 13 replies
  • So my hubby and I went to one of those "home shows" and saw the Vita-Mix guy whipping up his drinks. B4 I had my G-tube, I never gave it another thought but I've heard from a few that they work. They ...

Help me help my student's parents

Mobilityteacher
  • By Mobilityteacher · Posted November 16, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 6 replies
  • Hey Folks I am a teacher of special education in California. My student’s mostly have cerebral palsy, are medically fragile, have severe cognitive impairments and 3/4ths of them have gastronomy feeding ...

Pain with eating food

4feet
  • By 4feet · Posted November 16, 2008
  • Journal · 1 reply
  • I get severe abdominal cramps when I eat and also nausea and sometimes vomittting. Does anyone know how to relieve these symptoms? I have short bowel syndrome (had most of my small intestine removed ...

questions about the tunnelled groshong line

Kathryn1972
  • By Kathryn1972 · Posted November 15, 2008
  • Journal · 6 replies
  • I am new to the forum and have only just started posting. I have severe gastroparesis and Behcets Disease. I have been on and off TPN for a few years, but 5 months ago it was decided I needed to go on ...

My Story

tah08
  • By tah08 · Posted November 14, 2008
  • Journal · 3 replies
  • Last year 2007 I kept having this sharp pain on my right side of my head and neck, plus a sore throat, so I went to Primed and they treated as a cold and it lighten up, but didn't go away, then I went ...

Concerning swallowing after throat cancer

tah08
  • By tah08 · Posted November 14, 2008
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 2 replies
  • I just had my last treatment Sept. 3rd and my throat was swollen just a couple weeks ago after seeing my throat doctor, well now the swelling has gone and I want to start eating thru my mouth instead ...

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