Active journals
- By Walter · New reply 10:27 am
- 35 replies
- Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...
- By 4feet · New reply November 29, 2008
- 6 replies
- I've had trouble eating since having most of my small intestine removed. My hemotologist prescriped "pangestyme", it's a pancreatic enzyme. I take 1 with snack, 2 with meals. It has really helped. Since ...
- By cofiftyseven · New reply November 29, 2008
- 2 replies
- Last year I had all but 40cm of my small bowel removed. I have been on HPN ever since. At my last Doctor visit my gastroenterologist has suggested I take infusions of Remicade. I would like to hear from ...
- By Brian · New reply November 28, 2008
- 134 replies
- When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...
- By Kathryn1972 · New reply November 28, 2008
- 6 replies
- I am new to the forum and have only just started posting. I have severe gastroparesis and Behcets Disease. I have been on and off TPN for a few years, but 5 months ago it was decided I needed to go on ...
- By shan789 · New reply November 26, 2008
- 11 replies
- So we ended up at the ER last night, with a very clogged NG tube. The dr. had a nurse try to unclog it, but it wouldn't budge. So they ended up putting in a new one. This one is a little bigger, and last ...
- By FaithandHope · New reply November 25, 2008
- 7 replies
- My user name is Hope and Faith, because sometimes that's all you have left as a parent. My daughter has had short bowel since birth. She is the most precious thing to me and I feel so blessed to have ...
- By Brian · New reply November 23, 2008
- 24 replies
- I am pleased to announce that we have updated Inspire to support video. You can now share a video of yourself, videos that you find inspirational or informative, and more. I've included one of myself ...
- By tah08 · New reply November 21, 2008
- 3 replies
- Last year 2007 I kept having this sharp pain on my right side of my head and neck, plus a sore throat, so I went to Primed and they treated as a cold and it lighten up, but didn't go away, then I went ...
- By 4feet · New reply November 17, 2008
- 1 reply
- I get severe abdominal cramps when I eat and also nausea and sometimes vomittting. Does anyone know how to relieve these symptoms? I have short bowel syndrome (had most of my small intestine removed ...
- By 4feet · New reply November 11, 2008
- 3 replies
- Looking for a good GI doctor in the Phoenix, AZ area ...
- By 4feet · Posted November 10, 2008
- 0 replies
- I have short bowel syndrome and am looking for anyone who may know of a good GI doctor in the Phoenix, AZ area. 4feet ...
- By shan789 · New reply November 5, 2008
- 10 replies
- We only had one good night with the tube not getting plugged. It just seems to get plugged 4 hours into the feed. I have started watering down the formula, and flushing with soda, and running 100cc through ...
- By Jameson · New reply November 2, 2008
- 4 replies
- before I had to have most of my small intestine removed when I was 16, thus changing my life, I had no aspirations in life. I didn't want to go to college, and I cared nothing about school. After getting ...
- By Zacolton · New reply October 31, 2008
- 10 replies
- My latest post is on loneliness in relation to disease. I'm wondering how others feel about this? http://jeromemorrow.wordpress.com/ For the first time in a long while I am feeling homesick. I miss my ...
- By shan789 · New reply October 27, 2008
- 10 replies
- We saw his surgeon today, not real good, he lost a lb. So he added a feed during the afternoon, so he's getting 1000ML of formula a day. He told Jake the NG tube stays in until, he reaches 110lbs( he's ...
- By shan789 · New reply October 26, 2008
- 8 replies
- Hi, Jake is still not eating much at all. He is eating about 200 to 400 caloeies a day. He's still getting what he needs through his NG tube. The only problem is that his NG tube keeps getting clogged ...
- By DGSTRICK · New reply October 26, 2008
- 4 replies
- My DOctor had been goign to refer me back to home care since July. I finally got a call this wek and the case manager was kind of mythed with me and siad that as I was young I should be more mobile and ...
- By DGSTRICK · New reply October 25, 2008
- 9 replies
- Well today is another day of pain and agony. I tried to increase to speed of my feeding pump ( Kangaroo Joey) but it hurts too much. I woke up last night in soo much pain and I had to turn the setting ...
- By shan789 · New reply October 16, 2008
- 4 replies
- I took Jake to see the surgeon on Wednesday, and he admitted him to the hospital right away. After many test, the upper scope showed he had sever gastritis, and a very bad stomach infection. He ended ...
