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New
New MIC-KEY J-TUBE, and a traditional PEG TUBE??????CONFUSED!!!!!!!!!!
- By Rodeogrl02 · Posted 7:22 pm
- Journal · 0 replies
- I finally got my new low profile MIC-KEY J-tube (just j-tube right into the jejunum) and the interventional radiology put it in, the surgeon special ordered it for me since it's a permanent residence ...
Today is a Good Day
- By cheneyfox · Posted 5:17 pm
- Journal · 0 replies
- After my recent life or death battle with my on going intestinal problems I am finally doing much better. I pray it continues. But I have learned much in the last 3 years. Mostly that being a patient ...
Leakage on PEG
- By bbidals · Posted 3:32 pm
- Discussion in Home tube feeding (HEN, enteral nutrition) · 0 replies
- Both times that I had a PEG put in I had a lot of problems with leakage. I am fairly active so the more I moved, the more it leaked. Did not like going out in public because the front of my shirt got ...
Dealing with a hugely unsupportive caregiver
- By jackrabbit · Posted November 18, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 6 replies
- I'm sure some of you already read about the fiasco with my mother trying to make me cover up my g-tube so I didn't 'make people vomit' and 'get kicked out of public places by security', and then tried ...
Michael Moore's warning for Canada - he's CLUELESS
- By jackrabbit · Posted November 18, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 5 replies
- I know it's not new to rant about Michael Moore, but his inane statement about Canada's healthcare system make me really mad. From Yahoo news: Documentary filmmaker Michael Moore says Canadians have to ...
Triumphing inspite of Tube Feeding (Athletics, College, Traveling and More!
- By mldelucchi · Posted November 17, 2009
- Discussion in Out and about · 13 replies
- To those interested from reading the topic title; I've started this forum in hopes of galvanizing some good advice from all those who were born with, and those who later in life took on, a dependency ...
Mic-KEY button "sucked in"
- By PeytonsParents · Posted November 17, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 5 replies
- Hi, I am new to the group but not new to tube feedings. My daughter is now 26 months and has been g tube fed since shortly after birth. I am looking for advice on a new g tube problem that we don't have ...
Line sepsis experiences
- By regbrigidmom · Posted November 16, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 3 replies
- Brigid is 4, and has had a central line of one sort or another (first a port, then a broviac because the port reservoir turned to cement from her TPN) for 2 years. I'll leave out the lead-up story (it's ...
Diagnosed with Gastroparesis - Any Advice Appreciated!
- By Ando · Posted November 15, 2009
- Journal · 1 reply
- I was diagnosed with gastroparesis, and before diagnosis I gained 50 pounds. Over 1/3 of my body weight. I cannot eat very much, but try and eat 1,000 calories/day, but it is painful. The doctors I have ...
Vivonex RTF Formula & Rate
- By ranee · Posted November 14, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 3 replies
- I have been switched off of Peptimen which I could feed at a rate of up to 120mL / hr to Vivonex which they said I could not feed faster than 40mL / hr. This requires that I feed 24hours a day and is ...
J tube replacement w/o anestesia
- By ranee · Posted November 14, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 5 replies
- I recently had my J tube replaced for the 2nd time- only was shocked when the dr at a well known clinic did it with no warning and no anestesia or pain meds. Let's just say it was a bloody and painful ...
Modular feeds
- By HelenB8 · Posted November 14, 2009
- Journal · 3 replies
- Ben is going into Great Ormond Street hospital for a trial of modular feeds. He is doing better being fed into the jejunum but has not gained any weight for nearly 2 years! Our dr thinks he cannot tolerate ...
ANYONE HAVE A MIC-EY J-TUBE?????
- By Rodeogrl02 · Posted November 13, 2009
- Journal · 15 replies
- I asked my surgeon if there are any other options for J-tubes since mine is permanent for like my life. My j-tube is kinda long and hangs in the way of everything , also gets caught on tons of stuff and ...
In the Interest of Why?
- By SuperGroverT · Posted November 12, 2009
- Journal · 0 replies
- This came to me in a flash last night. I thought it might be worth sharing. If you want to learn more, please contact Grover via Ning at: http://ning.com/supergrovert or http://supergrovert.com and http://freegrovert.blogspot.com ...
In the Interest of Why
- By SuperGroverT · Posted November 12, 2009
- Journal · 0 replies
- There is an inherent beauty in innocence. I see it in Avery’s eyes still, yet I know it won’t be there forever. Invevitably, she’ll encounter something, somewhere, someday that makes her understand ...
PEG Tube placement recovery ?
- By Rodeogrl02 · Posted November 11, 2009
- Journal · 13 replies
- I have a J-tube in place directly into my jejunum of my intestine (that was a huge hastle and required major surgery & exploratory anyways) Now on tuesday they are going to put a peg tube in (or g-tube ...
Adult TPN Patients, Be Part of Valuable and Exciting Quality of Life Study!
- By oleyfriends · Posted November 11, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 1 reply
- The Oley Foundation is conducting a quality of life study of adults on home parenteral nutrition (also called HPN or TPN). Your participation is vital as we seek to create a realistic and comprehensive ...
TPN
- By charliegirl3 · Posted November 10, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 5 replies
- Does any one have the same problem I am having on Tpn. I am gaining so much weight on it and I don't like. I feel like A BLIMP. this is my last chance before they pit a tube in me. Is there exercices ...
Cecostomy for a quadrapalegic?
- By proudmom2x · Posted November 10, 2009
- Discussion in Family and friends · 1 reply
- Ok My daughter is 5 years old and has had a cecostomy for about a year now. It is wonderful. Well about 4 days after she had her surgery my Uncle whom is 50 years old had a 18 wheeler accident and rolled ...
Dressing Changes Once a Week
- By cheneyfox · Posted November 10, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 13 replies
- So, we all have some sort of IV line for our HPN, right? Well do we all have to go see a nurse every week to get the dressings changed? I think this is unnecessary. I can change my own dressing. i had ...
