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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Active journals
New MIC-KEY J-TUBE, and a traditional PEG TUBE??????CONFUSED!!!!!!!!!!
- By Rodeogrl02 · New reply 3:00 am
- 3 replies
- I finally got my new low profile MIC-KEY J-tube (just j-tube right into the jejunum) and the interventional radiology put it in, the surgeon special ordered it for me since it's a permanent residence ...
Today is a Good Day
- By cheneyfox · Posted yesterday at 5:17 pm
- 0 replies
- After my recent life and death battle with my on going intestinal problems I am finally doing much better. I pray it continues. But I have learned much in the last 3 years. Mostly that being a patient ...
When is too much too much
- By aloha64 · New reply yesterday at 4:41 pm
- 7 replies
- I just got the news that I may be having surgery for an infection surrounding my knee replacement. I had a revision last Jan '09. The infection is probably from the many PICC lines I have had. Infections ...
PEG Tube placement recovery ?
- By Rodeogrl02 · New reply yesterday at 10:22 am
- 13 replies
- I have a J-tube in place directly into my jejunum of my intestine (that was a huge hastle and required major surgery & exploratory anyways) Now on tuesday they are going to put a peg tube in (or g-tube ...
ANYONE HAVE A MIC-EY J-TUBE?????
- By Rodeogrl02 · New reply November 16, 2009
- 15 replies
- I asked my surgeon if there are any other options for J-tubes since mine is permanent for like my life. My j-tube is kinda long and hangs in the way of everything , also gets caught on tons of stuff and ...
Diagnosed with Gastroparesis - Any Advice Appreciated!
- By Ando · New reply November 16, 2009
- 1 reply
- I was diagnosed with gastroparesis, and before diagnosis I gained 50 pounds. Over 1/3 of my body weight. I cannot eat very much, but try and eat 1,000 calories/day, but it is painful. The doctors I have ...
Husabnd Has Esphageal Cancer
- By Tigerette · New reply November 15, 2009
- 68 replies
- My husband was dignosis with esphageal cancer in Oct 9, 2008, he's been on chemo, then on March 16, 2009 went in for major surgery, to remove all his lymp nodes, and mostly all his stomach, now he has ...
Modular feeds
- By HelenB8 · New reply November 15, 2009
- 3 replies
- Ben is going into Great Ormond Street hospital for a trial of modular feeds. He is doing better being fed into the jejunum but has not gained any weight for nearly 2 years! Our dr thinks he cannot tolerate ...
Does anyone have suggestions for Bile Reflux? Has anyone been to Mayo?
- By JeniMac · New reply November 14, 2009
- 30 replies
- Recently my bile reflux has gotten so bad that sometimes when I bend over, bile comes into my mouth & sometimes my nose. I finally bought bed raisers to help at nighttime, but this is ridiculous. Does ...
In the Interest of Why?
- By SuperGroverT · Posted November 12, 2009
- 0 replies
- This came to me in a flash last night. I thought it might be worth sharing. If you want to learn more, please contact Grover via Ning at: http://ning.com/supergrovert or http://supergrovert.com and http://freegrovert.blogspot.com ...
In the Interest of Why
- By SuperGroverT · Posted November 12, 2009
- 0 replies
- There is an inherent beauty in innocence. I see it in Avery’s eyes still, yet I know it won’t be there forever. Invevitably, she’ll encounter something, somewhere, someday that makes her understand ...
Bowel Obstruction from J-tube?????
- By Rodeogrl02 · New reply November 11, 2009
- 9 replies
- I had a colonoscopy and an endoscopy this past monday (the colon part because of having severe diarrhea for weeks), then before we started the procedure my dr asked if he could add on an endoscopy last ...
Pulmanry Problems ??????CONFUSED!!!!!
- By Rodeogrl02 · New reply November 11, 2009
- 13 replies
- I told my neurologist whom I see for dysautonomia that I keep getting really short of breath with very little exsertion, just like walking a few feet or up a few stairs, so she ordered a pulmonary function ...
Still sick
- By shan789 · New reply November 11, 2009
- 19 replies
- It's been 3 weeks and Jake doesn't seem to getting better. He has been vomiting off and on since his Mickey button, for his cecostomy, was placed. We have been to the Dr. office and ER a lot in the past ...
Week 2 of diarrhea!!!
- By Rodeogrl02 · New reply November 9, 2009
- 15 replies
- So I've had my J-tube for severe gastroparesis since july 2nd, then 2 weeks ago I started getting severe liquid diarrhea, my gi dr. treated it w/ xifacin as a bacteria overgrowth in my gi tract, it kind ...
Weaning From TPN..
- By cheneyfox · New reply November 6, 2009
- 5 replies
- Well I am excited because for the next 2 days I have to measure everything that goes in and out of my body. Oh Boy... Gotta love measuring poo.. I know, we have all had to do it, but still.. It ain't ...
Going To Wean Off Of TPN
- By cheneyfox · New reply November 5, 2009
- 5 replies
- Leaving soon to go to Omaha for 2 weeks to wean off TPN onto their IRP diet. I hope it works. It will be great to NOT have to carry my bag around with me. I am hopeful... I long for a break from my recent ...
Mad and thankful at the same time
- By sacarver · New reply November 5, 2009
- 7 replies
- I first have to say I am so thankful I don't have to have a Jtube like a lot of people on here. Was supposed to have one placed 3 years ago, but because of blood clotting reasons, I was not a candidate ...
Inspire members featured
- By Brian · New reply November 4, 2009
- 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
A Joyful Place
- By grannylu · Posted November 4, 2009
- 0 replies
- Just wanted to say thank you to part of my daily "inspiration." On FB, I receive occasional inspirational messages, and today's was ". . . that to burn out the pain, just find a place filled with joy ...
