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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
New
Bowel Obstruction from J-tube?????
- By Rodeogrl02 · Posted November 6, 2009
- Journal · 4 replies
- I had a colonoscopy and an endoscopy this past monday (the colon part because of having severe diarrhea for weeks), then before we started the procedure my dr asked if he could add on an endoscopy last ...
Weaning From TPN..
- By cheneyfox · Posted November 6, 2009
- Journal · 5 replies
- Well I am excited because for the next 2 days I have to measure everything that goes in and out of my body. Oh Boy... Gotta love measuring poo.. I know, we have all had to do it, but still.. It ain't ...
A Joyful Place
- By grannylu · Posted November 4, 2009
- Journal · 0 replies
- Just wanted to say thank you to part of my daily "inspiration." On FB, I receive occasional inspirational messages, and today's was ". . . that to burn out the pain, just find a place filled with joy ...
Finding qualified home health care providers
- By Matt_M · Posted November 3, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 4 replies
- Hello all. I'm new to the group and the whole topic. My elderly mother has recently been placed on TPN as a part of her Crohn's treatment. She is still in the hospital, but hopes to be discharged soon ...
Mad and thankful at the same time
- By sacarver · Posted November 3, 2009
- Journal · 7 replies
- I first have to say I am so thankful I don't have to have a Jtube like a lot of people on here. Was supposed to have one placed 3 years ago, but because of blood clotting reasons, I was not a candidate ...
Need Advice about AMT feeding extensions
- By peg07 · Posted November 3, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 13 replies
- To those of you who have AMT balloon buttons. How long do you use your feeding extension tubes? The AMT website says they should be changed every two to three weeks. Is that your experience? I went longer ...
Going To Wean Off Of TPN
- By cheneyfox · Posted November 2, 2009
- Journal · 5 replies
- Leaving soon to go to Omaha for 2 weeks to wean off TPN onto their IRP diet. I hope it works. It will be great to NOT have to carry my bag around with me. I am hopeful... I long for a break from my recent ...
getting a Hickman's: deep breath
- By Woeful · Posted November 2, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 5 replies
- Nothing like short notice. I get a call today that my outpatient surgery is scheduled for this Friday. They are going to try and drain this ovarian mass (the thinking being it's not cancer but fluid build-up ...
Let's get together
- By Sanford · Posted November 2, 2009
- Discussion in Out and about · 6 replies
- I think it's about time to start a local support group. Nothing too formal, but I was thinking we could either rotate informally between homes, or go out for coffee. I'm in NYC (Da Bronx). Anyone interested ...
Thank you.
- By mom101 · Posted October 31, 2009
- Journal · 1 reply
- SuperGroverT - Thank you for sharing you and yor son's journey. I am a mom of a soon-to-be 13 year old who started off with a life threatening heart defect at birth - had surgery at 1 week and also left ...
Update on nausea
- By Zacolton · Posted October 30, 2009
- Journal · 7 replies
- Just an update on my previous post. My nausea is almost gone now, no idea why, just gone, but anyways I'm working slowly and carefully on reintroducing food and regaining strength. I hope now that I'm ...
Week 2 of diarrhea!!!
- By Rodeogrl02 · Posted October 29, 2009
- Journal · 8 replies
- So I've had my J-tube for severe gastroparesis since july 2nd, then 2 weeks ago I started getting severe liquid diarrhea, my gi dr. treated it w/ xifacin as a bacteria overgrowth in my gi tract, it kind ...
The Reasonable Curmudeon
- By GlennS · Posted October 29, 2009
- Journal · 0 replies
- My journal is my blog, The Reasonable Curmudgeon, at: http://thereasonablecurmudgeon.blogspot. com ...
The Journey of Super Grover T
- By SuperGroverT · Posted October 29, 2009
- Journal · 0 replies
- My son, Grover Thomas Hood, is 3 years old. Grover has yet to eat an entire meal without the aid of his G-Tube. Truthfully, starting with this part of the story is likely not the best first step, but ...
Inspire members featured
- By Brian · Posted October 28, 2009
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
Profuse sweating during infusions
- By Judi-1 · Posted October 28, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 2 replies
- I have been on HPN for 18 years. Over the past several years, I have been experiencing profuse sweating beginning about four to five hours into my twelve hour infusion. I am literally drenched so that ...
lipids?
- By momto2girls · Posted October 28, 2009
- Discussion in Home IV feeding (HPN, parenteral nutrition) · 5 replies
- Hi, I've been reading some discussions here since my daughter started on TPN a little over a week ago. I have a question about lipids..I've read that some have 2 bags to hang or a double chambered bag ...
Calorie questions...
- By jackrabbit · Posted October 27, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 7 replies
- I've talked b4 about wanting to switch to a homemade blender diet, but I can't afford it right now. I cannot afford any food whatsoever, so am unsure what to do about my constant hunger. Perhaps the hunger ...
I need a Gtube with a pill port
- By DungBeetle · Posted October 26, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 15 replies
- I am being told of new meds on the market that could really help my guy who is 100% Gtube (no swallow/gap reflex) to help manage his crohn's dx~~~alas, the meds are pill and must keep whole to work in ...
Food-deprivation driving me mad - help!
- By jackrabbit · Posted October 26, 2009
- Discussion in Home tube feeding (HEN, enteral nutrition) · 4 replies
- The damaged nerves in my face affect my tongue, teeth, and the roof of my mouth. Any flavor, texture, or temperature difference causes murderous pain which lasts for days, hence the reason for my g-tube ...
